Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ncgi And Gluten-Free Substitutes?


nostalgic

Recommended Posts

nostalgic Rookie

So I've read a lot about how you should avoid gluten-free substitutes for awhile after you begin a gluten-free diet because your gut needs to heal up. My question is, if you are not a celiac, does this still apply? My impression is that celiacs have actual damage done to their gut, not sure if this is the case for people with NCGI? I realize a whole foods diet is the best idea but gluten-free substitutes are just so convenient for me and I'm still at college with a shared gluten kitchen (yes, I realize the situation is not ideal for CC, but I'm going to try to minimize it anyway). Any input would be appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I don't know that it is a matter of being celiac or not. It is just that your gut is not happy with gluten, and you are trying to make it happy by changing your diet. In so doing you don't want to introduce it to other things that might upset it. There are many substitutes in gluten free processed food that you may not have eaten before, and to present those to your intestinal tract when it is at sixes and sevens already is probably not the best idea. Give it a chance to calm down and stop reacting to things a bit first. Things like quinoa, amaranth, millet, are typically not in the SAD (standard American diet :) ). It wouldn't hurt to buy some Tinkyada pasta, and some Udi's bread, even some Pamela's baking mix for some occasional pancakes or cookies, but we are really talking about not going out and purchasing a substitute for every gluten thing you are used to eating. :D

Takala Enthusiast

You can go by how you feel, and introduce one new item at a time to see how you react to it. I was very, very strict and avoiding starches for a long time because I simply could not process them at all. Then, after a few years, I finally got to the honeymoon phase and got to try a lot of different items and got to experiment with baking a lot. And I am actually happy that people who are not hyper sensitive DO have lots of gluten free foods to eat, believe it or not, even if I'm not using them. But I have become very sensitive to cross contamination of certain ingredients common to gluten free foods, and that means I'm mostly back on whole food type items and not the more exotic stuff. I'm also insulin resistant, and that is another inherited trait made worse by lack of diagnosis when I was younger. This isn't anybody's "fault," it is just the way it goes with some of us. If I was much younger, had a faster metabolism, and was busy with college and wanted to eat some commercially made gluten free cereal and bread, I'd certainly give it a whirl. I think plain gluten free brown rice pasta is wonderful stuff. If I gained weight and felt bad or developed old or new symptoms, I'd take it back out. The "crazy making" is other people's obsessions with how much other people they are looking at .... weigh. :blink: Uh, I am well aware that I am off the perfection chart for body mass index and probably have been for over 4 decades now, thank you for informing me. The only way I am going to be thin with this bone structure is if I become terminal with something. I also have been exercising the entire time except for periods of injury, and when I was nearly knocked down by this disease no one could diagnose, and as a result I am probably able to do more things than the average, so- called "normal" woman of my age, even if I do not look marvelous in tight stretchy yoga clothes when doing it. :P

nostalgic Rookie

Thanks everyone for the thorough responses :) That makes a lot of sense, I will probably keep a food diary just to see if any new sensitivities appear, but I probably will only be eating a gluten-free substitute or less a day. I definitely plan to eat a lot of Tinkyada since it's easy to make some pasta and I think it's pretty yummy (and so does my gluten roommate--she can't tell the difference). I'm also a big fan of Van's waffles since they are so easy to make. I may go easy on any snacks for a bit, or stick to normal gluten free ones (fruit, cheese, candy :o:P, etc).

Sorry to hear about your metabolism and complications from such a long period of going undiagnosed. I'm actually fairly significantly underweight, mainly from other illnesses :/ so putting on weight would definitely be a positive. I'm keeping my fingers crossed no other intolerances pop up, but I'm definitely going to keep my eye out.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,916
    • Most Online (within 30 mins)
      7,748

    Ykat
    Newest Member
    Ykat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.