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Rachel--24

Omg...i Might Be On To Something

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WILL POST ABOUT THE APT SOMETIME BUT RIGHT NOW WANT TO POST THIS

GI DR. HAS ALWAYS BEEN THINKING MICROSCOPIC COLITIS...

THERE WERE ALOT OF LITTLE WHITE SPOTS ( I guess this is what she is calling the erythema in the sigmoid colon in beween diverticula ..diverticulum found in the desending colon and sigmoid colon

biopsies from the cecum, proximal sigmoid and sistal sigmoid.) whew....ok think this is the main part of one of the reports.}

IT IS NOT THE MOST IMPORTANT SCIENTIFIC JOURNAL ..I VILLAGE..PLEASE FORGIVE..BUT IT'S THE ONE THAT REALLY GOT MY EYE...

THE OTHER SITES WERE FROM MEDICAL JOURNALS ETC..BUT YOU GUYS KNOW HOW I'VE BEEN A MESS SINCE I'VE BEEN OFF MY 8 EXTRA STRENGTH EXCEDRINE FOR 8 DAYS ...2 MORE TO GO...FOR FIBRO AND BONE AND MUSCLE PAIN...WELL LOOK AT THIS ARTICLE.

I KNOW...PEPTO...THE TREATMENT OF CHOICE.. :lol: BUT SOME ONE ELSE ON C.COM JUST POSTED ABOUT THIS LAST WEEK...DR SAID THIS WAS THE TREATMENT.

THIS IS FROM THE IVILLAGE PAGE ON GOOGLE

I have been diagnosed with collagenous colitis. Is this a lifetime condition? What is the worst-case scenario?

Collagenous colitis is a disease also known as microscopic colitis or lymphocytic colitis. In contrast to other inflammatory conditions of the colon, such as ulcerative colitis and Crohn's colitis, the lining of the colon appears normal when the doctor views it during a colonoscopy. It takes a biopsy and a microscopic examination of colon tissue to reveal the problem: inflammatory cells (lymphocytes) infiltrating the lining of the colon and a layer of collagen deposited just under this lining.

Patients with collagenous colitis usually experience chronic, watery diarrhea with abdominal cramping. The cause of this condition is unknown. However, it is more common in women, and some studies have linked the use of aspirin and other nonsteroidal anti-inflammatory drugs to this disease. The course of collagenous colitis is characterized by remissions and flare-ups. However, the condition usually does not get more severe with time, and generally is not life-threatening.

The standard treatments for collagenous colitis are antidiarrheal and antispasmodic drugs. Studies have suggested that some medications used to treat ulcerative colitis or Crohn's disease, such as mesalamine or steroids, may also be helpful In addition, more recent research has found that patients with collagenous colitis may benefit from the use of bismuth-containing compounds, such as Pepto-Bismol.

____________________________________________________________________________

I KNOW 8 EXCEDRIN IS ALOT BUT GUYS I'M DOWN FROM 20 A DAY :ph34r:

INTERNIST HAS ALWAYS BEEN AGAST AT HOW I TAKE SO MUCH AND DOENS'T LIKE IT ONE LITTLE BIT...

BUT IT KEEPS ME AWAKE AND WALKING..WITH A CANE...BUT WALKING..

SO

YOUR OPINION APPRECIATED.

LOVE JUDY

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OMG Jestgar!! I *SO* bit on that paragraph it's embarrassing!! <_<

Ah, :lol: , you have to know Jestgar!! I was wondering when she'd show up ... I don't think she avoids strife like the rest of us ... she seems to get a kick out of it ... unless it's on this thread, I guess.

My diet must just be WAY too sparse.... basically void of *everything* and I've drank nothing but WATER for 2 whole years now...(except for hot ice cream :) )...so yeah....I freakin LOVED my barium drink!! :lol:

Why does this not surprise me? :lol: I actually take so much ... maybe it's the Mepron causing it, but bad tastes don't seem to bother me (though bad taste does :D ).

Judy-

Can't wait to hear about the rest of your appt. Its sounds like you were cleared for alot of the really scary stuff - thank god.

Yes, Judy, glad it went well.

Ok my new thing is I really want to get an ionic foot bath done. I ahve not had a time to get an appointment becuase between chelation, physical theraly and various other appts. I don't have any free days but i am gonna try to get one next week. I can't wait to see all the gross stuff that comes out of my body ( i know i am a weirdo)

No, it's great to see the bad stuff come out!! When Morgan takes a sauna, she has black stuff come out her pores. I don't know what it is ... mercury would be vapor at that temp, so I'm wondering if it's lead???

Christina, I've not studied personality types, but I have studied temperaments ... sanguine, choleric, phlegmatic, and melancholic. It's interesting.

Well, I stopped the Cipro for the klebsiella and the citrobacter two days ago ... the d came back yesterday. I'm taking a lot of probiotics (Theralac, Ultra Flora, and VSL#3 twice per day) ... does anyone have any other suggestions? I'm afraid that if I don't figure this out that the doc will want me to take a break from the abx, which I REALLY don't want to do since I'm making such good progress.

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:rolleyes:

Yay! Yay! Happiness in Rachelville, I am feeling so warm and fuzzy!

:wub:

And yes, thanks to our darling Mia for her simple but most effective little post to force our president to come BACK!!!!!!!!!!!!!!!!! :D

OMG prayers for Laura......and Judy, so glad to hear you're all in one piece....and Mia, the chelation went better this time......and Patti, moving - - - both sad and happy, yes....

Just a quick poop-in,

LOVE to all!

:)

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I'm back, and it was very easy, so I survived. The tech people were great, and agreed that I have non-existent, horrible veins. :)

Judy---Canadian Karen has one of the forms of microscopic colitis. I have some info on it, as I was tested repeatedly for it. I'll find it and send to you. Happy that you survived as well!

Thank you for all the encouragement and sweet words.

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Yes, PLEASE!!! I'm not sure what this Drop-Down Box is.

Will do!!!

I suppose most here use microsoft's dreaded IE for browsing so I'll test my "skip back 2 pages" theory w/ that today.

<please no more mentioning that the [back] button doesn't work!!! :lol: THIS is about how to get around THAT> :P

Wish I was confident that this "Drop-Down Box" pic will be easily seen/understood at avatar size.

Maybe I'll end up w/ a crude web-page to show it better.

I AM real sure no one needs to ever "lose" a post again.

(I may not know squat about chelation, barium, abx, non-candida herxes, Lyme etc etc but I think I can eliminate the heartbreak of 'posticus lostimitis')

[EDIT] just checking "drop-down" in BACK button.

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Ok so yesturday I had my third Chelation- I felt really bad again when i was getting it done and right after but this time the really bad seemed to last for only short time after the first time and the time i did the test I was horribly sick all night. So i think this is a good thing.

I'm so glad you're treatments aren't making you feel so bad anymore. :D

Talitha's appointment is tomorrow, right? You guys are going to have to drive a bit. I suppose you will have to stay off of the computer for a while. 25.5 hours isn't it? That is only after the treatment, though, if I recall correctly.

Yep, tomorrow at this time we'll be there. I may get on here briefly in the afternoon (if I kick her out of the room), otherwise I'll be on tomorrow night after she goes to bed.

The listing is going to be on-line. If anyone wants to take a look, I'll email you the link when it's up. He's not taking the pictures till Thursday or Friday, so I'm not sure when it will go on the net--probably another week or so.

I'll be interested. :D

Miamia, have you done these ionic foot baths before? Has anyone here done them? What were the results based on how you felt afterwards? My husband thinks it's just a way to get money from us, but he has been wrong before...

I know some foot baths have had bad things said about them.....don't know if they are ionic or not. Regardless, Donna posted a link months ago and the people that used them said they worked.

I'm finishing up the barium, and we'll be on our way out soon :).

You're probably done already. Hope all went well.

JUDY...WHEW...DONE...

THANKS AGAIN JIN FOR LETTING ME HIJACK YOUR POST

You did good Judy! :D

I KNOW 8 EXCEDRIN IS ALOT BUT GUYS I'M DOWN FROM 20 A DAY :ph34r:

INTERNIST HAS ALWAYS BEEN AGAST AT HOW I TAKE SO MUCH AND DOENS'T LIKE IT ONE LITTLE BIT...

BUT IT KEEPS ME AWAKE AND WALKING..WITH A CANE...BUT WALKING..

SO

I saw the thread about pepto as well. Interesting.

20 excedrin! :o:blink: I'm glad you've got it down to 8 now.

Christina, I've not studied personality types, but I have studied temperaments ... sanguine, choleric, phlegmatic, and melancholic. It's interesting.

I'm familiar with these. I was more melancholy and I forget what else. My daughter is more melancholy although we haven't done the questions with her.

LOVE to all!

:)

Back at you. :wub:

EDIT: I should say - enjoying and sharing and learning :)

Good to see you again Kat. :)

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I'm back, and it was very easy, so I survived. The tech people were great, and agreed that I have non-existent, horrible veins. :)

Glad everything went ok. :wub:

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I'm back, and it was very easy, so I survived. The tech people were great, and agreed that I have non-existent, horrible veins. :)

Judy---Canadian Karen has one of the forms of microscopic colitis. I have some info on it, as I was tested repeatedly for it. I'll find it and send to you. Happy that you survived as well!

Thank you for all the encouragement and sweet words.

Laura so glad it went well.

I think the techs are the best..when we get the best ones :lol:

prayed good thoughts today.

when are you leaving for the shore?

If you have time for the info I'd so appreciate it

Did some research on my own this am but sure yours is better..Who would have guessed in my PAST LIFE...I actually was paid by the hospital medical library to do searches for the medical staff..

that was before I mind went on vacation and forgot to take me :lol:

I'll be thinking of you on the beach...recharging you batteries.

Will email Karen.

thanks our HAPPY GIRL.

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Hey I have a scientificness question....

Just found a lab test result that my doctor did last January. It is for serum cysteine. 0.62 (reference range is 0.61-1.16 mg/dL) So my result was normal but just barely.

From what I can tell this has something to do with sulfur and also binding metals. Does anybody else know?

Low cysteine levels can make it difficult for your body to get rid of the metals. Same with low glutathione. If both of these were low you would have difficulty detoxing...even while chelating.

Was your glutathione ok?

You can increase cysteine by eating more sulfur containing foods.....garlic, eggs, onions, cabbage, broccoli, cauliflower, etc.

You could aslo take NAC...but heres some warnings about NAC (taken on its own).

NAC (N-acetylcysteine) is a widely available glutathione precursor that has the ability to directly bind and excrete mercury via its single thiol (sulfur atom) as well as support and increase the body's store of glutathione as a precursor.

Thus both glutathione and NAC, though not true chelators, do part of the work that chelators do.

True chelators penetrate into the bodies tissues and actually pull the mercury and other heavy metals out of their hidding places.

These other "non chelators," which some refer to as chelators, are more effective when the mercury is first entering into the body and or when it is being pulled out of the cells and again being dumped back into the blood.

Clinically it is usually thought that glutathione and glutathione pre-cursers are best utilized in combination with a traditional synthetic chelator like DMPS.

Cysteine/cystine: As sulfur-containing amino acids (cystine is the dimer of cysteine), both can bind to and mobilize mercury. Like alpha-lipoic acid, cysteine and cystine may worsen mercury intoxication by spreading it to other tissues. Furthermore, cysteine and cystine are excellent culture media for the Candida genus of yeast and can promote or worsen intestinal candidiasis.

In addition, many autistic children have high blood levels of cysteine. N-Acetyl-L-Cysteine (NAC): NAC should not be used initially or by itself with anyone suspected of having a significant body burden of mercury. Like alpha-lipoic acid, cysteine and cystine, NAC can bind with mercury and carry it across cell membranes.

NAC should be used either in conjunction with DMSA or after mercury detoxification is well under way. In addition, NAC should be used with extreme caution in children with elevated cysteine levels.

Since you've been doing chelation for a long time now and since you're also still getting treated with either DMPS or DMSA (not sure which one?)....it might be helpful for you to add it in....or at least eat alot of foods high in sulfur to try to raise your levels. It may help your body to release more of the metals.

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BEV-

see you coulden't stay away from us - you need us like we need you- where else can you poop in? How are you feeling?

Is there anyone that can resist sweet Mia? NOPE! :wub: :wub: thank you sweet lady. i am feeling better physically and emotionally.

Jin-

(Sing to the tune of "If You Like Pina Colada")

If you like barium colada

And being in abdominal pain

If you are not into yoga

And need a reason to complain

OMG LMAO! Beautiful

rachel- Great article. Thank you!

Patti- Sorry about the abx. Hope it goes OK.

Judy- Excellent that they ruled out the big stuff! I think CanadianKaren has microscopic colitis.( I think Laura just said that B)

Laura- YAY! So glad it went well!!!!!!!!!!! In case they didn't warn you...beware of farts. They may be quite a bit more than gas! No one warned me and I pooped my pants in the car and still have to drive an hour back home. Kurt was threatening to drop me off to hitchike :ph34r:

Susie- HELLO!!!!!!!!!!!

Rachel-

LED! LED!LED!

Oh...started doing detox foot pads at night. I'm convinced they work (expensive but worth it).

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that was before I mind went on vacation and forgot to take me :lol:

:lol: !!!!! Priceless!

Oh Mia, I forgot to mention that I bought some Goatein. Don't think I have any feedback yet. I started out by taking the suggested heaping scoop, a couple of times a day...I think that was too much, so I've cut it back to half a scoop once every couple of days. It definitely doesn't bother me in the smaller dosage...don't know about the bigger dosage because I did that on a day when I took some new supplements.

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Ohhhhhhhhhhhhh-KAY!

I did verify that I have an easy solution to this "lost post" biz. :unsure::blink:

Avatar now shows IE [bACK] button, and the little downward-facing-dog; NO NO i meant triangle!!

That little triangle enables us to skip the 'in-between' page, which is what makes simply hitting [bACK] so useless in a "lost post" situation.

Go ahead !!! Try it !! Choose 2nd page in the list. The BACK button itself is useless to someone in this predicament.

Just see that you can skip the "please stand by" page, and be back at the page that shows everything you'd written. ;)

NO MORE LOST POSTS !!!!!!! :)

hmmmmmmmmm :unsure: unsure whether I'm explaining this well enough.

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Oh...started doing detox foot pads at night. I'm convinced they work (expensive but worth it).

Sounds good to me. :D

NO MORE LOST POSTS !!!!!!! :)

hmmmmmmmmm :unsure: unsure whether I'm explaining this well enough.

Makes sense to me.......thanks. :D

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D'oh!!

Now i just posted on TickleMe thread and found that for whatever crazy reason, it DIDN'T do that "in-between page" i've been talking about re: lost posts & [bACK] button uselessness!!!

C'mon FORUM !!!! A little consistency please!!!!!! :angry: :angry:

Oh and i MUST say - it is heartwarming to see a more normal sized list of 'members' in the thread lately. (Hi Donna, Dingy, Bev!! :) )

That little list was so so sadly nearly void for a few days there. (No offense, of course, to those 'keeping the thread warm' - u know who u are and also know all-too-well the feeling I'd had)

LONG LIVE RACHELVILLE !!!!!!! :) :) :D:):D:) :)

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Thanks Tom...makes sense to me. Course, I use AOL to get on the Internet at home...I'll investigate that later. :P

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Oh no, Carla! Sorry to hear you have D. That's weird because after all my big C issues, I now have the D too since yesterday!! I don't know what all you are taking, I am cutting back on the vit C and magnesium. Is there anything like that you can adjust?

Judy, I can relate. I used to take at least that many asperin per day, sometimes more. You do what you can to function. Thankfully, that is all behind me since lyme was treated. Even now with the recurrence it isn't that bad, and I just take a sleeping tablet sometimes to sleep when it bothers me at night.

Rachel, thanks for the info! I knew you'd come through! I don't know what my glutethione levels were, or if they were checked. I didn't get a copy of everything I guess. But I will check in with my doc about it next week.

Everyone, I'm headed out of town so might not see you for a few days.

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OMG!!!!! I can barely believe this!!!!! :o :o

I finally hooked up my stereo and was checking radio reception when some station said "11th caller gets 4 passes to the Strawberry Music Festival" and I called the # and actually WON!!!!

WHAT A MONTH I'M HAVING!!!! :):lol:

I've heard of the festival, and even tho I used to go to a cabin in Strawberry, AZ (awesome pine forests - no desert), I was pretty sure they were talking the giant festival in CA.

And they WERE talking CA and it IS pretty huge I think.

Hehe so now I know where I'll be in early Sep yay!!

So - Californians??? Where's Camp Mather? It's not on my map!!!

And the http://www.strawberrymusic.com/ site doesn't have a map that works on the sidekick. :(

I'd thought it was foothills of the Sierra (no S) somewhere, but google keeps giving me San Francisco!! Argh!! :angry::lol:

I can't even imagine who I know that'll go - some fest days during workweek & too many have kids. Well, that's the least of my "worries".

It seems so insane that I had just THEN finally got the stereo set up, after 1.7 yrs of not bothering.

I think everyone's pretty aware by now of much music had been a part of my life.

:D :D :lol::P:D :D

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I've heard of the festival, and even tho I used to go to a cabin in Strawberry, AZ (awesome pine forests - no desert), I was pretty sure they were talking the giant festival in CA.

And they WERE talking CA and it IS pretty huge I think.

Hehe so now I know where I'll be in early Sep yay!!

So - Californians??? Where's Camp Mather? It's not on my map!!!

And the http://www.strawberrymusic.com/ site doesn't have a map that works on the sidekick. :(

I'd thought it was foothills of the Sierra (no S) somewhere, but google keeps giving me San Francisco!! Argh!! :angry::lol:

I can't even imagine who I know that'll go - some fest days during workweek & too many have kids. Well, that's the least of my "worries".

It seems so insane that I had just THEN finally got the stereo set up, after 1.7 yrs of not bothering.

I think everyone's pretty aware by now of much music had been a part of my life.

:D :D :lol::P:D :D

Tom- That is AWESOME!!!!!!!!!!!!!!!! I'm so jealous. It's near Yosemite. Here's the link for directions you lucky goober! Directions to Strawberry Music Festival

have I mentioned I'm jealous? :P Kiss Yosemite ground (or at least a tree!) for me. I miss it there SSOOOOOOOOOOOOOOOOOOOOOOOO much (that and Big Sur) :( Can I come back?

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Hi everyone - I feel like a creepy lurker person just reading every so often but never posting. :ph34r::lol: I don't have anything even remotely interesting to say - just wanted to pop in and say hello. Looks like there's all sorts of interesting info being shared here again. I'll have to do some reading to catch up :)

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Ohhhhhhhhhhhhh-KAY!

I did verify that I have an easy solution to this "lost post" biz. :unsure::blink:

Avatar now shows IE [bACK] button, and the little downward-facing-dog; NO NO i meant triangle!!

That little triangle enables us to skip the 'in-between' page, which is what makes simply hitting [bACK] so useless in a "lost post" situation.

Go ahead !!! Try it !! Choose 2nd page in the list. The BACK button itself is useless to someone in this predicament.

Just see that you can skip the "please stand by" page, and be back at the page that shows everything you'd written. ;)

NO MORE LOST POSTS !!!!!!! :)

hmmmmmmmmm :unsure: unsure whether I'm explaining this well enough.

:huh:

utterly flummoxed by this whole thing. :lol: I don't write long enough any more to lose a post.....

ho-hum, ACTUAL sore throat and stiff neck today, ACTUALLY lying on the couch for something other than my back, I am astounded (I"m not a napper and don't ever lie down during the day, except for the back debacle)......have not been sick ONCE in 18 months! (other than intestinal malfeasance.) :o No energy to shampoo carpets (my back is thanking me)....

forgot everything I wanted to say. Back to couch.

TOM!!!!!!!!!!!!!!!!!!!

OMG!!!!!!!!!!!!!!!!!!!!!!! :o

I have always wanted to go to the Strawberry Music Festival. Dingo-sitting is the problem. Also, I think the crowds are pretty huge now, which deters me a great deal.

Um, yeah, you are having the lucky month! I am going to look and see who's playing this year......OMG.......if any of my favorites are there, I"ll die.......

HI EVERYBODY!!!!!!!!!!!!!!!!!!!!!!!

Lackluster Spice here. -_-

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Hi everyone - I feel like a creepy lurker person just reading every so often but never posting. :ph34r::lol: I don't have anything even remotely interesting to say - just wanted to pop in and say hello. Looks like there's all sorts of interesting info being shared here again. I'll have to do some reading to catch up :)

Creepy. :lol: You silly mango, that is hardly the word I would use to describe you. Lurk away. :)

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Everyone, I'm headed out of town so might not see you for a few days.

We'll see you when you get back. :)

OMG!!!!! I can barely believe this!!!!! :o :o

I finally hooked up my stereo and was checking radio reception when some station said "11th caller gets 4 passes to the Strawberry Music Festival" and I called the # and actually WON!!!!

WHAT A MONTH I'M HAVING!!!! :):lol:

Congratulations! :D

I miss it there SSOOOOOOOOOOOOOOOOOOOOOOOO much (that and Big Sur) :( Can I come back?

What's stopping you?

Hi everyone - I feel like a creepy lurker person just reading every so often but never posting. :ph34r::lol: I don't have anything even remotely interesting to say - just wanted to pop in and say hello.

It's good to see you M. We'd never consider you creepy. Jump in to say hello more often and share whatever you'd like. :)

Lackluster Spice here. -_-

Hope you get your luster back soon my friend. Shampooing the carpets doesn't sound like too much fun. I'd rather lay around on the couch. :rolleyes:

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Rachel, thanks for the info! I knew you'd come through! I don't know what my glutethione levels were, or if they were checked. I didn't get a copy of everything I guess. But I will check in with my doc about it next week.

Everyone, I'm headed out of town so might not see you for a few days.

Sherry,

I dont know if you'll see this since you're leaving town but I forgot to mention Epsom salt baths. These can be very helpful if you have low cysteine. Epsom salts are known to promote detoxification.

Another interesting thing I read.

Researchers have noted that dairy and gluten digestion difficulties would be expected in people with low sulfation, lending credence to the gluten-free/casein-free diet approach for these individuals."

Heres more about epsom salts...

"Epsom salts and water are very therapeutic and help to prevent problems as well as help to solve them. Epsom salt baths may be taken daily, one, twice, or even more to provide the necessary energy levels needed to both recover from injury or illness and charge up extra energy going into high stress levels of mental and/or physical activity. Routine Epsom salt baths are often recommended as a form of prevention."

"Interestingly enough, Epsom salts, taken orally, used to be the treatment of choice for chelation of heavy metals, such as lead. (This is back around the beginning of this century). Often this is called Methylation or Sulfination. Other things, like Zinc, should be used to prevent reabsorbtion of mercury or lead.

The gastrointestinal system especially needs a lot of sulfate. A

diferrent sulfotransferase enzyme called TPST uses sulfate to

activate two major gut enzymes. In animal studies the GI system

takes as much sulfate out of the blood as the liver puts into the

blood, so epsom salts are likely to mostly nourish the gut and spare

the liver the job of making sulfate from scratch from the amino acid

cysteine.

Low sulfur levels could cause many problems.

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Mango, hi! :D Glad you popped by.

Ugh--I'm here complaining again :P About 2 o clock, I started to feel like I had the flu. Aches and chills. Took Tylenol and layed down for a while, and felt better. Stomach getting iffy. The good thing is I only have to take this stuff till Saturday.....

Enough of that :lol:

Susie, sorry you're feeling under the weather, too :(

Laura, I'm so relieved it wasn't too bad today :)

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