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Vitamins and Supplements


JamiLC

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JamiLC Newbie

I apologize if this subject has been brought up in another area of the forum but I just joined today and need some help. I’ve been gluten and dairy free for 8 years now, and recently have been experiencing some health issues- lack of appetite, dizziness, shakiness, extreme fatigue, etc. I went to the dr and had several blood tests and found I’m deficient in several nutrients that celiacs are commonly deficient in (for example, folate). I’ve been so focused on avoiding what I can’t eat to avoid getting sick that I haven’t been paying attention to what my diet is lacking in. I need to start taking a daily multivitamin and adjust my diet. Do any of you have suggestions on the best multi-vitamins and supplements to take when you have celiac disease and are low in folate and are anemic? Thank you so much for your help.

Jamie


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Ennis-TX Grand Master
(edited)

I went with liquid ones from Liquid Health and used them in a glass of tea in the mornings and afternoons. I used the B-complex and Neurological support one. I used to use a half dose each twice a day but now only do it once a day, in addition I eat a paleo based diet with keto macros high in meats now days and be sure to get leafy greens and nut/seed based products (Vegan Cheese, Nut based milks, or Nut based baked goods) in a meal once a day. I found I had to supplement vitamin D, and C also but I can not eat fruit or get out much.

Everyone is  a bit different but starting with a well rounded diet to the best of your abilities with your food limitations is best, digestive enzymes can help get more from your food.

Edited by Ennis_TX
Corinne D. Contributor

As I'm sure you must know, when choosing supplements like vitamins make sure they are gluten free - look at the ingredients, but there should also be some statement from the manufacturer.

For folate supplements, it is best to choose methylfolate, not folic acid, to ensure optimal absorption.

As above, for folate and not only what helps most is a diet rich in vegetables, especially any greens, leafy or not, like spinach, arugula, broccoli, asparagus, but also beetroot and avocado. Organ meats, especially liver, are also a good source and generally packed with nutrition. So are legumes like lentils or chickpeas, if tolerated. Don't forget fresh fruit - citrus, papaya, pineapple - and make sure to include nuts and seeds (sunflower, flaxseed, walnuts, hazelnuts etc.).

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      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
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    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
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