gluten sensitivity symptom review

[ChasingTreatment]

Hi all

ive been experiencing dilebrating neurological symptoms for the past year and have been browsing the forums and have related to so many people. Wondering if people can read my symptoms and provide any in sight or direction? I’ve had extensive testing by my neurologist to no answers

 

1. First symptom was nerve pain and appeared in both legs but not feet. It sounds like it is called alloydnia. Basically sensory nerve pain sensitive to clothes and feels like stinging in the skin.

 

2. Second symptom was a dizziness that came on a few months later. Not vertigo, just started as a delay in my vision when moving head but changed over time to feeling dizzy/nausea to now just abnormal sensations in my head that I can’t explain and makes me feel like I’m crazy.

 

3. Third symptom was incoordination walking and hanging up clothes. From my research on here it fits with gluten ataxia and my neurologist is constantly ordering blood work for ataxia. However my incoordination is not visible to anyone else and I only feel it which again messes my head up and adds to the already existing symptom. Sometimes I don’t feel my foot hit the ground or my legs catch up with each other for a brief second every few steps while walking. Really scary

 

4. The forth and final symptom has been fatigue in both legs. I’ve had it a few times and can’t find a chair quick enough to sit down when I have it.

 

a bit more about me. I was diagnosed with lactose intolerance 2 years ago. Brain and spine mri are completely normal. Have had lumbar punctures which showed an elevated protein but not specific to anything. Sometimes I noticed flare up in my symptoms lately and started wondering if food is doing it, so tried gluten free diet myself. After about 3 weeks I noticed I had 2 days that were better than I’ve had in ages but I wouldn’t call them good still but noticeable improvement. I then stuffed up and had some ice cream and woke up written off again in the morning and haven’t experienced that improvement since despite dieting. I’ve had no bowel troubles either except lactose in the past.

 

Since reading this awesome forum, I’ve seen a dietrician and am now on the strict gluten free diet.  It’s been around 2 weeks since my last food containing gluten and still having really bad days. I don’t know if sensitivity is my issue but considering my doctors can’t find anything neurologically wrong I’ve turned to this.  I realise if this is my issue it can take time but wanted to share my story and see if anyone has declined like me in similar fashion? I’m at the point where laying in bed is the only comfortable place for me most days. 

 

Cheers all

 

[Ennis-TX]

I would get checked for Celiac, start eating gluten daily now or you will will have much worse symptoms when you go to get tested later. Celiac test require you to be eating gluten daily for 12 weeks prior for it to show up on the blood test. My first sign to even tiny amounts of cross contamination manifest in hand issues, like more of a loss of feeling, coordination issues where I drop stuff constantly, and lack of sensitivity to heat. Larger amounts cause other issues and I have later gastric issues from vomiting, D, C, gas etc...but my issues are compounded by UC which also flares to gluten, ontop of Celiac with a gluten ataxia symptom.
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B-vitamins and Magnesium can help alleviate symptoms. Liquid Health Stress & Energy and same company Neurological Support 1tbsp each 3 times a day is a life safer and some of their vitamin D drops.
Magnesium depends on bowel habits, C you use a special dosing method with Natural Vitality, standard BM or D you use Doctors best and follow the directions...best taken at night.