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1desperateladysaved

Did Your Vitamin D Levels Go Up?

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Hmmm... sunscreen blocks out the rays that provide vit D. I'm fair so I'm going to use sunscreen and take a D supplement. I've had family with minor skin cancer, but it was easy to remove and not serious. Still I have to be careful. Does anyone else ever feel like they weren't made to survive on this planet?


Sara  :)   "This life is a test. It is only a test. If it had been an actual life, you would

                             have received further instructions on where to go and what to do"

 

"If you're going through hell, keep going" :) Winston Churchill
************************************
Histamine Intolerant  Apr 2014

N C Gluten Intolerant dx Feb 2012  Also Intolerant to Rice, Eggs, Nightshades.
Gluten-Free/ Grain-free/ only whole foods prepared at home since  March 2012
Dairy, Soy, Chocolate free since Jan 2012   Sensitive to Corn and Mold since 1995
 

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Yes, for unknown reasons pre-diagnosis my Vit D levels were a bit high at 79 (I did not take any supplements and was not eating dairy so we chalked it up to being outside a lot and being very fair) now I'm nearly 90 and they've asked me to cut back on my new multivitamin, even though I'm low on other things, to prevent it from getting dangerous.

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Does anyone have reliable info about what the recommended D level is? I've heard wildly different things from different doctors. My daughter and I were both tested in early summer last year, at the same lab. We both spend lots of time outside. Her level was 29, and her doctor said he wants to see it much higher, to 50 at least. My level was 30, and my doctor said that's more than enough and that there's no need to try to raise it through supplements or ever retest it to see if it goes up. Again, our blood was drawn at the same lab in the same week, presumably using the same testing methods. I have trouble believing that a 1-point difference between us shows that hers is much too low and mine is more than high enough. Or are there really drastically different levels of D that are considered adequate for children and adults?

I took supplements anyway, based on info from my daughter's doctor who seemed more informed - but I'm really just wondering if there's any actual medical consensus on adequate levels, or whether it just depends on each particular doctor's opinion.


Daughter: Positive tTG-IgA, DGP-IgA, and DGP-IgG. Celiac confirmed by biopsy in June 2013, at age four. Clear gastrointestinal, behavioral, and neurological/sensory symptoms since very early infancy, even when exclusively breastfeeding.

Me: Diagnosed by GI with "presumed celiac" based on health history, celiac in family, and resolution of fat malabsorption and many other symptoms on gluten-free diet. Long history of eczema, chronic diarrhea, steatorrhea, ataxia, peripheral neuropathy, infertility, chronic insomnia, low cholesterol, vitamin deficiencies, and joint pain. Negative celiac tests after 15 years gluten-light and then a brief but awful gluten challenge. 

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I'd say you both are at minimal acceptable. Do you have previous tests to compare if either of your levels have risen?

As example...mine was 17 at celiac diagnosis....rose to 28 with supplementation first year gluten-free...has continued to rise without supplementation each subsequent year since.


-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)

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I'd say you both are at minimal acceptable. Do you have previous tests to compare if either of your levels have risen?

Thanks for the info, Lisa. My daughter has no other tests to compare to, but after that she started taking an adult dose of chewable Caltrate every day (which has 800IU of D3) on the recommendation of the dietitian at her GI's office, mainly for the calcium. My level was retested by a different doctor about six months after the first test and had risen significantly, though I forget the exact number now and the lab had a different reference range. I'd been supplementing with 4000IU per day in between and was feeling much better, so I stopped taking it regularly. I was never really clear on what level to aim for.


Daughter: Positive tTG-IgA, DGP-IgA, and DGP-IgG. Celiac confirmed by biopsy in June 2013, at age four. Clear gastrointestinal, behavioral, and neurological/sensory symptoms since very early infancy, even when exclusively breastfeeding.

Me: Diagnosed by GI with "presumed celiac" based on health history, celiac in family, and resolution of fat malabsorption and many other symptoms on gluten-free diet. Long history of eczema, chronic diarrhea, steatorrhea, ataxia, peripheral neuropathy, infertility, chronic insomnia, low cholesterol, vitamin deficiencies, and joint pain. Negative celiac tests after 15 years gluten-light and then a brief but awful gluten challenge. 

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I have some information about vitamin D levels.  It seems that there were some very high levels of vitamin D being recommended. Then the Institute of Medicine of the National Academies were asked to study the matter by the US and Candian governements.  They came up with lower recommendations.  Many labs and doctors are still using the very high levels.  Also, different units are used in different countries, which further complicates matters.  You can read about it here: http://www.iom.edu/Reports/2010/Dietary-Reference-Intakes-for-calcium-and-vitamin-D.aspx

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My Vit D went from the low end of insufficient (on supplements for years) to the high end of sufficient (without any supplements at all) after just 6 months gluten free. My antibodies were all down to almost nothing as well.

 

I was so happy that I wanted to frame that lab report!  :D


Celiac Disease 2013

~Elevated tTG IgA despite insufficient Total IgA~

Autoimmune Gastritis 2013   

LADA 2010

Hashimoto's Disease 2003

and...

 

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