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Vitamins and Supplements


JamiLC

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JamiLC Newbie

I apologize if this subject has been brought up in another area of the forum but I just joined today and need some help. I’ve been gluten and dairy free for 8 years now, and recently have been experiencing some health issues- lack of appetite, dizziness, shakiness, extreme fatigue, etc. I went to the dr and had several blood tests and found I’m deficient in several nutrients that celiacs are commonly deficient in (for example, folate). I’ve been so focused on avoiding what I can’t eat to avoid getting sick that I haven’t been paying attention to what my diet is lacking in. I need to start taking a daily multivitamin and adjust my diet. Do any of you have suggestions on the best multi-vitamins and supplements to take when you have celiac disease and are low in folate and are anemic? Thank you so much for your help.

Jamie


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Ennis-TX Grand Master
(edited)

I went with liquid ones from Liquid Health and used them in a glass of tea in the mornings and afternoons. I used the B-complex and Neurological support one. I used to use a half dose each twice a day but now only do it once a day, in addition I eat a paleo based diet with keto macros high in meats now days and be sure to get leafy greens and nut/seed based products (Vegan Cheese, Nut based milks, or Nut based baked goods) in a meal once a day. I found I had to supplement vitamin D, and C also but I can not eat fruit or get out much.

Everyone is  a bit different but starting with a well rounded diet to the best of your abilities with your food limitations is best, digestive enzymes can help get more from your food.

Edited by Ennis_TX
Corinne D. Contributor

As I'm sure you must know, when choosing supplements like vitamins make sure they are gluten free - look at the ingredients, but there should also be some statement from the manufacturer.

For folate supplements, it is best to choose methylfolate, not folic acid, to ensure optimal absorption.

As above, for folate and not only what helps most is a diet rich in vegetables, especially any greens, leafy or not, like spinach, arugula, broccoli, asparagus, but also beetroot and avocado. Organ meats, especially liver, are also a good source and generally packed with nutrition. So are legumes like lentils or chickpeas, if tolerated. Don't forget fresh fruit - citrus, papaya, pineapple - and make sure to include nuts and seeds (sunflower, flaxseed, walnuts, hazelnuts etc.).

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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