Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1-m):


  • You've found your Celiac Tribe! Join our like-minded, private community and share your story, get encouragement and connect with others.

    💬

    • Sign In
    • Sign Up

Archived

This topic is now archived and is closed to further replies.

ebrbetty

Scared And Need Support Please

Recommended Posts

Betty,

I completely understand how you feel. But, PLEASE DON'T CHEAT !!! You'll be giving up what you've accomplished.

I've been on this diet for 8 months now, but I cheated last Sunday and I am still regretting it. Now I have "D", horrible GAS and Bloating. Never again.

Have you considered limiting your ready made foods for awhile and seeing if that helps ? I've read a lot of posts here about contamination even though the label says gluten free.

I am on a very restrictive diet at this point too. No meats, dairy, soy, etc., so I understand how frustrating it is not to be able to eat what you want. But, it is worth it not to be in pain.

Hang in there ... Marcia


Jan 1990 - Dx CFS/ME/FM (URI's, Ataxia, myoclonus, orthostatic hypotension, insomnia, brain fog, swollen lymph nodes, sore throat... ) Completely Disabled (housebound and bedridden at times)

2004 - Digestive pain all the time.

May 2004 - Hiatal hernia, erosive gastritis, gastroparesis (endoscopy)

August 2004 - Colon polyps, diverticulitus, internal hemorrhoids (colonoscopy)

No relief from Nexium, Prilosec, Protonix, Zelnorm, Miralax, Imodium, Lomotil ...

July 2005 - GP recommended WFDFSFEFCF + vegan (Also, anything that hurts free)

Immediately stopped needing naps and digestive pain reduced.

Sept 2005 - GFDFCFSFEF + chemical free - Immediately stopped feeling jittery / buzzing and digestive issues were much better.

June 2006 - Dx B12 and iron deficient. Started B12 injections and using cast iron pan.

August 2006 - MYOCLONUS GONE. (off Klonopin)

September 2006 - ATAXIA, INSOMNIA and Feeling like the floor was moving under my feet gone.

June 19, 2007 - Positive DQ2, Dx Celiac

October 2007 - Sleeping like a baby, waking up with energy, but still having fatigue/stamina issues

Nov 2007 - Started Paleo diet for chronic hypoglycemia

April 2008 - GTT normal. I'm no longer hypoglycemic. Started Low oxalate diet for kidney stones.

May 1, 2008 - Began salt loading for OI/NMH - noticed immediately muscle weakness was gone. I was sodium deficient but my labs don't reflect it. Still working on OI and PEM.

Share this post


Link to post
Share on other sites

Bless your heart. I think we all know how you feel. My son had D last week again and I've been racking my brain to figure out why. I was taking out the recylcing and realized I had gotten the wrong box of Vann's Waffles and had fed them to him. They weren't gluten free. AAAAAAAARRRRRRRRRRRRRRGGGGGGGGGGHHHHHHHHHHH!!!!!! :angry: I was so angry with myself. I've been doing this for about 6 mos. and I make stupid mistakes all the time. Is it possible you got glutened accidentaly? Not that your mistakes would be stupid, that's just how I feel. :P

Also - go ahead and have that pizza, just make sure it's gluten-free!! I made one for lunch today on Chebe crusts and it was WONDERFUL. My MIL was here a couple weeks ago and I made it and she kept saying she couldn't believe how delish it was. Give it a try! I order them off of glutenfreemall.com


If you're looking for info on how to get started on the gluten-free diet, check out this List for Newly Diagnosed.

Self - Pain free since going gluten-free 9/05 (suffered from unexplained joint pain entire life), asthma improving, allergies improving, mysterious rash disappeared (probably DH)

Husband - Type 1 diabetic, Negative bloodwork

Son - Elevated IgA, Very high IgG, 2 negative biopsies - HLA DQ2 and DQ8 positive, Amazing dietary response since 1/06

Daughter - Congenital Heart Defect (2 surgeries), Reflux, choking issues, eczema, egg allergy - HLA DQ2 positive, Good dietary response (via me because of nursing) since 9/05

"All things happen for good for those who love God..." Romans 8:28

Share this post


Link to post
Share on other sites

Hi Betty,

I'm new to this too, and I just wanted to second the suggestions to look for problems with other foods. Not only do I get bad pains from wheat & gluten, but I discovered that egg is a real problem food for me. It causes pains very similar to wheat/gluten. For me, all the food sensitivities seemed to kick in at the same time.

Have you tried doing an elimination diet to see what other foods might be bothering you? I did my own elimination diet to see what was causing me the problems. I cut back to just meats, fish, potatoes, rice, and fruits and vegetables. After doing that, I felt so much better. THen I started adding back in one new food at a time, eating it twice (if no problems the first time), and waiting at least 2 days to see if there were problems before trying a new food. (I'm sure there are directions online somewhere for how to do an elimination diet properly.) I eat lots of fruit smoothies that I make from frozen fruits and rice milk, and they seem to be very soothing.

Good luck to you. Hope you find the source of the problem and begin healing soon.


Gluten intolerant and egg intolerant

Gluten/egg free since 11/2005 :-)

Share this post


Link to post
Share on other sites

girl, you are not the only one who cries over this. I cry way too often, usually after being "glutened" at a gluten free restaurant. Go figure.

I don't have a whole lot of advice, just to let you know that we really are all in this big Celiac boat together. Complete with lots of bathrooms. :) I'll be thinking of you!

Share this post


Link to post
Share on other sites

lAURA--NOW THIS MUST BE PUT SOMEWHERE IN THE 'BEST QUOTES'

we really are all in this big Celiac boat together. Complete with lots of bathrooms :lol::lol::lol::lol::lol:

THAT WAS A GOOD ONE.

BETTY HOW ARE YOU FEELING TODAY? :huh: .

JUDY IN PHILLY


Judy in Southern CA

Share this post


Link to post
Share on other sites