Recently diagnosed - book recommendation and questions on supplements

[love2craft]

Hello,

I was recently diagnosed with celiac after being gluten free for nearly 2 years and doing a gluten challenge. I would love to really learn more about the disease and how to manage it. Is there a place for book recommendations on managing celiac or any links to frequently referenced clinical studies or peer-reviewed research?

Also, now that I am back to a gluten-free diet, my doctor has prescribed vitamin D and B12 supplements (for celiac related deficiencies) as well as recommended iron supplements. I also take probiotics to help with keeping myself regular. Are there any other supplements that people recommend? Fiber? Fish oil? I am open to all but not sure where to start. Thank you!

[knitty kitty]

@love2craft, 

Welcome to the Celiac Club! 

One book I found very helpful is The Paleo Approach by Dr. Sarah Ballantyne, a Celiac herself, who designed the diet to help herself and her Celiac children.  Her diet has been scientifically studied and shown to promote healing in the gastrointestinal tract.  

The research and works of Dr. Derrick Lonsdale has been impactful. 

Hiding in Plain Sight: Modern Thiamine Deficiency

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

His work with Dr. Chandler Marrs is available on her website, www.hormonesmatter.com.

https://www.hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/

And they have a technical book...

Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.

 

I would recommend a B Complex vitamin supplement to go with your B12.  Taking B12 by itself won't work as well as taking B12 with a B Complex.  Cobalamine B12 depends on other B vitamins like Folate B9 and Pyridoxine B6 to do its job.  Since Celiac Disease damages the area where vitamins and minerals are absorbed in the small intestine, low levels of nutrients can affect our healing.  Unfortunately, blood tests for vitamin deficiencies are not reliable.  They can reflect intake from recently consumed meals.  One can have vitamin deficiency symptoms before a deficiency is seen in the blood levels.  

Here's my story and research...

Hope this helps!  

P.S. What crafts do you do?  

I knit and do needlework.  

Edited July 26, 2023 by knitty kitty
Added post script

[love2craft]

1 hour ago, knitty kitty said:

@love2craft, 

Welcome to the Celiac Club! 

One book I found very helpful is The Paleo Approach by Dr. Sarah Ballantyne, a Celiac herself, who designed the diet to help herself and her Celiac children.  Her diet has been scientifically studied and shown to promote healing in the gastrointestinal tract.  

The research and works of Dr. Derrick Lonsdale has been impactful. 

Hiding in Plain Sight: Modern Thiamine Deficiency

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

His work with Dr. Chandler Marrs is available on her website, www.hormonesmatter.com.

https://www.hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/

And they have a technical book...

Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.

 

I would recommend a B Complex vitamin supplement to go with your B12.  Taking B12 by itself won't work as well as taking B12 with a B Complex.  Cobalamine B12 depends on other B vitamins like Folate B9 and Pyridoxine B6 to do its job.  Since Celiac Disease damages the area where vitamins and minerals are absorbed in the small intestine, low levels of nutrients can affect our healing.  Unfortunately, blood tests for vitamin deficiencies are not reliable.  They can reflect intake from recently consumed meals.  One can have vitamin deficiency symptoms before a deficiency is seen in the blood levels.  

Here's my story and research...

Hope this helps!  

P.S. What crafts do you do?  

I knit and do needlework.  

Thank you so much for your advice! My vitamin levels are definitely low due to diet and lifestyle preferences (i.e. low vitamin D due to limited sun exposure etc) so I do believe the blood tests were correct. I am just now realizing that the symptoms that I thought were Celiac related (while being on a gluten-free diet) were probably related to deficiencies. I am interested to read more on your blog! Is there a complex Vitamin B brand that you enjoy? A multi-vitamin perhaps? I would prefer to buy one big vitamin bottle than dozens of minis.

As for crafting, I do papercraft but am interested in knitting and needlework too! Would love to hear more about how to get started in that

[knitty kitty]

I like Life Extension brand.  Quite a few of my vitamins are from Life Extension (available on Amazon). 

This is a good B Complex...

https://www.lifeextension.com/vitamins-supplements/item01945/bioactive-complete-b-complex?gclid=EAIaIQobChMIxZ66wPX__gIVZnJMCh0MvA6HEAQYAyABEgK-x_D_BwE

And Benfotiamine...

https://www.lifeextension.com/search#q=Benfotiamine&t=coveo4A2453FD

Supplementing with Magnesium Glycinate is important.  Lots of us are low in magnesium when first diagnosed.  It will help keep you regular, too. 

Vitamin D and B12 are two vitamins that can be stored in the liver a long time.  By the time deficiencies in these show up in the blood, all the stored vitamins have been nearly depleted.  Correcting deficiencies quickly is beneficial.  Taking higher doses of Vitamin D is safe.  Aim for blood levels around 80 nmol/l.  At this level Vitamin D can function properly.  

The eight essential B vitamins can be stored for maybe a month, but Thiamine can become depleted in as little as three days, especially if we're under stress from an illness, are physically active (especially outside in hot weather), or are under emotional stress or trauma.  Yes, taking Thiamine (Benfotiamine) can help us tolerate this historic heat wave better.  

Yes, one has to be mindful on a gluten free to include nutritionally dense foods.  Supplementing while we're healing can help us regain our health faster.  

Papercraft sounds interesting.  (I've always been intrigued by origami.)   There's so much one can do with paper, or two sticks and some string.  I like to knit lace doileys and socks.  I'm sure you'll like knitting.

Best wishes!

[Jane07]

I was wondering what are the top books I have look at a few 

[knitty kitty]

The Paleo Approach by Dr. Sarah Ballantyne is the best book on the how-to's of CeD.

[phillipcl.]

On 7/26/2023 at 4:34 AM, knitty kitty said:

@love2craft, 

Welcome to the Celiac Club! 

One book I found very helpful is The Paleo Approach by Dr. Sarah Ballantyne, a Celiac herself, who designed the diet to help herself and her Celiac children.  Her diet has been scientifically studied and shown to promote healing in the gastrointestinal tract.  

The research and works of Dr. Derrick Lonsdale has been impactful. 

Hiding in Plain Sight: Modern Thiamine Deficiency

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

His work with Dr. Chandler Marrs is available on her website, www.hormonesmatter.com.

https://www.hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/

And they have a technical book...Those research provided me with a lot of useful information, and actually when I got a task in university to write a research on celiac ( it was for my extra course, we had to choose what to write ourselves, so I decided to write on something I know about) I remembered about them and decided to use it in my work. But it turned out to be more complicated than I expected, so I used the help of https://edubirdie.com/pay-for-research-papers because it's not the easiest topic to write about. The finished paper turned out to be very informative, and I think it will help people to find out more about celiac more because there are so many people who have no idea what it is.

Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.

 

I would recommend a B Complex vitamin supplement to go with your B12.  Taking B12 by itself won't work as well as taking B12 with a B Complex.  Cobalamine B12 depends on other B vitamins like Folate B9 and Pyridoxine B6 to do its job.  Since Celiac Disease damages the area where vitamins and minerals are absorbed in the small intestine, low levels of nutrients can affect our healing.  Unfortunately, blood tests for vitamin deficiencies are not reliable.  They can reflect intake from recently consumed meals.  One can have vitamin deficiency symptoms before a deficiency is seen in the blood levels.  

Here's my story and research...

Hope this helps!  

P.S. What crafts do you do?  

I knit and do needlework.  

The Paleo Approach by Dr. Sarah Ballantyne is indeed a good book. It helped me a lot and provided a lot of useful information some time ago.