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Symptoms And Questions
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Hi all more questions, my middle daughter who has been gluten free for two months now is now experiencing severe swelling in her left leg, from calf thru her foot. It is quite noticeable and takes along time for the color to return if you touch the leg in this area. Has anyone else ever experienced this or heard of this. She also has polyglandular autoimmune disease, which involves her thyroid, parathyroid and we know that it can develop rheumotory arthritis but this in only one extremety that is swollen. Please let me know if any of you have any thing like this and what is typically done in this case. Also has anyones child had such severe problems with thriving on the gluten free diet that they had to have an engitube inserted for a while until they were able to thrive and not have adverse symptoms persist?

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Hi Kim,

I checked into polyglandular autoimmune disease, and it didn't sound like it was too nice of a disease! Celiac is nothing compared to it. It sounds like she is having circulatory problems and edema in that leg. What did her doctor have to say about it? It is probably what is giving her so much trouble and why she isn't thriving on the gluten-free diet. I hope you find out what is causing the swelling, so it can be fixed. It doesn't sound like it is celiac disease related, but you never know.

God bless,

Mariann

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    • Just found this site today. Did you ever find one? I was diagnosed this year and I live on Oahu.
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
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