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Ped. Gi In Central Jersey?


julia mom

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julia mom Rookie

Hello

I was hoping somebody might know of a good Ped. GI for my three year old. We are New to NJ and to Celiac. Thanks Nancy

  • 3 weeks later...

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Tzipk Newbie

I live in Rockland and am seeing one next week for my 19 month old. He works in westchester but has an office in Rockland. How far are you from the NY?NJ border near rockland.

Debra :unsure:

  • 2 weeks later...
julia mom Rookie

Hi Debra

I havent been on in a while. I live in Millstone NJ-exit 8 off turnpike south. Not exactly close to NY but a good Ped GI is worth the trip. Have you seen him since you wrote last? Nancy

  • 1 month later...
KAthyB Newbie

We see a Ped. GI at Children's Hospital of Phila. Dr. Barbara Haber and I have heard good things about Dr. Janice Kelly who is also there. Appointments for both . are at 215-590-3630. Nutrtionists are also on staff there.

KathyB

  • 8 months later...
cornpops Newbie

My daughters' pediatric gastroenterologist is Dr. Francis Sunaryo at St. Barnabas Medical Center in Livingston, NJ. Phone: 973-322-7600. Excellent doctor, highly recommended by my pediatrician as the best in the area. Performed endoscopies on both of my children and they were fine after (except for the positive diagnoses, of course!). Seems very knowledgeable on celiac.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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