Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ncgi And Gluten-Free Substitutes?


nostalgic

Recommended Posts

nostalgic Rookie

So I've read a lot about how you should avoid gluten-free substitutes for awhile after you begin a gluten-free diet because your gut needs to heal up. My question is, if you are not a celiac, does this still apply? My impression is that celiacs have actual damage done to their gut, not sure if this is the case for people with NCGI? I realize a whole foods diet is the best idea but gluten-free substitutes are just so convenient for me and I'm still at college with a shared gluten kitchen (yes, I realize the situation is not ideal for CC, but I'm going to try to minimize it anyway). Any input would be appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I don't know that it is a matter of being celiac or not. It is just that your gut is not happy with gluten, and you are trying to make it happy by changing your diet. In so doing you don't want to introduce it to other things that might upset it. There are many substitutes in gluten free processed food that you may not have eaten before, and to present those to your intestinal tract when it is at sixes and sevens already is probably not the best idea. Give it a chance to calm down and stop reacting to things a bit first. Things like quinoa, amaranth, millet, are typically not in the SAD (standard American diet :) ). It wouldn't hurt to buy some Tinkyada pasta, and some Udi's bread, even some Pamela's baking mix for some occasional pancakes or cookies, but we are really talking about not going out and purchasing a substitute for every gluten thing you are used to eating. :D

Takala Enthusiast

You can go by how you feel, and introduce one new item at a time to see how you react to it. I was very, very strict and avoiding starches for a long time because I simply could not process them at all. Then, after a few years, I finally got to the honeymoon phase and got to try a lot of different items and got to experiment with baking a lot. And I am actually happy that people who are not hyper sensitive DO have lots of gluten free foods to eat, believe it or not, even if I'm not using them. But I have become very sensitive to cross contamination of certain ingredients common to gluten free foods, and that means I'm mostly back on whole food type items and not the more exotic stuff. I'm also insulin resistant, and that is another inherited trait made worse by lack of diagnosis when I was younger. This isn't anybody's "fault," it is just the way it goes with some of us. If I was much younger, had a faster metabolism, and was busy with college and wanted to eat some commercially made gluten free cereal and bread, I'd certainly give it a whirl. I think plain gluten free brown rice pasta is wonderful stuff. If I gained weight and felt bad or developed old or new symptoms, I'd take it back out. The "crazy making" is other people's obsessions with how much other people they are looking at .... weigh. :blink: Uh, I am well aware that I am off the perfection chart for body mass index and probably have been for over 4 decades now, thank you for informing me. The only way I am going to be thin with this bone structure is if I become terminal with something. I also have been exercising the entire time except for periods of injury, and when I was nearly knocked down by this disease no one could diagnose, and as a result I am probably able to do more things than the average, so- called "normal" woman of my age, even if I do not look marvelous in tight stretchy yoga clothes when doing it. :P

nostalgic Rookie

Thanks everyone for the thorough responses :) That makes a lot of sense, I will probably keep a food diary just to see if any new sensitivities appear, but I probably will only be eating a gluten-free substitute or less a day. I definitely plan to eat a lot of Tinkyada since it's easy to make some pasta and I think it's pretty yummy (and so does my gluten roommate--she can't tell the difference). I'm also a big fan of Van's waffles since they are so easy to make. I may go easy on any snacks for a bit, or stick to normal gluten free ones (fruit, cheese, candy :o:P, etc).

Sorry to hear about your metabolism and complications from such a long period of going undiagnosed. I'm actually fairly significantly underweight, mainly from other illnesses :/ so putting on weight would definitely be a positive. I'm keeping my fingers crossed no other intolerances pop up, but I'm definitely going to keep my eye out.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748

    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.