Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cold like symptoms related to coeliac?


**Liz**

Recommended Posts

**Liz** Newbie

 Hi all

This is a really supportive site and I have enjoyed reading some of the threads.

I found out I am coeliac about 6 weeks ago and have been gluten-free since. 

Over the last few years, I’ve been plagued by very regular periods of feeling like I’m coming down with a cold...fatigue, exhaustion, slightly swollen glands, some but not excessive mucus production in the back of my nose/ throat, struggling to think and function in my demanding job. But it never usually  turns into a proper cold. When this passes I feel fine with good energy for a couple of weeks or so. 

The GP kept palming me off saying I was having these never-ending cold symptoms due to stress but this just didn’t seem to fit for me as I mostly really look after myself. 

I am now wondering whether the symptoms are linked to an inflammatory response from the coeliacs. 

I have read that internal inflammation often goes up after going gluten-free for about a year.

I wondered whether others have had these symptoms and if people feel this is linked to coeliacs or maybe another condition linked to coeliacs.

Or whether general immunity is reduced so could be regular bugs I’m fighting off. I work in the NHS so am exposed to a lot of bugs.

I’m thinking about going to the doctor to have this looked into again as I am struggling to function at work a lot of the time, but don’t know whether to wait for year or so to see if the symptoms settle down.

I welcome your thoughts and experiences.

Thanks, Liz ?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Could be related to nutrient deficiency as damaged intestines prevent proper and adequate absorption of nutrients. Common issues are stuff like the full spectrum of b-vitamins, iron, folate, magnesium, vitamin D etc. Get a full panel done for nutrients, if any or even borderline low you might look into supplementing them. B-vitamins, magnesium, and vitamin D are almost always needed at first.

Please also read over the newbie 101 thread and keep a food diary, my other suspicion is maybe not cold but allergies. It is very common for us to develop food allergies, intolerance, and sensitivities. See if your flares conside with diet changes, and see if a antihistamine gives you any relief. https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

**Liz** Newbie

Thanks for your time replying and thoughts Ennis_TX.

I did have some tests when I was having mystery stomach pain pre-diagnosis. My iron levels were healthy so assumed I was absorbing other nutrients okay. I’m also vegan so I am very mindful about getting the right nutrients and do take supplements.

But I have lost some weight probably linked to coeliacs so that’s good advice to go get a full nutrient assessment sooner rather than later. Keeping a diary is also a good idea. Some dietician advice would also be handy to ask for. 

Will follow up that link

thanks and all the best...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,034
    • Most Online (within 30 mins)
      7,748

    CE1963
    Newest Member
    CE1963
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.