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mightymorg

Not Happy With My Gi!

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I'm sorry, I just need to vent, and I know y'all will understand!

So, I went in for my colonoscopy on Wednesday...by the way, if you have to have one, find an alternative to Fleet phosho-soda--that is the foulest, saltiest stuff ever! :ph34r: Anyway, my GI TOLD me he would do biopsies, and have a celiac blood panel done. I know the biopsies from the colon would not be helpful in diagnosing celiac, but I just wanted them done so I knew everything was getting looked at. They gave me some pain meds and a memory suppressant, which completely knocked me out. Now, I don't remember hardly anything for the 5 hours after that, except for him saying the procedure went well, my colon "looks good" except that it is extremely long and twisted, nearly twice as long as a normal person's! :blink:

I remember him asking me if I had questions (yeah, great time to answer questions when I'm not going to remember it!) and I know I asked if he did biopsies, and he said NO!!! That makes me sooo mad...and he didn't put in a blood work order.

I'm still furious, and extremely unsatisfied. He told me I could have surgery to remove part of my colon, but it could very likely make things worse. And he told me to keep taking my Miralax.

I'm in pain, very crampy, and have had D 3 times in 30 minutes, complete with undigested food. I know I asked my GI how that would explain undigested food (because I know it doesn't), but I don't remember what he said.

Regardless, I called my PCP and I have an appt with her at 4:30 CST. I already said my reason for the appt was to have a full celiac blood panel done, and I will explain my complete unsatisfaction about the whole ordeal.

GRRR...okay, I think I'm done. I'm sorry it was so long; I just need someone to listen! Thanks!

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How frustrating!!! I'm so sorry...I just don't understand why they don't at least "consider" what we have to say and what we ask.

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hi i know just how u feel i had it done back in feb this year i was hoping that this would find my problems once and for all but all got was that intestine was fine . but my stomach as 5 areas which are inflamed and my esophigus is badly eroding. i get gastritus alot. so she just gave me some meds for that and that was it , she never looked for celiac diease. and she just said come back in 3 month. why would waiting three months make it any better i have had cronic d for 2 1/2 years now i lost 40lb in 3 months am under wait and cant maintane a decent weight for keep being ill. so i was cross they had the opertinity to look for other things but didnt .then i got the bill coming to 600 dollars which was reluclant to pay as it was a waist of time. my gi then left town and didnt inform me untill i called for an appointment and didnt get areferall to anyone else i had to go back and look my self which i have done and i see him this month but again u have to start with all the background suff before we get to whats going on now.

sorry i read your message and all my frustration came back too liz

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Wow, Lizzy, I can certainly see why you are frusterated! I also have bad refluz, and I'm also worried about the condition of my esophagus! Some docs can be really insensitive.

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Many doctors and specialists are absolutely the worst at this, believe all their patients are morons who were born with one brain cell. How could we possibly know what is happening to our bodies, we never spent seven years in medical school.

Personally I think veterinarians are a better bet.

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Sorry your doctor's an idiot...ours is too. Mine won't even answer a simple question over the phone. You have to make an appointment and pay a copayment of $40 (after you've waited for him for 2 1/2 hours). Then he makes you feel like your questions are stupid and that he's already explained the whole thing to you a dozen times! I'm frustrated too but supposedly he's "the best." Hang in there. You are doing the right thing by insisting that every procedure or test you want to have done actually gets done. It's your body and ultimately you are responsible for it. Don't wait to get anything done. Do it now. Since birth I knew there was something wrong with my son's gut. But nooooooo, the doctor wanted to "wait." After not gaining any weight or growing for 3 years he still didn't think it was time to refer him to a GI. Take things into your own hands now. (Guess I needed to vent too.)

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Well, I just got back from my PCP's office, and told her how frusterated I was with everything. I mean, IBS is a diagnose of exclusion, so why should I be "diagnosed" with that without having anything done?! I finally got her to comply to my request of having a celiac panel. At first she said she would anly check for AGA IgA and AGA IgG...she said she's positive the others would come back negative!! But I stayed firm and demanded--nicely--that she also test for the EMA and the tTG IgA. She wouldn't budge on the total serum IgA, though. She was all exasperated when I asked her to do the other two for my reassurance...I don't understand why doctors act like that. It doesn't require any effort on their part except to actually write out the request, so why do they act so resiliant about these things?

Turns out, though, I've lost 8 pounds in the past month. That kind of makes me worried, as much peanut butter I've been eating! Oh well, she said she'd also have my thyroid tested.

I'm starting to really not like doctors.

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I'm starting to really not like doctors.

<{POST_SNAPBACK}>

LOL!! Simple, direct and to the point. :D You have just described my feelings to a tee. My daughter has a gluten intolerance (I strongly believe it is Celiac's Disease) and after dealing with total ineptitude from a series of docs and tests that went nowhere, I gave up and put my daughter on a gluten-free diet. She is now thriving and doing quite well despite their diagnosis of "failure to thrive". I had never heard of Celiac's Disease prior to my daughter presenting with symptoms and after MONTHS of pediatric appointments, I finally went to an alternative doctor (an ACUPRESSURIST to be precise) and in 20 minutes she told me to eliminate all glutens. Sure enough, my 15 month old daughter turned completely around within days. The sad part is, the acupressurist never saw my daughter, just asked questions and listened to me on the phone. The pedi had been seeing my daughter every month from birth (twice per month from 9 - 15 months), had heard me tell her that I thought a food allergy was present and yet nothing was done. I was told to up her intake of bread and pasta to make her gain weight.

It is laughable that I actually paid these people for their "professional" opinions. And after reading posts from many members on this site, I am happy that I have switched her care to a homeopath who knows something about nutrition and food allergies. The difference in my daughter these days is remarkable and I can only pray that we never run into the same medical misfits we previously were stuck with again!

All I can say is that you need to find someone who is capable of listening to you and is genuinely interested in helping you resolve your health issues. Unfortunately, too many docs out there just don't fit those criteria. Sad....but true.

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  My daughter has a gluten intolerance (I strongly believe it is Celiac's Disease) and after dealing with total ineptitude from a series of docs and tests that went nowhere, I gave up and put my daughter on a gluten-free diet.  She is now thriving and doing quite well despite their diagnosis of "failure to thrive".  It is laughable that I actually paid these people for their "professional" opinions.  And after reading posts from many members on this site, I am happy that I have switched her care to a homeopath who knows something about nutrition and food allergies.  The difference in my daughter these days is remarkable and I can only pray that we never run into the same medical misfits we previously were stuck with again! 

All I can say is that you need to find someone who is capable of listening to you and is genuinely interested in helping you resolve your health issues.  Unfortunately, too many docs out there just don't fit those criteria.  Sad....but true.

<{POST_SNAPBACK}>

You were so lucky, it wasn't discovered or even looked for in my kids. Even though my son went from the 65th percentile at birth to the -10 at a year, and my DD went from the 110th to the 20th. They thought I had emotional problems and that the kids had inherited them and my son was 'just being difficult about food'. It wasn't discovered till he was 19 and all hope of growing was gone. He stands barely 5' feet tall. Finding someone who will listen to you is very difficult if you live in a small town, especially after the parents are deemed to be 'unstable' (depressed). And people wonder why I don't trust doctors!

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You were so lucky, it wasn't discovered or even looked for in my kids. Even though my son went from the 65th percentile at birth to the -10 at a year,  and my DD went from the 110th to the 20th. They thought I had emotional problems and that the kids had inherited them and my son was 'just being difficult about food'.  It wasn't discovered till he was 19 and all hope of growing was gone.  He stands barely 5' feet tall.  Finding someone who will listen to you is very difficult if you live in a small town, especially after the parents are deemed to be 'unstable' (depressed).  And people wonder why I don't trust doctors!

<{POST_SNAPBACK}>

Believe me, I KNOW how lucky we are and yet I still am angered by how my daughter's case was handled by her pediatrician (as I imagine you are). I firmly believe that we would still be testing and running around in circles if this had been left up to the pedi and gastroenterologist. All of their advice was completely WRONG and my husband spied a note the pedi had written in my daughter's chart that sad "parents appear to be attentive". ??? I wish I could pull her medical chart out and write, "pediatrician appears to be deaf and blind!". After doing a lot of research and interviews, I now know that most MDs know absolutely nothing about diet and nutrition and therefore, it would never occur to them to make the celiac connection. A pediatric nutritionist I know has told me that most MDs are about 40 years behind on knowing about nutrition and food-induced disease. She rates them as an 8.5 on the dietary ineptitude scale (10 being the worst). She works for an internationally known hospital that is a leader in treatments ranging from heart transplants to cancer. So it's not surprising that there are so many small-town docs that are even worse. I am truly sorry to hear of your experience and what your kids suffered through without a diagnosis. And I understand how it feels to be labeled by the doctors as being "unstable". I had quite a row with one of our pedis over the phone about this and it wasn't until they saw the changes in my daughter a month later that I finally got an apology from them. One of the pedis in the practice still avoids me like the plague while another now has asked me for some guidance in locating information on gluten/casein-free diets for kids with ADD/ADHD. He had NEVER heard of a connection before.

The docs still want to do a biopsy with my daughter as she was on a gluten-light diet when blood tests were performed so she was negative for celiac's. She would have to be on glutens for 2-6 weeks (depending on which GI we go to). No thank you. I know what the problem is and I don't need to put my daughter through agony in order for them to possibly provide me with a written diagnosis. And as it turns out, our struggles ended up pointing my aunt in the right direction when it came to finally getting a diagnosis in her 5-year undiagnosable illness. Turns out, celiac's runs in our family and so we are all changing our lifestyles. It was hard in the beginning, but after a year, we are in a much happier and healthier place.

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The docs still want to do a biopsy with my daughter as she was on a gluten-light diet when blood tests were performed so she was negative for celiac's.  She would have to be on glutens for 2-6 weeks (depending on which GI we go to).  No thank you.  I know what the problem is and I don't need to put my daughter through agony in order for them to possibly provide me with a written diagnosis. 

<{POST_SNAPBACK}>

I don't understand why doctors don't just order the genetic testing if they feel they have to have proof other than dietary response. As long as they look for both full celiac and intolerances it shouldn't be required that we poison ourselves or our children then undergo the inherent risks of sedation or anesthesia. Hopefully American doctors will wake up soon.

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Sadly, I highly doubt American doctors will wake up. My Dr. that I saw yesterday actually told me that "doctors are discouraged from performing biopsies if everything looks fine." Can you BELIEVE that?!? How about on the microscopic level? I know a biopsy during my colonoscopy wouldn't be indicative of celiac disease, but for Pete's sake, what about something else? When she said that, I was thinking: That's not what I've been reading! And then I still think she has it in her head it's IBS. Well, to make sure it's IBS, do your job and exclude all other possibilities before you tell me I just have to deal with this! :angry:

Regardless if my blood tests are negative or what-not, I'm done with these doctors...

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My Dr. that I saw yesterday actually told me that "doctors are discouraged from performing biopsies if everything looks fine."  Can you BELIEVE that?!?  How about on the microscopic level?  I know a biopsy during my colonoscopy wouldn't be indicative of celiac disease, but for Pete's sake, what about something else?  When she said that, I was thinking: That's not what I've been reading!  And then I still think she has it in her head it's IBS.  Well, to make sure it's IBS, do your  job and exclude all other possibilities before you tell me I just have to deal with this!   :angry:

Regardless if my blood tests are negative or what-not, I'm done with these doctors...

<{POST_SNAPBACK}>

I think I would search for a new doctor is someone said that to me. First off, you wouldn't be in that doc's office if things were "fine". I'm sure that by this point you've tried all sorts of meds and are still having problems and so once again, the indication is that you are NOT fine. Perhaps this doctor could use a new dictionary for Christmas.

And I can whole-heartedly attest to the fact that there are plenty of doctors out there who get a "diagnosis" stuck in their head and develop tunnel vision preventing them from looking at other possibilities. That tunnel vision actually cost my father his life. I would encourage all patients to research into their symptoms and conditions and share your findings with the doctor. Press them for answers and don't be intimidated by the framed degree hoisted up on their office walls. You have every right to ask questions and expect them to assist you in finding answers. You are paying for their services, they are NOT doing you a favor. I would also suggest keeping a food diary along with symptoms. It is much easier to get results when armed with black and white facts. I think having it all in writing scares some into thinking they may get sued if you are serious enough to journal it all (with dates). If nothing else, you have very pertinent information in your possession to help with second and third opinions.

And as far as blood tests go....they aren't accurate enough to rule Celiac's out and I've read of Celiac's being present in people who also tested negative on the biopsy. There are also plenty of other allergies out there which can cause similar symptoms and can confuse the diagnosis of Celiac's. The only true method to finding a food allergy or intolerance is to do an elimination diet. I think that the best one may be the Feingold diet. Although very strict, I think it weeds things out much more quickly than by eliminating one food at a time.

And for those with celiac's who still have problems, it is very common for a dairy and soy allergy to be present with celiac's. Makes the diet a bit more complicated but still, it is very common. I am not exactly sure why this is, but suspect it stems from an inherent enzyme deficiency present in those with Celiac's. If you lack the enzymes to break the food down, you'll show an intolerance.

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This is just my own rant about the doc who supposedly ordered a full Celaic panel blood test for me. He did seem to order everything EXCEPT the EMA test which he just finally called today after I left a message Friday asking why the EMA wasn't done and by the way could someone call to discuss the results maybe?!! He said no he didn't order that test (I wrote down what he said and he said clearly, we'll do the EMA test) and that the tests he ordered would have showed more positives if I have celiac disease. Then he said in his veiwpoint, I don't have Celaic disease. He said you still need the biopsy which will prove that you don't have it. He also said I don't need to be on any special diet. Well duh, I know I can't go gluten-free before the biopsy!

Okay, so I can read as I do have a brain. My test results page clearly states that the tGg test (weak positive) is flagged and it says this antibody is 99% specific to gluten sensitive enteropathy. So I ask the doc, that's great if I don't have celiac disease but what would the antibody level be indicating is wrong? He said - it's inconclusive, your tests results don't indicate Celiac. I'm not having the biopsy done there anyway since he didn't order the test he promised and seems very reluctant to tell anyone they have celiac disease as the diet is so hard to follow (his words). Now don't get me wrong, I'd love not to have celiac disease as long as I don't have something worse. But I don't want someone trying NOT to give a dx of celiac disease because the diet is so hard. Plus this is the same guy that said, women just get anemia - out of the blue. Take iron for another 10-15 years and the anemia will go away after menopause. No thanks doc!

That's all my ranting for today. Thanks for reading if anyone did!

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I'd love not to have celiac disease as long as I don't have something worse. But I don't want someone trying NOT to give a dx of celiac disease because the diet is so hard. Plus this is the same guy that said, women just get anemia - out of the blue. Take iron for another 10-15 years and the anemia will go away after menopause. No thanks doc!

<{POST_SNAPBACK}>

I have heard a few other doctors commenting on how the diet was "so hard". When I spoke to an acupressurist in regards to my daughter and she told me she was 99% sure my daughter had celiac's or a gluten intolerance, I found myself repeating that same phrase. She told me, it's not necessarily that difficult, just much healthier as it is whole-food based.

My daughter has been gluten-free for over a year now and dh and I are gluten-light (gluten-free at home, light when we HAVE to eat out). It's not so bad once you get used to it. And personally, we all feel so much better that we have no problems adhering to it for the long-term. I find it rather shocking that a doctor would be reluctant to diagnose Celiac's due to the level of difficulty he/she perceives it to be. Have they tried it? No. So why withold the necessary tests required to potentially change someone's life for the infinite better? I suppose it must be bad for business.

I guess that I don't understand why someone would project their fears onto someone else. Those docs would be freaked out if they knew what foods we do without here. We also avoid dairy (unless unhomogenized) as well as much of the soy out there. And until recently, we also had to avoid eggs due to dd's food issues. We managed to survive quite well. A lot of it is just a change of attitude and finding ways to re-create the foods you love to have.

I find it amazing just how long people are going without diagnosis and in a way, I am happy that I got fed up and just changed the diet and said the heck with it. I am sure that our GI doc would still be dancing in circles around the issue and my dd would be wasting away. Terrible that it comes down to that for so many. I'm thankful for all of you that have answers and praying for those of you still seeking. I hope all is resolves quickly for you.

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Glad to hear your daughter is doing well and I agree that the diet is neither hard nor horrible. A thought crossed my mind as I was reading your post about Drs. not wanting to prescribe the gluten-free diet. They have no problem recommending chemotherapy when they think its appropriate, so to be reluctant to recommend the gluten-free diet when it will clearly help is confusing to say the least. Just a thought...

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Glad to hear your daughter is doing well and I agree that the diet is neither hard nor horrible.  A thought crossed my mind as I was reading your post about Drs. not wanting to prescribe the gluten-free diet.  They have no problem recommending chemotherapy when they think its appropriate, so to be reluctant to recommend the gluten-free diet when it will clearly help is confusing to say the least.  Just a thought...

<{POST_SNAPBACK}>

Thanks for the support. Most think I am nuts to not want a biopsy-proven diagnosis. To me, it's more about being practical and making the best of what has been given to us. It wasn't exactly "convenient" for my husband, daughter or I to deal with the symptoms associated with celiac's. I could tell that my daughter was in pain, losing weight and I knew it was food-related. And as I've gone along in this, I found issues with several other foods and had to eliminate them one by one. We are all happier for the changes. Yes, it's a bit of a pain to cook every meal at home, but it's more of a pain not to! :blink: And we are trying out an alternative therapy which does seem to be alleviating, if not completely removing some of her food allergies.....in 4 days eggs are back on the menu.

As for chemotherapy....don't even get me started!! My father died of "cancer" a few months ago and we did alternatives along with the chemo. The difference in his quality of life once the alternatives started was astonishing. And guess what? The diet prescribed by the homeopath included a gluten-free menu as well as the avoidance of dairy, refined sugar, alcohol, tobacco and red meat. Dad died of complications due to chemotherapy that were completely missed by 3 doctors. I ended up having to give them the diagnosis and all 3 couldn't believe that they had missed it....especially since it was a common complication with chemotherapy. Unfortunately, it was too late to reverse the condition and I had to watch my dad die because of it. He had been labeled as "terminal" and they were just too busy fretting over tumor size rather than the symptoms he was presenting with. Strangely enough, his tumor burden had reduced by 45% ("unbelievable" according to the oncologist) by that point. With chemo alone, his tumor burden had increased by 10%, so there really is a lot to be said about diet and nutrition (and huge amounts of supplements in his case). Three weeks before he died he was out with his chainsaw cutting down trees in the yard. I've never heard of that happening with other people on chemotherapy who were already 2 months beyond their "termination date". He wasn't supposed to live beyond two months in the shape he was originally in. (We were told a few weeks right before we started the alternatives, to the vehement objections of his oncologist).

Simply put, one does not get a headache because they are deficient in aspirin. Nor do they develop cancer because they are deficient in chemotherapy and radiation. Someday, I hope to see doctors treat the underlying condition through diet and lifestyle changes and use drugs and toxic chemicals as a LAST resort for treating symptoms. Generally speaking, I think we've got wonderful diagnostic tools at our disposal. But we lack knowledge in diet and nutrition and tend to try to kill flies with sledge hammers when a fly-swatter will do.

I would LOVE to see Eastern and Western medicines integrate. But for now, I think it's a pipe dream.

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First, please accept my deepest symphathy on the loss of your Dad. After only a few months, it must still be so hard. It sounds to me like the Drs. involved had a case of "tunnel vision" regarding the treatment and failed to see the big picture or the whole person. I can't say I blame you at all for not wanting to put your daughter through any more than she's already been through--you know what the problem is and you're dealing with it. I would be very interested in knowing what alternative you used for the egg allergies. I responded to another topic earlier today with a similar theme. I had said that the first person who told me that my problems were diet related was a Kinesiologist. My Dx was truly a combination of alternative and conventional medicine. I'm sure this holiday season will be a bit difficult for you, but I wish the best to you and your family.--Patti

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shayesmom--

sorry to hear of your father too. cancer is so frustrating, hateful and frightening all at once... my boss's father recently died from cancer and said his father and mom mentioned, knowing now what chemo etc. would be like, that he would not have chosen it.

also..i have a good friend who's father has had cancer 3 times. it has been quite a while since the last bout, and he has healthy. he ended up treating it with alternative medicine as well.

it would be great if both e and w could integrate...how much stronger "medicine" could be. i know for many of us, being raised "w", the "e" way takes some faith to believe in...

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First, please accept my deepest symphathy on the loss of your Dad.  After only a few months, it must still be so hard. It sounds to me like the Drs. involved had a case of "tunnel vision" regarding the treatment and failed to see the big picture or the whole person.  I can't say I blame you at all for not wanting to put your daughter through any more than she's already been through--you know what the problem is and you're dealing with it.  I would be very interested in knowing what alternative you used for the egg allergies.  I responded to another topic earlier today with a similar theme.  I had said that the first person who told me that my problems were diet related was a Kinesiologist.  My Dx was truly a combination of alternative and conventional medicine.  I'm sure this holiday season will be a bit difficult for you, but I wish the best to you and your family.--Patti

<{POST_SNAPBACK}>

Thanks to all of you for your thoughts and sympathy. You guys almost made me cry!! :( It's nice to know that there are so many caring individuals out there.

Losing my 60 year-old Dad to cancer was definitely not easy (nor do I foresee it getting any easier during the holidays). But some of the things we were able to experience were absolutely priceless and have helped so many others in the process, including my daughter and I. I ended up taking over my dad's supplemental care (with supervision from a homeopath). The things I got to learn and observe.....well, no one would believe it. lol!! So now, I just try to apply what I've learned to help others going through the same thing. I see that same "pay it forward" attitude throughout this board. I'm very happy to have found such a positive environment to hang around.

As far as the egg allergies go, we are having the NAET (Nambudripad's Allergy Elimination Techniques) therapy done. This will sound unbelievable, but my dd's egg allergy went away in the space of 4 days. NO joke and NO exaggeration. I tested the reaction to egg 2 days prior to the first appointment (severe diarrhea in 1-3 minutes and 2+ hours of hyperactivity) and then again the day after they told me it had "cleared". I used the same recipe, the same time of day, etc.. It's been over a week now and dd has not had any reaction to eggs even though I've served them to her at least 2x per week. Sounds impossible, but right now, it is working. And I don't believe that an egg allergy can disappear or be outgrown in 4 days time. That's just not logical. The treatment combines homeopathy, kinesiology and acupuncture/acupressure. With dd, we use acupressure only. The therapy is completely non-invasive and for those with anaphylactic reactions or with very young children, you can do the therapy via a surrogate. (It took me about 6-7 months to wrap my head around THAT one. lol!!) We've only been to 4 sessions so far and most need 10-15 to eliminate all of their allergies. So far, so good. The initial consult was about $250 (included one DHA supplement) and subsequent appointments have been $67 each. Don't know if the insurance will be picking any of this up as it is a non-conventional treatment. It is worth looking into though.

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shayesmom -- I'm so sorry about your dad. I feel your pain. :( I'm sorry and offer my deep sympathy for your loss. I can't imagine my life without my 85-year old daddyO. He is all I have in this world since -- I also lost a loved one. My sweet 81-year old handicapped Auntie that was on a feeding tube and life support, all as a result of the medical community in Boca Raton, Florida.

My journey with celiac disease is blogged and unbelievable.

I feel that WE as patients need to hold these people in the health care industry responsible. They make us responsible to pay the bill! Only fair! We have to call attention and alert each other to the bad doctor and educate other people in the world about our disease. Doctors don't care about celiac disease, and don't seem to be able to wrap there little minds around the truth about celiac disease, food allergies and intolerances as well as chemical sensitivities. Because they don't profit $$$$ from our diet and there is no-magic-pill for them to (get a kick-back from the RX companies) and prescribe for them to cure us.

We must get in the habit of speaking to strangers about the disease. I do. I tell everyone I meet. People say, "Oh, you are nice and skinny! I hate you!" I tell them why. And what a seizure is like.

It all starts with us, little by little, educating others and spreading the word about bad doc's. We do have choices.

When I went through the final stages of my Auntie life I spoke to head nurses in 2 different hospitals and not one knew anything about celiac disease. I sat them down and [made them listen] to me. The head stupidvisor of nursing at Boca Raton Community Hospital told me she never heard of celiac disease. Comforting feeling she gave me, but it made me feel better to educate her. Well, as I type this it came to mind how all my time and effort spent with these doctors and nurses didn't save Auntie's life or fix what huge error resulted from their neglectful actions. :angry:

I like you, am also trying to connect the flawed genetic gene.

The doctors and hospital WILL make an account for their errors with my dear sweet Auntie.

I will make them. The question is who?

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Well, I just got back from my PCP's office, and told her how frusterated I was with everything. I mean, IBS is a diagnose of exclusion, so why should I be "diagnosed" with that without having anything done?! I finally got her to comply to my request of having a celiac panel. At first she said she would anly check for AGA IgA and AGA IgG...she said she's positive the others would come back negative!! But I stayed firm and demanded--nicely--that she also test for the EMA and the tTG IgA. She wouldn't budge on the total serum IgA, though. She was all exasperated when I asked her to do the other two for my reassurance...I don't understand why doctors act like that. It doesn't require any effort on their part except to actually write out the request, so why do they act so resiliant about these things?

Turns out, though, I've lost 8 pounds in the past month. That kind of makes me worried, as much peanut butter I've been eating! Oh well, she said she'd also have my thyroid tested.

I'm starting to really not like doctors.

I don't know if this is still being done, but HMOs used to give incentives to doctors, so many of them don't order the tests that many of us would like done.

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What the heck do they do that for????!!! I know they give perks for docs to push certain meds but who wins by doing the proper tests for us? Gosh this whole thing is exasperating! :angry:

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  • Upcoming Events

    • April 17, 2019 Until April 27, 2019
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      April 17-27, 2020   For the past few years many of you have asked us to arrange a River Boat Cruise that will allow us to visit Amsterdam's famous Keukenhof Gardens at its prime time of the blossoming of the millions of Tulips and Hyacinths - alongside the windmills of the Netherlands.  With the participation of a minimum of 20 persons we have arranged an All-Inclusive Cruise from Antwerp to Amsterdam.  This cruise will not be offered to the public until January, 2019 and always sells out quickly.   THERE WILL BE NO MONEY REQUIRED NOR COMMITMENT FROM YOU until we have all the final costs and details.  If you are at all interested check out our website for as many of the details that we have as of this time.   We need your request to be placed on a list of interested participants so we can present that number to Uniworld to show we have the sincere interest in this All-Inclusive Bob & Ruth's Gluten-free Cruise.   PLEASE CHECK OUT OUR WEBSITE FOR THE DETAILED INFORMATION THAT WE HAVE AS OF THIS TIME.   http://bobandruths.com
    • April 24, 2019 04:00 PM Until 08:00 AM
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      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • May 04, 2019 Until May 05, 2019
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      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
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