Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test Results


Tracy414

Recommended Posts

Tracy414 Explorer
4 hours ago, knitty kitty said:

@Tracy414,

Welcome!

I have DH and I've had serionegative test results.  I found this article in my researching and thought you would be interested.  It's from 2019.

Dermatitis Herpetiformis: Novel Perspectives

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6579917/

"...recent evidence suggested that DH is changing. Firstly, some studies reported a reduced incidence of DH, probably due to early recognition of celiac disease, so that there is not enough time for DH to develop. Moreover, data from Japanese literature highlighted the absence of intestinal involvement as well as of the typical serological markers of celiac disease (i.e., anti-tTG antibodies) in Japanese patients with DH. Similar cases may also occur in Caucasian patients, complicating DH diagnosis. The latter relies on the combination of clinical, histopathologic, and immunopathologic findings."

And...

...the closest association occurs with HLA-DQ2 (combination of the DQA1*0501 and DQB1*02 alleles) and DQ8 (combination of the DQA1*03 and DQB1*0302 alleles)..."

That rash on your back and scalp may well be DH which explains the negative blood tests for Celiac according to this article.

Hope this helps!

Wow! Thank you for sharing. The rash I had, started bilaterally and spread the same way. It was essentially a pattern that was equal on both sides of my body. It was so weird. It was also on my scalp. Insanely itchy!! I didn’t itch much in hopes it would stop spreading! I wouldn’t say mine ever looked like blisters, but definitely left my skin “stained” for weeks. My only regret is not seeing dermatology right away. I went to a primary care person and the steroids shut it down. Not sure if that would happen with DH. I continue to have an insanely itchy scalp with bumps coming and going. I cannot attached my photos to my response, they are too big! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tracy414 Explorer
4 hours ago, knitty kitty said:

@Tracy414,

Welcome!

I have DH and I've had serionegative test results.  I found this article in my researching and thought you would be interested.  It's from 2019.

Dermatitis Herpetiformis: Novel Perspectives

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6579917/

"...recent evidence suggested that DH is changing. Firstly, some studies reported a reduced incidence of DH, probably due to early recognition of celiac disease, so that there is not enough time for DH to develop. Moreover, data from Japanese literature highlighted the absence of intestinal involvement as well as of the typical serological markers of celiac disease (i.e., anti-tTG antibodies) in Japanese patients with DH. Similar cases may also occur in Caucasian patients, complicating DH diagnosis. The latter relies on the combination of clinical, histopathologic, and immunopathologic findings."

And...

...the closest association occurs with HLA-DQ2 (combination of the DQA1*0501 and DQB1*02 alleles) and DQ8 (combination of the DQA1*03 and DQB1*0302 alleles)..."

That rash on your back and scalp may well be DH which explains the negative blood tests for Celiac according to this article.

Hope this helps!

https://share.icloud.com/photos/09cX8_IuYtwJJwCBfgrKwN9Qw
 

I figured out a way to share my photos. This was days before I saw someone and got steroids. My body has been clear since, it’s my scalp. It actually hurts/aches sometimes and the bumps have a pattern in which they come back it. They haven’t been as bad as they were at first, but wonder if my symptoms will get worse if I continue eating gluten. Thank you again for your response. The article is interesting and insightful! 

carlisima Rookie
7 hours ago, Tracy414 said:

I’m so glad you were able to get a diagnosis and have an answer! So true. Thank you for sharing, this makes me feel better. Feel off/bad starts to take a toll and you feel like you’re losing your mind when you cannot find an absolute answer. 

You’re not losing your mind. Trust your gut, literally 😊

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,548
    • Most Online (within 30 mins)
      7,748

    Belle Star
    Newest Member
    Belle Star
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Restaurant had a ‘GF’ pizza option… then whispered, ‘But we use the same oven.’ 🍕⚰️ Share your worst ‘gluten-free, but not really’ moments!
    • xxnonamexx
      I have not made my own juices but have made my own granola copycat recipe from Trader Joes Turmeric ginger granola. Have you made your own juices? blending vs cold pressed what is better?
    • smilebehappy
      Sadly, I just now see the extremely tiny and hard to read wording on the label from some I got from nuts.com last year and it's below the certified gluten free sign which is more obvious. Another concern is that there's no expiration date to be found on any of the packages I have gotten.. It's confusing because they claim these are certified gluten free which Is why I got them due to having celiac. Looks like Tierra Farm has the lesser of the allergens, specifically wheat, so I will have to give them a try. Thanks 
    • Scott Adams
      After many years of running Celiac.com, one thing I've noticed is that I rarely hear about support groups that organize gluten-free picnics. It seem like this would be a great way to get celiacs together. I've attended various conferences, meetings, and events over the years, but strangely, no gluten-free picnics.
    • Scott Adams
×
×
  • Create New...