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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,235 topics in this forum

  1. Tall Holly
    knitty kitty

    Mayo Testing Updates

    By Tall Holly, Last action:
    • 3 replies
    • 1.7k views
    • knitty kitty
    • knitty kitty
  2. hmcdowell
    knitty kitty

    Daughter age 6, trying to avoid an endoscopy if possible

    By hmcdowell, Last action:
    • 4 replies
    • 1.4k views
    • knitty kitty
    • knitty kitty
  3. jennmb

    Help me read my results

    By jennmb, Last action:
    • 4 replies
    • 1.8k views
    • jennmb
    • jennmb
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  4. Shireen32
    Scott Adams

    IBD Celiac

    By Shireen32, Last action:
    • 3 replies
    • 1.6k views
    • Scott Adams
    • Scott Adams
  5. tygerlily

    Am I wrong about my symptoms being Celiac?

    By tygerlily, Last action:
    • 5 replies
    • 2.9k views
    • tygerlily
    • tygerlily
  6. Meredith2033
    Scott Adams

    Do I Have Celiac or Am I Just CRAZY?!

    By Meredith2033, Last action:
    • 14 replies
    • 4.1k views
    • Scott Adams
    • Scott Adams
  7. HannahLaF
    Scott Adams

    Positive biopsy negative blood test

    By HannahLaF, Last action:
    • 3 replies
    • 1.4k views
    • Scott Adams
    • Scott Adams
  8. Azazello
    Wheatwacked

    Need help understanding joint paint symptoms

    By Azazello, Last action:
    • 17 replies
    • 3.1k views
    • Wheatwacked
    • Wheatwacked
  9. HarrietP
    Wheatwacked

    Waiting for gastro referral

    By HarrietP, Last action:
    • 4 replies
    • 1.8k views
    • Wheatwacked
    • Wheatwacked
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  11. pikauchu
    Guest

    Biopsy results

    By pikauchu, Last action:
    • 9 replies
    • 2.2k views
    • Guest
    • Guest
  12. Spacepanther
    Scott Adams

    Advice - Finding a good Dr.

    By Spacepanther, Last action:
    • 9 replies
    • 1.3k views
    • Scott Adams
    • Scott Adams
  13. Lissasmmarie
    Wheatwacked

    Understanding Daughter's Endoscopy Biopsy Results

    By Lissasmmarie, Last action:
    • 14 replies
    • 2.1k views
    • Wheatwacked
    • Wheatwacked
  14. Victor2022
    Russ H

    Test result interpretation negative TISSUE TRANSGLUTAMINASE AB, IGA (tTG-IGA) , positive DGLIADIN (DEAMIDATED) AB (IGG) [DGP-IGG]

    By Victor2022, Last action:
    • 23 replies
    • 4.6k views
    • Russ H
    • Russ H
  15. meg-c
    Bronwyn W

    Can Celiac Cause Neutropenia?

    By meg-c, Last action:
    • 7 replies
    • 10.4k views
    • Bronwyn W
    • Bronwyn W
  16. Jen2114
    trents

    Positive Blood Test, Negative Biopsy

    By Jen2114, Last action:
    • 14 replies
    • 2.5k views
    • trents
    • trents
  17. Eileenmm
    plumbago

    Ciliacs and long covid

    By Eileenmm, Last action:
    • 9 replies
    • 2.1k views
    • plumbago
    • plumbago
  18. Shellly

    Test results- do I need a biopsy?

    By Shellly, Last action:
    • 3 replies
    • 1.9k views
    • Shellly
    • Shellly
  19. Emanon

    Exploratory [NDNT] 1 2

    By Emanon, Last action:
    • 35 replies
    • 4k views
    • Emanon
    • Emanon
  20. Maxipoo
    knitty kitty

    Someone else confused...

    By Maxipoo, Last action:
    • 19 replies
    • 2.8k views
    • knitty kitty
    • knitty kitty
  21. Maxipoo
    Scott Adams

    Now What? Input Greatly Appreciated.

    By Maxipoo, Last action:
    • 4 replies
    • 1.4k views
    • Scott Adams
    • Scott Adams
  22. nattaliec
    cristiana

    Diagnosis in children

    By nattaliec, Last action:
    • 2 replies
    • 1.4k views
    • cristiana
    • cristiana
  23. Shireen32
    trents

    blood test results

    By Shireen32, Last action:
    • 6 replies
    • 1.8k views
    • trents
    • trents
  24. Emma84
    knitty kitty

    Biopsy came back as inflamed but negative. Can someone help me figure out what to ask to ensure they properly did the biopsy?

    By Emma84, Last action:
    • 2 replies
    • 1.1k views
    • knitty kitty
    • knitty kitty
  25. heyitsmissa
    Scott Adams

    Positive Deaminated Gliadin IGA & DQ2 but...

    By heyitsmissa, Last action:
    • 2 replies
    • 944 views
    • Scott Adams
    • Scott Adams
  26. Victor2022
    Scott Adams

    JUST Going gluten-free for ONE WEEK before being tested for celiac disease can prevent diagnosis? or skew result?

    By Victor2022, Last action:
    • 1 reply
    • 2.1k views
    • Scott Adams
    • Scott Adams
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  • Posts

    • nataliallano
      Meniers and celiac are they related

      By nataliallano · Posted

      Thanks Kitty for your guidance. I will do the test to see if I have nutrients deficiencies and at the same time re organize my diet to see if that helps with my vertigo and other symptoms.   
    • knitty kitty
      Meniers and celiac are they related

      By knitty kitty · Posted

      Yes, Vitamin D is frequently low in Celiac Disease and Meniere's both.  Ask for an Erythrocyte Transketolace test to check for thiamine insufficiency.  Diuretics can cause excess thiamine loss.  Benfotiamine is a form of thiamine that improves intestinal health.  Thiamine in the form TTFD (Tetrahydrofurfuryl Disulfide) helped improve my Meniere's syndrome.
    • nataliallano
      Meniers and celiac are they related

      By nataliallano · Posted

      Kitty, to correct the anemia I got IV iron and B complex for 30 days. Then my next step will be test for nutritional deficiencies.   
    • knitty kitty
      Meniers and celiac are they related

      By knitty kitty · Posted

      Welcome to the forum, @nataliallano, There's a dozen or so vitamins and about as many minerals that our bodies need to live and thrive.  Our vitamins and minerals can become depleted in Celiac Disease due to malabsorption and inflammation, so we need to eat a nutritionally dense diet, and keep inflammation to a minimum.  
    • knitty kitty
      Inflammation and Menier’s disease link?

      By knitty kitty · Posted

      No, not if you've got an official diagnosis already.   Let's continue our conversation on this thread... Thanks
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