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Azuremackey

Member Since 24 May 2012
Offline Last Active Sep 17 2012 09:12 AM
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About Me

I have been diagnosed for just over 3 months. I was diagnosed via blood work, biopsy, then another biopsy, immunofluorescence biopsy and upper GI. LOL it has been quite a journey. I had DH so bad that I was initially diagnosed with scabies (That Treatment bombed), then Chicken pox , after 2 weeks of more pox breakouts my Doctor decided to do further testing… WOW what a concept! I was tested for everything except DH. I was told it was pustular psoriasis, put on prednisone and an allover body lotion (that burned off the tops of the blisters and left me raw from head to toe) and referred to a dermatologists. My first skin biopsy that came back with 3 possible autoimmune diseases bullous pemphigoid ( this is typically found in people over the age of 60 I am 35), DH and another that did not fit the symptoms. My doctor started treating me for the pemphigoid because he did not believe that DH could be as bad as mine. I obviously did not stay clear soon after prednisone was completed I was covered in DH again. I was lucky to have a good dermatologists but it took several months to get to the proper diagnosis. While DH is HORRIBLE I am almost thankful for it as I have also had severe intestinal issues for about 7 years but I was always told it was stress, IBS etc… I just learned to live with it. Im sure I’m preaching to the choir with all of this!! Since my diagnosis I am 100% gluten-free and I have taken the Dapsone treatment for 30 days once with some relief. gluten-free has equaled almost a total reversal in my intestinal issues and that is a huge blessing but my DH is still reoccurring. The biggest relief is that new breakouts start and end within 3 days and are on a much smaller scale. I am struggling with my diet but am managing to live with this disease.

Community Stats


  • Group Members
  • Active Posts 6
  • Profile Views 707
  • Member Title New Community Member
  • Age 38 years old
  • Birthday November 3, 1976
  • Gender
    Female Female
  • Interests
    Gardening, Zumba, painting and being awesone!!
  • Location
    Bethlehem, GA

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