Azuremackey

Also potato skins are high iodine so you need to peel them deeply. Egg yolks are high iodine but you can seperate them & eat the whites only. You should be safe with cashews & hazelnuts & cashew butter but peanut butter is iodine mostly b/c of the skins. Sunflower seed butter is okay too. Loose the iodized salt & get plain non iodized salt & do NOT use sea salt --- sea salt is iodine. Celery is low sals, green beans, cabbage, saffron, peas, chives, ONLY golden delicious apples, peeled pears --- the sweet ones. I'm low iodine as well as low sals & am eating fresh chicken, beef, pork (not ham), rice, white peeled potatoes, celery, white acre peas, green peas, snow peas, sugar snap peas, green beans, pears - peeled, gol. del. apples, mangos, leeks, cabbage, chives, saffron, safflower oil, limited sweet potatoes, brussells sprouts, bananas, cashew butter, brown rice cakes (Lundsburg organic unsalted), egg whites, whole cashews, hazelnuts, bamboo shoots, instant decaf nescafe' coffee, instant decaf iced tea (or hot) & fresh turkey if it has no additives.

Thank you very much!! I am doing many ( but not all!) of these things now and I will adjust my diet to fit the rest of these restrictions!! I will talk to my doctor about no dairy for some reason he wanted me to get a limited amount other than that this is all going to start now!!

Hi,

People (posters here) with DH often say their rash flares when they get iodine in their diet along with gluten. So they avoid iodine in their diet, especially if they are having a DH flare. You do need iodine for your thyroid to function correctly, so you should not eliminate it all the time. But your body can store some amount of it, so you don't need it every day. You may be able to have it when things are going well and your DH is not flaring.

Since you are getting over a bad flare though, it would be good to avoid all iodine for a while, and stick to a very clean gluten-free diet. That would be a diet with nothing but whole foods you cook yourself at home. No restaraunts or processed foods. I think fish is considered bad as it has iodine in it. There are also some vegetables to avoid. Someone may come along with more info for you, or you could start a new thread for your situation. There are people much smarter than me about DH on the forum who can help you. Welcome to the forum though!

Thank you very much for the warm welcome and your advice. Because of the severity of the DH I was put on a very limited diet by my doctor 3 months ago. I've eliminated almost everything in my diet... on the short list i can have ; water, kale, red potatoes, rice, meat, limited cheese, cabbage, brussel sprouts, 2 bananas a week, some beans, some nuts, and iceberg lettuce. I have stuck to this diet without one slip no gluten, no iodine (that I know of), low SALS and lowered dairy for 3 months. I have lost 56 lbs in 3 months and i am getting close to a dangerous area where i have no appetite and still keep losing weight. I am on vitamin supplements mostly to fight the extreme fatigue and headaches. I am lost as to where to go from here with my diet. I am going to do more research on the SALS and iodine in foods.Maybe I am getting it from somewhere... Or Maybe this is just what my diet is going to be for the long haul!! Thank you again I will look deeper into the iodine thing.

I am newly diagnosed ( gluten-free for 3 months) I have the same problem. I drink almost 2 gallons of water a day and am still constantly thirsty. I have tried some herbal teas but some give me stomach issues has anyone else had this issue with teas?

Hello Friends,

This is just my second post but I saw this topic and had to post this because I too was diagnosed with scabies but only tried that treatment once. I was adamit with my doctor that it had to be something else because i have a family and none of them had any symptoms. I hope my journey to diagnosis can help a little!

I have been diagnosed for just over 3 months. I was diagnosed via blood work, biopsy, then another biopsy, immunofluorescence biopsy and upper GI. LOL it has been quite a journey. I had DH so bad that I was initially diagnosed with scabies (Treatment bombed), then Chicken pox , after 2 weeks of more pox breakouts my Doctor decided to do further testing

Hello Friends,

This is my first post but I have been reading and following along for several weeks. I have been diagnosed for just over 3 months. I was diagnosed via blood work, biopsy, then another biopsy, immunofluorescence biopsy and upper GI. LOL it has been quite a journey. I had DH so bad that I was initially diagnosed with scabies Treatment bombed, then Chicken pox , after 2 weeks of more pox breakouts my Doctor decided to do further testing