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swezzan's Blog

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Hello Everyone


Guest

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:) I don't know what to say except that I did a search on google out of desperation for some sort of connection between asthma and gluten. I found u guys...........

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I am new at this but I was disturbed to read that some people do not believe that there is a connectrion between them.

 

Let me assure you that I have been one of the worse asthmatics and sinus suffers for over 53 yrs. This included every drug on the market that came out to help. I have been under oxygen tents, lived on large doses of predisone, adrenal shots, & inhalers since they came out. I have had three complete endo-scopic sinuse surgeries since 1994.

 

After being told that I was going down hill looking towards death, because that is the ultimate result of struggling to breath for all those years.....I realized something......

 

I was the one that would have to find out what the root cause was for my dilemma because the doctors were at a loss and I was getting worse. Ended up housebound for six years..........

 

One day I went into a health store and noticed that on a loaf of bread it read "no gluten".

 

I decided that I had tried every med in the book for my wheezing why not try taking out something from the diet..........lol.............if any one wants to know..........what happened let me know........

or u can visit my space sue bee well.

 

I am now a 54 yr old woman.......not sick enough to be on SSI anymore..........but trying to work to survive...............I am as well as anyone who is not sick..............It is a long story and I am not sure anyone wants to know...........Iknow my doctors didn't..............I use to go to the doctors and I mean specialists at least 3 x week and the er several times. Now I have not seen a doctor since my last physical last yr. and on top of that no meds. Imagine, no meds. No inhaler............Swezzan

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Mosaics

Posted

I have no problem believing that asthma can be related to food intolerances, specifically gluten or wheat.

I have an acquaintance who had a similar experience - very bad asthma for 50 yrs., in and out of hospitals, specialists, could barely walk to the mailbox, was becoming housebound. When he went off wheat his recovery was astounding. I thought he should have gone on a completely gluten-free diet, but since one doctor, in a last ditch attempt to help, suggested that he might be allergic to wheat, that's the only effort he made.

Unfortunately, he did not make it a lifelong diet and has been in and out of the hospital at least two more times in the last year for severe stomach/colon pain. I don't understand his reluctance to commit himself to a gluten-free diet.
Guest

Posted

In response to your disbelief that your friend would not follow such a strict diet.

I have found the same stubbornness within my own family. Gluten Intolerance is usually an inherited factor of health and once I found the key to my being healhy I was concerned for those around me and my family members with weird diseases anad symptoms no one could explain. Sadly to say, my family members are happy for me but think it has nothing to do with their problems. After all, the doctors don't think so...........

The other importance part of finding out.......in your fifties.........is that your whole life has been wasted by going to doctors who are more educated then you are...............and they did not find the solution........if it was as simply as not eating the gluten don't u think the smart ones in society would have known by now................

So be it..........it is also a life change.......at 50 how can we start over...........and succeed........in life. We have been sick with doctors patting us on the back saying there is nothing more that can be done. I am finding the responsibility of being well is a very heavy thing to have around one's neck at this stage of life............Your friend might have thought it through on some kind of level and thought it safer to have the backing of doctors.......saying he/she was sick........maybe stay on SSI/SSDI

Do u realize that to make life easier for myself all I have to do is pick up a slice of bread and eat it.......I will be classfied as unable to work................and thus.........the scary transformation of being well and almost fully function for all appearances would be sidestepped. Also at this point in life, being gluten free also means my foods are more expensive.....and I don't have the money to keep myself healthy...........it isi a mixed bag........and I think the doctors should be held accountable for ignoring the asthma/gluten connection and leaving lots of people compromised.


No doctors are held accountable for this as they are just following norm of their profession. I have contacted lawyers about mal-practice since I was misdiagnosed since 2 to 54 yrs old. Response from lawyers no lawsuit bases as no doctors are doing different than then what their fellow professionals are doing.,...........

Just think of all the money US doctors are making by not admitting or following up on this health connection. Just a thought......I know they make millions on me. and I have been a Guinea pig for all lot of drug that came out for asthma.


Just a thought: No one needs your body more than u do. So if it is not functioning properly, you are the one that has more at stake than anyone. Your life......I like to say it is the only vehicle my spirit has to travel in...............once it breaks down there is no replacement..................Swezzan

Mosaics

Posted

Oh, believe me, I have seen the resistance to a possible celiac disease diagnosis in my own family and friends. Some of them embraced it immediately because they felt so much better eating gluten-free, but others of them will not hear of the possibility and some have resisted, but finally came around.

What I found so incomprehensible about my friend's abandoning the gluten-free diet is that he was so much better on it. After having had a taste of feeling good and healthy, to choose to go back to his illness?!

I think that celiac disease is becoming much more commonly known about and that some doctors are more open to testing for it, but we have a still a long way to go. I've heard so many people say, "My doctor won't test for celiac disease because I don't have the typical gastro issues."

Oh yeah, and the money being made by doctors and pharmaceutical companies...

One of my symptoms was acid reflux. I thought it was normal because everyone seemed to have it. There are commercials on TV for acid reflux/heartburn medicines every few minutes. :( I used to have to take a Zantac before I went to bed every night or I'd have terrible burning in my throat and wake up in the middle of the night with horrible nausea. The very day I started my gluten-free diet, I never had to take another Zantac. It took several months for it to go away completely, but it was never again bad enough to require medication.

EKMorris

Posted

I've had two sinus surgeries to remove hypertrophic turbinates, which ultimately cured my migraines. Despite these surgeries my turbinates still swell at night to the point where I can't breathe out of one side. I've noticed this happens when I eat the equivalent of two servings of wheat a day.

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