Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

confusedks Enthusiast

Carla,

Thanks, I will. I have only been on it for 6 days. I herxed really badly on the Zith when I first started, but I had to push through it because it was Christmas Eve and it was day 5. But I also noticed that about a week into being on the Zith I get vivid nightmares, so there must be some sort of cycle there. Because it happened again this month. Glad that's over for this month. <_<

Everyone,

Did I tell you guys that the insurance company is going to pay for the Mepron and reimburse us for the last one we just bought? I don't think I said anything yet. I am not too excited because I don't believe them at all, so I'll believe it when I see it!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
dlp252 Apprentice
Did I tell you guys that the insurance company is going to pay for the Mepron and reimburse us for the last one we just bought? I don't think I said anything yet. I am not too excited because I don't believe them at all, so I'll believe it when I see it!

Yay...wish I didn't understand so well about not believing it until I see it, lol.

Green12 Enthusiast
It's actually a physical reaction. I bought some mercury-free...tried a couple of different kinds too...one I got from my doctor, one from Whole Foods. But, I haven't tried cod liver oil yet--I can eat cod without reacting, so it's possible. I can't eat flax in any form, nor hemp apparently.

So you might test well for some EFA's but when you take it it's another story?

Do you think its because Evening Primrose Oil is high in plant estrogens?

That might be what I was thinking, thus the liver congestion with excess estrogens.

Everyone,

Did I tell you guys that the insurance company is going to pay for the Mepron and reimburse us for the last one we just bought? I don't think I said anything yet. I am not too excited because I don't believe them at all, so I'll believe it when I see it!

Well we can be hopeful, and cross our toes and fingers :lol:

dlp252 Apprentice
So you might test well for some EFA's but when you take it it's another story?

Yeah...although, I can't remember for sure if I ever had them all tested. It seems like I had the one from the doctor tested, but not sure if I had the others tested. Flax was no use since that messed me up pretty badly pretty quickly. Hemp was almost as bad as that. I'll have to look back and see if I wrote down what the fish oils did.

I know there was one supplement that tested okay in ART, and he said it wasn't bad--not great though, so I made the comment that yes that was the one I thought reacted to, and he tested it in a different way and said that it was totally blocking something or other. I'm not sure if that was the fish oil or one of the other supplements.

CarlaB Enthusiast

That's great that your Mepron is covered!

It's been around 30 days since your Zith herx ... perhaps you are on a 30-31 day herx cycle. :) Maybe it comes with the full moon.

AndreaB Contributor

Kassandra,

Good hopeful news on the insurance. :D

Rpm999 Contributor

can ART also mean Applied Resonance Therapy?

because i found this website called new england kineisology

Open Original Shared Link

^explanation, hope it's the same thing...sounds like it because it explains the muscle

thing, but the rest sounds different


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tabasco32 Apprentice
Does anyone have shortness of breath and really a fast heart rate? I feel like I can't breath properly...it almost feels like when I had asthma and I was having an attack. It's not air hunger I don't think, unless air hunger can last for days and days.

I feel like this when I am eating. Like my body is having a hard time breaking down food or something, well it is.

okay on the makeup thing, is anyone familiar with mineral fusions at whole foods? I hear they are pretty natural with no toxins or metal?

Donna sorry about your brest pain. I haven't had any of that yet. But I do get rectal pain at times if that helps? I can't sit down sometimes. :(

Tomorrow other LED treatment. 3 hour drive their and 3 hour drive back. :mellow: Not to mention my mom is a crazy driver. :blink: Maybe at least 85 to 90 miles an hour she drives. Hope it's not to rainy tomorrow or foggy.

Lisa

Rachel--24 Collaborator
can ART also mean Applied Resonance Therapy?

because i found this website called new england kineisology

Open Original Shared Link

^explanation, hope it's the same thing...sounds like it because it explains the muscle

thing, but the rest sounds different

This is not the same as Autonomic Response Testing...which was developed by Dr. Klinghardt.

I read more about the Applied Resonance Therapy here..

Open Original Shared Link

It seems to be more about treating allergies by correcting imbalances in the body...energetically.

Autonomic Response Testing does not involve any type of treatment for allergies or anything else. The practitioner tests your body to find out what is causing disturbance or dysfunction of the autonomic nervous sytem.

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

confusedks Enthusiast

Which brand does everyone take of chlorella? I think I have asked before, but I don't remember. <_< I feel like I'm not detoxing well. I don't feel toxic, but I also don't know what that would feel like. :wacko: I just want to make sure I don't get to the point where I feel extremely toxic and have to slow down on meds to detox my body. I want to just have maintenance work (if that makes sense).

CarlaB Enthusiast

I take Sun Chlorella from Whole Foods.

It's a good idea to stay on top of toxins. :)

dlp252 Apprentice

I currently take Sun Chlorella. Before that I was taking Prime Chlorella, which was hugely expensive.

Rpm999 Contributor

yeah i figured that rachel, i was getting my hopes up for nothing :lol: stupid that they call both ART

she does AK though which is probably good too, so i hear..not as good as ART, but hey it's right down the street from me so it'd be a nice start maybe until i find somewhere with ART...it's a whole holistic clinic so i'll give it a call

AndreaB Contributor

Kassandra,

We use King Chlorella with Russian Immune Support by Nutricology/Allergy Research. We have to order it online.

mftnchn Explorer

I'm on the KingChlorella too.

Sherry

confusedks Enthusiast

Thanks everyone. I will head to Whole Foods tomorrow and get some.

My mom and I had an interesting experience with some olive leaf extract. We got my first bottle at my LLMD's office when we were up there, and then my mom decided she wanted to start taking it too, so she ordered it online. Well, it was the same brand and everything, but a couple things looked different on the bottle. Is it possible that we got a "knock-off"?? I now got more from my LLMD's office, but it was just strange. Anyone had this happen?

dlp252 Apprentice

Sounds a little fishy Kassandra, but may not be a knock off necessarily...I think sometimes manufacturers package things a little differently for different markets...not sure about something like that though.

aprilh Apprentice

What were the additional ingredients?

CarlaB Enthusiast

I bought some of the Kyolic Garlic I used to take ... it's the Immune support kind.

Interestingly, there is olive leaf extract in it. What does that do?

There is also astragalus, oregano oil, and mushrooms. Interesting, as much of this is stuff taken for Lyme and it's stuff I was taking before diagnosis.

I was worried because I have still been tired. I have trouble getting moving, and I just can't go on and on and on.

So, I got out my old adrenal fatigue books from back when I got that diagnosis. Dr. H thinks I have some adrenal fatigue from being sick for so long. Everything I feel can be explained by that! I was relieved! I was worried the Lyme wasn't under control enough, but I think it is .... just because the Lyme isn't as acitve anymore, doesn't mean that all of a sudden I will be back to normal. I guess that's the mind set I had.

So, I'm taking it easy. :) And I'm feeling better. No real Lyme symptoms, just not as much energy as I'd like. It won't keep me from playing racquetball a couple times per week, or from working out, or from cooking dinner, but it does make me sit down more often than I'd like, and rest more than I want to.

aprilh Apprentice
I bought some of the Kyolic Garlic I used to take ... it's the Immune support kind.

Interestingly, there is olive leaf extract in it. What does that do?

There is also astragalus, oregano oil, and mushrooms. Interesting, as much of this is stuff taken for Lyme and it's stuff I was taking before diagnosis.

I was worried because I have still been tired. I have trouble getting moving, and I just can't go on and on and on.

So, I got out my old adrenal fatigue books from back when I got that diagnosis. Dr. H thinks I have some adrenal fatigue from being sick for so long. Everything I feel can be explained by that! I was relieved! I was worried the Lyme wasn't under control enough, but I think it is .... just because the Lyme isn't as acitve anymore, doesn't mean that all of a sudden I will be back to normal. I guess that's the mind set I had.

So, I'm taking it easy. :) And I'm feeling better. No real Lyme symptoms, just not as much energy as I'd like. It won't keep me from playing racquetball a couple times per week, or from working out, or from cooking dinner, but it does make me sit down more often than I'd like, and rest more than I want to.

Olive Leaf is antifungal as well as the oregano oil. Astragalus is for the immune system and Buhner recommended that in one of his books. I don't do mushrooms since they are a fungus and will feed fungus, so not sure why they would be in there?

CarlaB Enthusiast

I'm already on Host Defense, which is also mushrooms. My LLMD has me on it to build up my immune system. I don't have fungal issues. Thanks for the clarification!

I also see that astragalus is in the Cowden Adrenal Support.

Nyxie, I wanted to add to my PM (here so other of his patients know, too), when you have the phone consults, stay on topic ... if it goes over, you will be charged more. ;) Try to stick to 15 minutes. I never minded when I NEEDED a longer consult, but .....

Green12 Enthusiast
My mom and I had an interesting experience with some olive leaf extract. We got my first bottle at my LLMD's office when we were up there, and then my mom decided she wanted to start taking it too, so she ordered it online. Well, it was the same brand and everything, but a couple things looked different on the bottle. Is it possible that we got a "knock-off"?? I now got more from my LLMD's office, but it was just strange. Anyone had this happen?

Kass, if it's from a reputable company I can't see it being a knock-off (but I could be wrong)

Companies do change packaging sometimes, and that could explain the differences in the looks of the bottles.

Your llmd could have had that left over from an old order and the internet had the new, or vice versa.

Interestingly, there is olive leaf extract in it. What does that do?

There is also astragalus, oregano oil, and mushrooms. Interesting, as much of this is stuff taken for Lyme and it's stuff I was taking before diagnosis.

I was worried because I have still been tired. I have trouble getting moving, and I just can't go on and on and on.

So, I got out my old adrenal fatigue books from back when I got that diagnosis. Dr. H thinks I have some adrenal fatigue from being sick for so long. Everything I feel can be explained by that! I was relieved! I was worried the Lyme wasn't under control enough, but I think it is .... just because the Lyme isn't as acitve anymore, doesn't mean that all of a sudden I will be back to normal. I guess that's the mind set I had.

So, I'm taking it easy. :) And I'm feeling better.

Carla, glad you are taking it easy in those times where you need to.

Olive leaf extract is an amazing thing, I took it off and on for a while and got really good results.

Not only is it anti-fungal like April mentioned, but it is also anti-bacterial, and anti-viral, and so many more healing properties.

Mushrooms, medicinal mushrooms, like shiitake, reishi, maitake, have immune boosting qualities and can be very healing.

Here's a good link:

Open Original Shared Link

AndreaB Contributor

Kassandra,

I don't know about the olive leaf. Have you compared ingredients and dosage amounts etc?

Carla,

I can understand that your adrenals would still be tired. I'm glad you are resting when needed.

CarlaB Enthusiast
Carla,

I can understand that your adrenals would still be tired. I'm glad you are resting when needed.

More than resting .... I've slowed down overall. :) The mental implications of being told by my LLMD that I was doing great, were strong .... if that makes sense. I all of a sudden started doing more. I had been closer to normal, but still had the mindset that I was "sick".

All of a sudden, I had the mindset that I was "healthy." The truth lays somewhere in between. I am no longer "ill", but I still have some rest and recuperation before I can be considered "healthy." I needed to tell myself that I'm still in recovery.

Since I have, I feel better .... I had some Lyme symptoms popping up here and there ... but I also cut back on GSE, which is a cyst-buster, so that could be a player in how I've felt, too. I was taking 30 drops per day, now I'm taking 20. Now, I have no Lyme symptoms again. :) Just fatigue, but not overwhelming fatigue like when I was sick ... *just* normal fatigue, which is what makes it seem okay to push through it ... but it's not. I can't "rachel" feeling well, yet. :lol:

confusedks Enthusiast
What were the additional ingredients?

There weren't any, but it just seemed strange to us. The pills were different sizes even though it was the same dosage, etc.

Interestingly, there is olive leaf extract in it. What does that do?

Yea, olive leaf extract is really great. It's everything Julie mentioned. Also, I read on LN that olive leaf extract (not just olive leaf, I guess there is a difference) actually can target Lyme. I'm only taking 4 a day, you can take up to 9 a day, so he started me slowly.

Everyone,

It's really interesting because I was starting to doubt my LLMD because I'm not taking a lot of meds/supplements. I talked to my mom about it and she reminded me the way I have reacted to supplements before, in a bad way. And we told Dr. H that, so I think he is just starting me out slowly. I was worried for a little bit, but now I'm not. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,775
    • Most Online (within 30 mins)
      7,748

    Maria Makiling
    Newest Member
    Maria Makiling
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bebee
      Thank you knitty kitty!!  I appreciate your help and knowledge!
    • knitty kitty
      Welcome to the forum, @Bebee, Yes, Celiac Disease has genetic commonalities with MS, hypothyroidism, arthritis, Reynaud, and rosacea.   Usually a gluten challenge is done before endoscopy with biopsies taken,  however I would not recommend a gluten challenge before endoscopy with biopsies for you since you have been gluten free for so long and have so many concurrent autoimmune diseases.   You can still have the endoscopy with biopsy samples taken now.  After several months with dietary changes, you can have another to compare results and check that intestinal health has improved.   You can get a genetic test for Celiac disease which shares genetics with other autoimmune diseases that you have.  Eating gluten is unnecessary for genetic tests. For the rosacea, get checked for SIBO (Small Intestinal Bacterial Overgrowth) that could be causing gastrointestinal symptoms as well as causing skin issues.  Our skin is a reflection of our gastrointestinal health.     Following the Autoimmune Protocol Diet has been helpful in keeping my own rosecea, eczema, and dermatitis herpetiformis and other autoimmune diseases in check.   Be sure to be checked for nutritional deficiencies that occur easily in gluten free and dairy free diets. Keep us posted on your progress! References: Clustering of autoimmune diseases in patients with rosacea https://pubmed.ncbi.nlm.nih.gov/26830864/ And... Celiac disease and risk of microscopic colitis: A nationwide population-based matched cohort study https://pubmed.ncbi.nlm.nih.gov/36939488/
    • Bebee
      I am new here, I have been diagnosed with Microscopic Colitis (Lymphatic) years ago and have been gluten-free, DF since, but I still can have occasional bouts of diarrhea (still trying to figure that out).  I also have MS, Hypothyroid, Arthritis, Reynaud's and my rosacea has been acting up lately.  What treatment is suggested to help with rosacea?  I would like to know too if there is a test for celiac if you have been gluten-free?   Thank you, Barb    
    • bluebird2032
      Gluten free/ non dairy , low calorie pudding ideas please?
    • K6315
      Well, that's interesting. I am lactose intolerant and have been managing that for years. I'd be interested in seeing if that changes once I feel better from not eating gluten (one thing at a time for now, though). Helpful to hear about the avenin. I will do some digging and pose that to the dietitian. Grateful for your feedback.
×
×
  • Create New...