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Ncgi And Gluten-Free Substitutes?


nostalgic

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nostalgic Rookie

So I've read a lot about how you should avoid gluten-free substitutes for awhile after you begin a gluten-free diet because your gut needs to heal up. My question is, if you are not a celiac, does this still apply? My impression is that celiacs have actual damage done to their gut, not sure if this is the case for people with NCGI? I realize a whole foods diet is the best idea but gluten-free substitutes are just so convenient for me and I'm still at college with a shared gluten kitchen (yes, I realize the situation is not ideal for CC, but I'm going to try to minimize it anyway). Any input would be appreciated.


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mushroom Proficient

I don't know that it is a matter of being celiac or not. It is just that your gut is not happy with gluten, and you are trying to make it happy by changing your diet. In so doing you don't want to introduce it to other things that might upset it. There are many substitutes in gluten free processed food that you may not have eaten before, and to present those to your intestinal tract when it is at sixes and sevens already is probably not the best idea. Give it a chance to calm down and stop reacting to things a bit first. Things like quinoa, amaranth, millet, are typically not in the SAD (standard American diet :) ). It wouldn't hurt to buy some Tinkyada pasta, and some Udi's bread, even some Pamela's baking mix for some occasional pancakes or cookies, but we are really talking about not going out and purchasing a substitute for every gluten thing you are used to eating. :D

Takala Enthusiast

You can go by how you feel, and introduce one new item at a time to see how you react to it. I was very, very strict and avoiding starches for a long time because I simply could not process them at all. Then, after a few years, I finally got to the honeymoon phase and got to try a lot of different items and got to experiment with baking a lot. And I am actually happy that people who are not hyper sensitive DO have lots of gluten free foods to eat, believe it or not, even if I'm not using them. But I have become very sensitive to cross contamination of certain ingredients common to gluten free foods, and that means I'm mostly back on whole food type items and not the more exotic stuff. I'm also insulin resistant, and that is another inherited trait made worse by lack of diagnosis when I was younger. This isn't anybody's "fault," it is just the way it goes with some of us. If I was much younger, had a faster metabolism, and was busy with college and wanted to eat some commercially made gluten free cereal and bread, I'd certainly give it a whirl. I think plain gluten free brown rice pasta is wonderful stuff. If I gained weight and felt bad or developed old or new symptoms, I'd take it back out. The "crazy making" is other people's obsessions with how much other people they are looking at .... weigh. :blink: Uh, I am well aware that I am off the perfection chart for body mass index and probably have been for over 4 decades now, thank you for informing me. The only way I am going to be thin with this bone structure is if I become terminal with something. I also have been exercising the entire time except for periods of injury, and when I was nearly knocked down by this disease no one could diagnose, and as a result I am probably able to do more things than the average, so- called "normal" woman of my age, even if I do not look marvelous in tight stretchy yoga clothes when doing it. :P

nostalgic Rookie

Thanks everyone for the thorough responses :) That makes a lot of sense, I will probably keep a food diary just to see if any new sensitivities appear, but I probably will only be eating a gluten-free substitute or less a day. I definitely plan to eat a lot of Tinkyada since it's easy to make some pasta and I think it's pretty yummy (and so does my gluten roommate--she can't tell the difference). I'm also a big fan of Van's waffles since they are so easy to make. I may go easy on any snacks for a bit, or stick to normal gluten free ones (fruit, cheese, candy :o:P, etc).

Sorry to hear about your metabolism and complications from such a long period of going undiagnosed. I'm actually fairly significantly underweight, mainly from other illnesses :/ so putting on weight would definitely be a positive. I'm keeping my fingers crossed no other intolerances pop up, but I'm definitely going to keep my eye out.

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    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
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