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Dh Whenever And Wherever
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3 posts in this topic

As I sit here tiping this out,I have an out brake of DH on my arms and head.Don't know how this happend.Eat right!Must be the perfume someone had on.I can't tell people not to put that stuff on or put the smelly ads in the papers or mags.So itchy,burning,1000 bug bit,red there for me to scatch the night away.Thay say a person with this looks like they have hives.Hives go as quickly as thay came.But this stays as long as it wants.It's that DH DANCE I talked about in that joke poem.SCATCHEN only becouse I wanted to go out today.Free contry yah,yah.

Don't ask me!

I hate when peope ask whats wrong when thay see these things.

What got you scared?

Whats that?

Big COMFORT there sport.IT'S DH IT'S celiac disease get over it! :angry::(

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It must really stink to have to wear your gluten intolerance on the outside! I'm really sorry about that. I hope it helps to know we're all here for you! Hang in there!

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I know exactly what you mean, about people staring at you like they don't want to get next to you, they might catch it. When I first got DH I always covered as much skin as possible then came summer, I finally came to the conclusion that this is me and I have a terrible disease, which is enough to worry about, I'm not about to go on worrying about what people are thinking so I woar my shorts this summer and even put a swimsuit on!!!!! That was a big achievement for me! Best of luck to you. Oh yea, I'm very sensitive to everything also, even if I do everything I'm suppose to I can still get an outbreak-who knows why? Do you think stress makes yours worse????

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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