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Rachel--24

Omg...i Might Be On To Something

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Aquafina may start out as tap water, but its purified by ro.

Lisa, great news!!!

I picked up my flute again for a July 4th band at church. The folk group invited me to join, so did the community band. I relearned in front of the whole parish!! Later I was also invited to join a woodwind quintet.

I played all through hs. After playing for a few months Adam bought me a new flute!! Anyway, it was not hard to pick up again and its been lots of fun.

I'm in nc across the street from cold mountain, the one from the book. Tomorrow we're going to the Biltmore house.

I'm having a Lyme flare. I'm thinking its the altitude. Its not time for a herx.

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I am starting IV treatments

I might have to live with my friend in seattle for awhile to see Dr. E in bellvue. 15 min from seattle. Muscle tests and what not. Hope I can make it to monday, god willing.

Yay on the IV treatments. :D

I think you'll like Dr. E if you come up here. Maybe that new doctor Rachel is seeing would work. I don't know how far that would be though. It may be easier up here with your friend if it's just her. Less food stuff to deal with.

Keep us posted. :)

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I'm having a Lyme flare. I'm thinking its the altitude. Its not time for a herx.

Good to hear from you Carla. Sounds like your trip is going ok aside from the flare. How long are you gone?

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You already said dairy. :)

Ummmmmm..........gluten?, shellfish and/or high mercury content fish?, ......I don't know. :unsure:

I find this whole testing interesting. Sounds like ART but it's your arm instead of someone elses.

OK...I have no idea how many foods he tested me for or which foods were tested.....there were just so many vials. I didnt even know when he was testing me for foods. :huh:

He did stop that one time to *show* me how my body reacted to dairy...I think he really wanted to emphasize why I should not eat ice cream from cow milk. He wanted me to *see* how my body responded to it. I think it worked too...I dont want to eat it now. :ph34r:

Check this out....its from post #1 in the OMG thread...

I would rather be intolerant to corn and gluten both than have to give up dairy for good.

Yup....can we say "ADDICT". :P

I was a big time milk drinker....always told people that if I had to choose just one drink to have for the rest of my life...I would pick milk. :)

Even if I could never have another soda again....I'd be fine....but I would NOT be fine if I had to give up milk. :o

BUT....right after he told me how much my body doesnt like cows milk....he then said that interestingly, my body is OK with goat dairy!! :o

He said I would still be dealing with the sugar but I might want to try goat dairy ice cream....which is sold at Whole Foods. He said I could try goat milk products if I want....except for yogurt....he said to stay away from the yogurt because I have all kinds of yeasts and fungal stuff going on.

I told him I've already tried eating goat milk yogurt and I reacted badly....that was a couple months ago.

I already found, bought and ate one pint of goat milk ice cream. :D

I told him the only thing I really noticed with the ice cream was that I was getting increased sensitivities to perfumes and chemicals and also even more sensitive to other foods. I figured it was because of the sugar feeding the candida. I told him I rarely felt any kind of reaction to the ice cream itself.....not like how I react to moldy foods...which is pretty obvious.

He said his recommendation is that I go for a period without any cow dairy at all.

It wont be hard...I've done it before.....and really all I'm eliminating is the one ice cream that I've pretty much stopped eating anyway. And heck....I've already got a yummy replacement!! :D

He was saying how once you give it up for a good 3-4 weeks...then if you get cravings and go back to it....often when we add it back in after a period w/out it....it can be a more striking response from your body. Thats when we go..."Oh yeah....this is why I was avoiding this stuff!!" :rolleyes:

He said we dont always get obvious symptoms of diarrhea, stomach cramps, etc....it would be much easier to figure things out if that were the case....but it often doesnt work that way.

When we're eating these foods all the time the "pot" is already being strirred.... the immune system is already agitated and kind of idling at a low level. Then when we add another sensitivity....formaldehyde in a new building or a perfume, maybe an environmental toxin,....then that gets stacked on top of a system thats already revved up some...then you become symptomatic.

He said if you can remove that food from your diet so that your baseline is lower and then you dump in environmental things...you may not cross that threshold where you even become symptomatic.

Basically he was saying to NOT eat cow dairy. :P

He said I cant control whats in the air I breathe.... but I *can* control what I put into my mouth.

I asked him if eating things that my body doesnt like is going to prevent me from detoxing successfully?? He said no....I'll still detox the stuff but I might not *feel* so good while doing it.

He said part of this whole treatment is about feeling better sooner....so if we do all the stuff and I dont feel any better for it....then what have we really done??

He said he wants me to get to the point where I'm not going to the Dr.'s all the time....not to see him or anybody else... I'll just be living my life and doing what I wanna do....and he wants us to get there as quickly as we can. :)

So yeah...no cow milk for me. :D

We also had a brief discussion about gluten that I'll post about later.

So here was the foods that had the most significant response from my body....these are the ones that got listed on my paperwork.

Cow Dairy

Wheat

Black Pepper

Bakers Yeast

Brewers Yeast

Cocoa

Cane Sugar

Ok....so out of those 7....THREE of them were in my ice cream that I ate everyday for 8 months!! :o

and 2 of them were in the Chocolate Chewie Cookies!! :o

There is still cane sugar in the goat milk ice cream but I figure its a HUGE improvement from what I was putting my body through before! :blink:

I just wont eat it everyday. ;)

Its interesting about the black pepper....it shows up every time...in every test I've had. It was even positive in my ELISA....out of like 120 foods tested I only reacted to a few things....one of them was black pepper.

I was also reacting to air-borne black pepper when I used to work the spices...any time it got spilled I was reacting to it.

When I was healthy I never used salt and pepper on my foods....just pepper. Its the only spice I ever used...I used to put it on everything. Once I got sick I stopped using it because everytime I put it on my food I felt alot worse.

I'm pretty sure black pepper is also very moldy....one of the worst spices for mold. I wonder if that could be why? :unsure:

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Heres something that was very encouraging. :)

I had told him that I felt like my body was still strong...even with all this burden. I just feel like my body can recover with a little help....it really WANTS to recover but some things are getting in the way.

Later on he asked about my cycle....I told him its normal.....28 days...normal bleeding, etc. Only thing is I get really tired a day or two before.

I told him everything was messed up when I was on disability....totally irregular, really bad PMS, cramps....it was just heinous to go through it. Once I changed my diet....a week later I had my first normal period in the 2 years I'd been sick.

He said it just goes to show how much of an effect diet can have on our health.

So toward the end of my appt. he said that its a REALLY good sign that my periods are normal. He said its an affirmation of what I'd said earlier about my body still being strong despite everything.....that fundamentally things are still functioning.

He said that the menstrual cycle is one of the things that is sensitive to all kinds of insults....there are all kinds of things that can be going on with me that would throw that off. So if thats working well.....things cant be that broken. :)

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Oh...another thing that he wanted me to *see* my body's response to was Nystatin. My arm was totally weak to Nystatin. :(

I told him in the past its tested ok for me....not great but not terrible either. Things might have changed since I've been taking it.....its been since March that I was last tested for it.

He said he is really not fond of Nystatin....that its really hard on the liver. I told him that I thought it was only Diflucin that was hard on the liver. He said no....they all are.

He said its hard on the liver in the sense that when we do the detoxing...both phase 1 and phase 2 conjugation of toxins occurs in the liver. The liver is THE primary detoxifying organ in the body....so we dont want to start really stressing the liver by making it have to work even harder.

He said he would rather it was free of having to also metabolize a drug. Sooooo.....no more Nystatin. He said he would prefer just focusing on the diet and finding something else for the yeast....like caprylic acid. He'll have to test me for some options since I dont tolerate much.

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When I was healthy I never used salt and pepper on my foods....just pepper. Its the only spice I ever used...I used to put it on everything. Once I got sick I stopped using it because everytime I put it on my food I felt alot worse.

I'm pretty sure black pepper is also very moldy....one of the worst spices for mold. I wonder if that could be why? :unsure:

The top part makes me wonder if it's one of those acquired intolerances, like me w/ corn & soy. :angry:

Ground black pepper is certainly moldy. A big no-no for every candida diet. Haven't had it for 2+ yrs.

BUT, whole black pepper freshly-ground during prep or at the table is fine.

I had a big problem w/ mold and had freshly-ground black pepper during the entire strict candida diet w/ zero problems.

That and sea-salt have been my only spices. (Garlic used a lot, but that's *really* a spice is it?)

EDIT - LOL :lol: grrrrr left out an important word. :angry:

Take 2: "....that's NOT *really* a spice . . .".

<fingers crossed> Hope it wasn't quoted! :o

[End Edit]

Speaking of Spice - heeheehee - http://music.yahoo.com/read/news/44921474

:)

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Going back to this list of "toxic foci".....I missed a couple that were cut off from my paper.....so I also have 2 more areas!! :blink:

Sinus

Tonsils

Lymph

Brain

Brainstem

Thyroid

Lung

All 4 heart points

Liver

PA (not sure what that stands for?)

All 4 quad jaw (yeah...my jaw is all messed up) :(

All ganglia (I'm pretty sure this is having to do with the autonomic nervous system)

Lungs

Gall bladder

and the PA stands for pancreas.

:( I'm toxic :(

But I'm not broken!! :)

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OK....I totally dingo'd TWO other viruses that he found. :o

I was just listening to what was recorded and then looking at the notes....and there is also Coxsackie Virus and Hanta Virus. :huh:

I had to look them up....never heard of them before....must be why they didnt stick in my mind. :rolleyes:

So I got....Candida, Aspergillus, Hanta, Coxsackie, Parvo, Babesia and Lyme.

Plus there is some things going on with my gut...parasites as well as candida....he said he doesnt want to jump in and treat the parasites until after we've done some detox. He said also with the detox some of these things are gonna shift.

He said the problems in my sinuses are more than likely caused by Aspergillus. :o

I was totally convinced alot of the head/sinus stuff was related to Aspergillus but then when Anna had me lab tested it came back negative. :huh:

I told him this and he said the muscle testing is alot more sensitive than a bloodtest. I told him the Aspergillus actually shows up bigtime in BioSET and also in ART.

Now that the Aspergillus was identified once again I just have to believe that its there and its probably been one of the main things making me miserable all this time.

Stupid Aspergillus! :angry:

Also....he said that I'm weak in alot of points that relate to nutritional status. I'm looking pretty depleted. He said he doesnt think I'm absorbing things very well. :(

On my paperwork it says I'm deficient in ..

Magnesium

Omega 3

Vit B

Minerals

Vitamins

Vit. C

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So here was the foods that had the most significant response from my body....these are the ones that got listed on my paperwork.

Cow Dairy

Wheat

Black Pepper

Bakers Yeast

Brewers Yeast

Cocoa

Cane Sugar

There is still cane sugar in the goat milk ice cream but I figure its a HUGE improvement from what I was putting my body through before! :blink:

I just wont eat it everyday. ;)

I guess it should be no surprise about the yeast since you have an overabundance of candida. :blink: We already know gluten and dairy are not good for us.......they just taste good. :P

Cocoa came up with all three children. I forget what compound that was....just looked it up BHT is naturally found in cocoa. Talitha and Micah came up with that. Seth just had it come up on food sensitivities. Mitch had tested positive on the ELISA. Makes me wonder if it's a problem with me........Mitch and I are both so curious to see what shows up on our test. Too bad we can't get them done sooner rather than later.

Can we hold you to not eating the goat ice cream everyday. :rolleyes:

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He said that the menstrual cycle is one of the things that is sensitive to all kinds of insults....there are all kinds of things that can be going on with me that would throw that off. So if thats working well.....things cant be that broken. :)

That is very encouraging. :D

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:( I'm toxic :(

But I'm not broken!! :)

No you're not. Your going to get better and it will be quicker for you going through these treatments. :D

Have I said "thank you" recently for talking about this. This has been what prompted me to go in with the children. For being so young they aren't in great shape either. Talitha and I have had major struggles this week. I haven't been approaching her very well and she's been a huge crab!

Can't wait until we get to the better part with her. Still don't know what treatment she's having Thursday. I know vaccines are ones that Dr. E wants to do. She tried to double up one of them with the last LED but Talitha's body would have nothing to do with it.

I don't remember if I wrote that she's going to see if they can find something that Seth's body likes that is in liquid form for him to take for detoxing. Otherwise they'll go through me......then they have to find something we both like. :P He loves his ASYRA Comp and Food drops. Kinda impossible to get him to hold it under his tongue though. He just swallows everything. They are all good about their drops.

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I was just listening to what was recorded and then looking at the notes....and there is also Coxsackie Virus and Hanta Virus. :huh:

I haven't heard of them either although Coxsackie sounds vaguely familiar......maybe it's a word similar to that I've heard before. :unsure:

On my paperwork it says I'm deficient in ..

Magnesium

Omega 3

Vit B

Minerals

Vitamins

Vit. C

What vitamins?

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I've done this ! It wasn't using vials. He tested my medications.

He tested some of my meds too. Its really cool how they figure things out.

Whenever he tested me for things he would press the item into my upper chest/shoulder area....or he would have me hold it in my hand....or he would just use my finger to touch all the vials that were in trays.

When he had all the infections identified he put all of them into a baggie and then held all of them against my chest...my arm was totally weak. Then he would take them away....strong arm.

So then he explained that this is how he's going to find the best remedy for the infections. He will keep the infections in place and then add an herbal remedy with them....if my arm goes strong then the remedy is effective. If the arm stays weak the remedy is not effective.

This is the same way they determine what works and what doesnt work in ART.

ART is a different test though....it works differently and it is specifically testing the Autonomic Nervous System.....whereas the regular muscle testing doesnt do this. In ART the things identified are the things that "block" the ANS or unbalances the system....and then they find the remedy which "unblocks" it and brings balance back.

He tested alot of different things.....some which seemed to help a little, some which didnt didnt have any effect at all and then there were a couple that really allowed for my arm to be strong again. :)

There are some slight changes in my previous treatment program. All the details of the LED preperation, groups to be treated, Protocol of supplements and all that stuff is what I'll be sending out in email.

He also wanted me on magnesium and Vit. C to help with bowel movements. I told him I havent found a single Vit C that I could tolerate....even the most hypo-allergenic one I could find still bothered me. I also havent tested ok for any Vit. C so far.

He tested me for a few different ones he had there in the clinic and still no good for me. Then he said we'd try an unbuffered one....went and got that one and I actually had a strong arm for it. :)

I need to be having at least 2 bowel movements during the detox. He said enemas wont hurt me or anything but he said he'd rather be supplementing the things my body needs and for me to have my own bm's.

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He tested me for a few different ones he had there in the clinic and still no good for me. Then he said we'd try an unbuffered one....went and got that one and I actually had a strong arm for it. :)

That's great that they found a Vit C that would work. :D

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What vitamins?

I dunno?? :unsure:

The notes are all written in abbreviations and I cant understand what alot of it means. There is a girl who works with him....shes the one who answered all my questions on the phone. She was there for my whole appt...she took all the notes and sometimes asked the Dr. to test certain things.

Shes the one who actually does the LED treatments....so it will be her who does my treatment on Friday.

Everything is abbreviated on the notes so I have to listen to the recording to try to figure out what some stuff means.

On the paper for infections it says...

Han, Cand, Bab, Borr, Par, Coxie, Asper. :huh:

So yeah....I had to listen to his words on the recording a few times to figure out what the heck Han and Coxie were. :rolleyes:

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That's great that they found a Vit C that would work. :D

Yeah hopefully it works for the bm's too! :P

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Can we hold you to not eating the goat ice cream everyday. :rolleyes:

Yeah...I'm not gonna be eating it much at all. On my instructions it says to avoid allergies listed on my challenge sheet and to eliminate them from my diet. The ice cream has cane sugar. :(

The challenge sheet has all the "findings" on it.

Oh....I was also tested for geopathic stress and EMF.

I had no problems with geopathic stress. :D

Its a big 0 on my challenge sheet. I was really happy about that one. :)

I did test positive for some EMF stress. He has a device that you use to locate areas of high EMF. I told him there was a computer in the room I sleep in at my mom's but he didnt seem to think that was the problem. He said it could be something like an alarm clock near my bed or something like that.

Anyways he was showing me how to use the device and where to look. He wanted me to test all around the bed I sleep in because there is where we can get alot of EMF....if we're sleeping with an elctro magnetic field all around us.

In the conversation I asked about my electric blanket (which I'm still using even in summer :ph34r: ). So once I said "electric blanket" that was the end of trying to figure out where the EMF was coming from. :o

He said for sure I'm testing positive because of the blanket. I was like..."Really?? Could it just be my blanket??" :huh:

Both him and the girl were like..."UH....YEAH...its definately the blanket." :rolleyes:

He didnt even want me to bring home the device after that.

He said other than throwing the blanket away...he would recommend I turn it on *before* I get in bed....get everything warmed up and then turn it off and unplug it before I get in bed.

No more blanket!!!! :(

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Have I said "thank you" recently for talking about this. This has been what prompted me to go in with the children. For being so young they aren't in great shape either. Talitha and I have had major struggles this week. I haven't been approaching her very well and she's been a huge crab!

Andrea.....you're welcome but you dont have to thank me....we're all here to help each other and to support each other. :)

Sorry T. has had a rough week. Maybe its from the detox? I hope it gets better for both of you. :)

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It's as if I've fallen deep into another rabbit hole. Things have become rather strange. :blink:

Yeah.....Rachelville can feel that way sometimes. :lol:

The amazing thing is that this man was the first person to ever tell me not to eat wheat, oats, barley or rye. He also told me I was "allergic" to dairy, soy, corn, and coconut and to stay away from them.

Yup...I remember you saying all this!! Its really cool but I dont think I would have easily believed it had I not already been doing BioSET and ART. Since they all pretty much correlate as far as the main things I'm dealing with its really encouraging to me.

You guys might recall when I was first gonna go to BioSET and I was thinking it was some kind of crazy voo-doo stuff?? I dont think I was too excited to go there.....I remember plotting to "trick" her with my supplements.....I brought some of the ones I knew my body HATED. :P

Then the testing showed all those ones as being bad for me. :huh:

Now I guess I'm totally convinced....but I still think it depends alot on whos doing the testing. I think theres probably some people doing kinesiology who arent really that good at it and not giving accurate results. I think I've had good luck so far with the people I'm seeing.

So far I dont want to fire anyone. :)

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I loved that you put a crappacino! :lol: ROTFLMAO!

OMG....I totally cracked up when I saw Susan's post!! :lol::lol:

But seriously....I always forget what its called. :unsure:

When I typed it I thought it was the right name...and now I'm just really confused!! :ph34r:

I never know if its called crappacino or frappacino?? :huh:

And right now I'm totally cracking up because I just realized its NEITHER...its a caramel macchiatto that I like!! :lol::lol:

Um...yeah....brainfog is apparantly still a big problem for me. :rolleyes:

I've actually been confused when ordering and I think I told them I wanted a frappacino...or crappacino instead of caramel macchiato. I dunno what happened...I just remember getting some coffee drink with ICE.....instead of the yummy warm macchiato with whip cream on top. :unsure:

It was VERY dissapointing to say the least.

That was when I was so very lost in the fog. :rolleyes:

I should also have pointed out, but I believe Rachel already has, that these recommendations were a result of my body's answering questions asked by the Kinesiologist. He wasn't concerned with any sort of a medical history, or anything like that--he got all of his answers from my body, via the muscle in my arm.

Patti....this Dr. literally asked my body questions. :blink:

He was asking me stuff which I think was part of determining whether or not I had emotional stress.

Then he was asking me to say stuff like "I am going to get better" "I want to get better" "I deserve to get better"....stuff like that....he was testing me and my arm was strong.

Then he said "Well thats good because if your arm went weak for those things we'd have a heck of a time getting you better." :blink:

At first I thought he was just joking with those things but now I think he was serious...he was really testing me to see how my body responded.

On my challenge sheet there is a big 0 next to subconcious/emotional stress. :D

They always add stuff into the LED treatments for emotional issues anyway....but it doesnt look like I have anything seriously blocking me. My BioSET lady had tested me once like this too...and she also said that there was no big emotional stuff getting in the way. :)

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Dr. E said it would be great if I found a Dr. willing to do this. I FOUND ONE! Later I will need to go to lazer dextox for sulfur pathways too. My mom is willing to take out loans. Even if she needs to borrow 5,000 bucks she said.

I might have to live with my friend in seattle for awhile to see Dr. E in bellvue. 15 min from seattle. Muscle tests and what not. Hope I can make it to monday, god willing.

I Pray for you all too.

Lisa,

I'm glad you found someone!! YAY! :D

You're always in my thoughts and I'll continue to pray for you. :)

Its nice that your friends are coming to see you. I'm excited for you and I'll definately be keeping my fingers crossed that the IV's can help you feel better.

Keep us updated. :)

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Patti....this Dr. literally asked my body questions. :blink:

He was asking me stuff which I think was part of determining whether or not I had emotional stress.

Then he was asking me to say stuff like "I am going to get better" "I want to get better" "I deserve to get better"....stuff like that....he was testing me and my arm was strong.

Then he said "Well thats good because if your arm went weak for those things we'd have a heck of a time getting you better." :blink:

At first I thought he was just joking with those things but now I think he was serious...he was really testing me to see how my body responded.

Yes, that's because the body, when asked the right questions in the proper way, can't *not* tell the truth.

It's the darndest thing, but it works--don't ask me how :D

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Rachel-

thank you for the update. I hope i am on your email list (i think i am) . It sounds like such a productive appt.

About 9 years ago i had my first bout of being sick , i was diagnosed with reflux but no treatment helped me. I got desperate and my father ended up taking me once a week to this guy in long island(over an hours drive away) but he did testing with the vials and said i was allergic to wheat and dairy and someother stuff i don;t remember . At the time this kind of testing and anything homeopathic was relaly unknown and seemed kind of like BS. My parents and i always look back and say jeex if we had only listened to the dude in Long Island who knows what would have heappened.

Lisa-

thanks for the update. I am so glad youw ill be getting the IVS and that your parents are helping you now!!

Andrea-

sorry T is still giving you a ahrd time hopefully once she starts her treatment things will start to improve.

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ok i need some opinions. I have been ahving a rough time - i mentioned it a few days ago it is why i am going to not have chealtion and just the minerals and vitamins this week. Well I have not posted since that, but it has not gotten easier. I have just been really weak (which despite my weight is unusual for me) I have also just been feeling super sensitve to everything- sounds, lights, foods, smells, etc. I know it is the toxins that have been pulled out and are dancing around my insides.

So ok with all this bad the one good thing has been last week for the first time in a a rEALLY long time my bowels were almost (not totally) but almost normal - it was so exciting.

So here is where i need your opinions next weekend is this annual family vacation we take its just 4 days and we drive so no flying but for me even though there is no flying (which kills me) but anytime i go away even without flying my bathroom suffers- as in i don't go. SO i decided I just did not want to go- i know this will mar the trip for everyone else I only told my dad and he already was talking about not going for the whole time so he woulden't be leaving me alone. I don't want to ruin everyones trip and Yes of course i want to go.

On top of the bathroom, there is the issue of food. Iw ill ahve to pack everything and basically be cooking out of my hotel room- not fun!!! I ahve had to do this the last few years we went on this trip but it is always stressful figuring out what to bring (i don't have a full kitchen which i need for alot of the stuff i make)

So there is the bathroom, the stress of the food, and just the idea of possibly causing a set back which i really cannpt afford right now. But I also feel so frustrated becasue i think i deserve a vacation and to spend time with my niece and nephew (whcich would be good for my mental health they are amazing) . Also i live in the city- hello polution- car fumes , flying toxins ,dirty air, etc. And i would be going up to the mountains- FResh air!!!!!!!(that could really help me.

AHHHHHHH......I don't know what to do and i need to decide becasue or else they have to cancel my room and stuff.

Ok i hope this made sense i am really out of it. You guys gotta help me

Miamia

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