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Rachel--24

Omg...i Might Be On To Something

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I'm certainly not complaining--I had a breath test for H-Pilori last month that was negative. I still wonder if this could have something to do with a bacterial overgrowth. I mentioned it to my GI at the last visit, and he did the H-P test only.

I see him again in October, but do you guys think I'm on the right track here--that there's a bacterial thing happening? Do you think this wonderfulness is going to last?

Hmmmm... I dunno. :unsure:

I tend to think that most of us who are dealing with the intestinal issues have dysbiosis to some extent. Bacteria overgrowth, yeast...stuff like that contributing to the food intolerance and digestive problems.

I tested negative in a few tests for H.Pylori....including bipsies when I had my endoscopy. I did test positive for C Diff overgrowth and earlier this year I tested positive for yeast, bacteria and food proteins all contributing to leaky gut and poor intestinal function.

I recently repeated that test and keep forgetting to call for the results. :rolleyes:

I never tested positive for any of this stuff when I was at Kaiser...but obviously I do have gut issues.

Are you still taking the abx? I do think its likely there is some dysbiosis. I dont know if the wonderfulness will last but I'll definately keep my fingers crossed for you! :)

The balance of good flora is critical for intestinal health...so I think that those of us having problems in that area most likely have upset that balance and are dealing with overgrowths. :(


Rachel

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Hi Everyone, Just a quick drive by for me...

One question for the BioSET people: after we're treated we lay in a darkened room with the glass on our stomach (it has to touch bare skin). I've never noticed this before, but the last three treatments (for lyme) have all been the same. As the glass is on my tummy, after about 5 minutes or so, the area directly under the glass starts gurgling and actually feels like it's bubbling...I can almost feel it bumping the glass, lol. I don't think this has happened in all the other times I've had the treatments, but for each of the three lyme panels so far this has happened. It is just a coincidence? Has anyone else had that happen? I'm going to ask Anna if I can possibly remember by then, but just wondered if anyone has had that happen.

Sorry Donna, I can't help you. Dr. F my acupuncturist does BioSET a different way.

So I told the girl that I'm up to 9000 mg. of Vit C and still no loose stools...in fact I was getting more consitpated. :huh:

I was also up to 3000 mg. of magnesium.

:blink: :blink: Wow, that's ALOT of magnesium!! The most I can tolerate a day is about 1000mg before getting D.

Before we started she was massaging my intestines cuz of the constipation issue. She said she could feel that I was bloated and she was moving stuff around and somehow knowing what was what. :huh:

I still have no idea about anatomy. :unsure:

She was telling me I could do this myself and kind of get things moving so that I might stimulate bowel movements. She was saying something about neurotransmitters and the brain not sending the message to the bowels and stuff just sits there because my body sort of "forgets" what its suppossed to do.

My massage therapist taught me an easy way to remember how to massage your intestines to help you pooh. She teaches mothers to do it on their babies. It's called I Love U. First, you start on your right side of your lower abdomen near your groin. Stroke up for the "I". Then, start in the same place, and make an upside down "L" going up your right side of your abdomen, then across just below your ribs. Next, start again in the same place on the lower right, go up, then across to the left, then down the left side for an upside down "U". You've finished the I Love U! The "I" is the ascending colon, "L" covers the Transverse colon", and the "U" picks up your Descending colon. It's much easier to show you, but I can't really do that here, eh :P ! Hope this helps you to remember it.

Back to packing :rolleyes: .

Claire

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Back to packing :rolleyes: .

Have a fun, relaxing time Claire. :)


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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My massage therapist taught me an easy way to remember how to massage your intestines to help you pooh. She teaches mothers to do it on their babies. It's called I Love U. First, you start on your right side of your lower abdomen near your groin. Stroke up for the "I". Then, start in the same place, and make an upside down "L" going up your right side of your abdomen, then across just below your ribs. Next, start again in the same place on the lower right, go up, then across to the left, then down the left side for an upside down "U". You've finished the I Love U! The "I" is the ascending colon, "L" covers the Transverse colon", and the "U" picks up your Descending colon. It's much easier to show you, but I can't really do that here, eh :P ! Hope this helps you to remember it.

Ahhh....that must be what she was doing! She seemed to be following a pattern. She said she'd done it on her kids before and it helped them.

She was telling me she was following the shape of my intestines. She started on the lower right side...just like you described...and then continued from there. She didnt mention the "I Love U" part though. :lol:


Rachel

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Donna...I've had rumbling in my tummy when I've been in the treatment room before. It was mainly when I was getting treatments for fungal stuff though.

I didnt always have my glass directly on my skin though. It was only Susan that wanted it on my skin.

It doesnt have to be touching your stomach but it does have to be touching your skin at all times. The main reason Susan has us put it directly on our skin is in case we fall asleep for a second and dont have our hands firmly on the glass...that way its still touching our skin.

I've never fallen asleep during a treatment but apparantly other people have and they've let go of the glass and then had to repeat the treatment.


Rachel

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oh...my...gaaaawwwaddddd.....my head is so spinning :blink:

there are so many comments i want to print and list and put my thoughts..

Rachel...started with looking at the site you put up on the lymph machine..

my lymph pt does some stomach massage for me for the 'd' too.

just to much........going into the garden..can't deal today with the scienticitness of this today.

need a calmer day.

agreeded with the last few of rachel's comments in responce to Patt's

I have an apt with GI ..will be my last with her before she takes a leave of absence..for a long time..i guess...she sent me a letter. ...since all my tests came back neg..we'll discuss why i continue to have 'd'

any questions to ask her.

already did the 'big lyme' discussion.

will try again tho.

will get back to you with a clearer mind. :blink:

j


Judy in Southern CA

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Hi Judy :D When is your appt. again?

I'm not currently on the abx, but I have a Rx for more, as my eustation tube is completely blocked and she thinks there may still be an infection behind my eardrum. I keep debating taking more--the doctor kind of left it up to me.


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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just to much........going into the garden..can't deal today with the scienticitness of this today.

need a calmer day.

We'll be here when you're calmer day hits. Have fun in the garden.....don't work too hard. :)


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Tom, I didn't mean that it would fix the problem, but I've seen it mentioned on here that it helps some with glutenings. It's also good for helping to digest casein. I know it doesn't "fix" celiac! If only it were so easy, right?

Yikes! I sure didn't word my post the way I'd wanted!

I've seen mention of it here, but ppl say they *think* it "helps", while never actually having any idea whatsoever whether they needed any "help". (Possible cc is scenario)


>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03

Dairy-free since 10-04

Soy-free since 5-07

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Yikes! I sure didn't word my post the way I'd wanted!

I've seen mention of it here, but ppl say they *think* it "helps", while never actually having any idea whatsoever whether they needed any "help". (Possible cc is scenario)

I read a post once where someone had definately been glutened and was feeling very bad. She felt better after the Glutenease.

Don't know how you meant to word it. :) But that's okay.


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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I read a post once where someone had definately been glutened and was feeling very bad. She felt better after the Glutenease.

Cool! That's the 1st time I've heard something specific. :)

I might have to look closer at that.

Argh! I'm so behind! And don't want to catch up piecemeal; rather get all the post-LED appt news at once. :)

Claire must be in transit by now. Wish I didn't have to wait until Fri for SJ!! :D

Donna,

I've been wondering whether that bubbling has anything in common w/ the freaky wavy part-spirally perception I'd get in the gut during acupuncture, but mine (chi-related it seems) could never be described as bubbly.

Donna AND Claire - see ya soon!! ;):lol:

http://sanjosejazz.org

http://sanjosejazz.org/festivalschedule.html

:):):):)

And not all Jazz - there's a Salsa stage, 2 Blues stages, a Latin stage etc etc :o:)


>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03

Dairy-free since 10-04

Soy-free since 5-07

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Dear Andrea,

Thank you for the Rinne update! :) I was worried. We had not heard from her in so long. I hope her business venture is taking off. Maybe she will get time to post again soon! If you hear from her again, tell her I send my love, too!

I think an extraction would be smarter for my situation as well. The possibility of having Lyme certainly makes the risk great. My immune system probably already struggles. Obviously, I would not be sick if things were normal. I need to make an appointment with my doctor. She needs to get her butt in gear and check out the IgeniX lab so we can get the testing done.

Dear tom,

Friday will be here before you know it! Do not wish time away! It goes much too quickly as it is. The Jazz Fest will be great. They seem to have quite the variety there. Thanks for the links.

I have a bad feeling that Glutenease would not do much for me. Still, if I could afford it, taking it as a precaution due to sharing a kitchen would be helpful. At least then I would not maybe get violently ill. Sorry to hear about your terrible coffee experience. I only drink what I get at home. I do not chance getting anything from anywhere.

All of those rocks would be hard on the feet! Beaches are so nice. I want to sit out on one. Maybe when I get well, which will hopefully be soon, I will get to go to L.A. like I have always wanted.

We have a beach here, but the heat has been stifling, and the pollution is terrible. Maybe Hawaii would be less toxic to visit. My cousin and her family live there.

Dear Donna,

What wonderful news that your solo went well! ;) We knew you could do it! The stomach discomfort is difficult to deal with, especially in cases like that. Is your throat doing any better? There are times I cannot hit notes because I run out of air or my voice is just not with it that day. Days like that can be so frustrating! :angry:

Hopefully, the D will improve. Do you think it is supplement related? I think I have a bacterial dysbiosis issue. The yeast makes that easy to occur. I know I do not have H. Pylori.

Dear Claire,

The retreat will be fantastic, I am sure! I hope you get time to check in some. Getting away from electronics is good for you, though. All of the phones ringing, faxes going off, e-mails, and everything else can easily stress someone out. You need a repreive occaisionally.

Dear Rachel,

Your LED appointment sounds like it went very well! :) The detox period probably did make you feel pretty rough. I am glad you felt better after resting. They sure covered a lot. I found it fascinating about the autistic children knowing where to have the laser blast away toxins.

The information on lymph drainage and detox was great! I am going to keep all of this in mind. You never know when you will need something! I think I will start rebounding some this week. Every little bit should help. I also bookmarked the chi machine site.

I agree that many of us probably have bacterial dysbiosis issues. I know I probably do. Anytime yeast is present in the intestines to the point it is excessive, bacteria can freely reproduce. I take probiotics and prebiotics. However, that is not always enough. Sometimes other underlying problems make it impossible to get rid of the bad stuff without eliminating other root causes first.

Dear Carla,

I would willingly try Glutenease. If it could help my reaction be decreased at all, it would be worth it. The violent response my system has from gluten is unbearable. If there is any way I could get a hold of some, I would do so. I know it cannot prevent damage to my intestines, but at least it would maybe prevent me from being completely debilitated by a reaction. Sharing a kitchen is so dangerous.

I looked Astragalus up. I was surprised to find out it is a legume! :o How odd is that? You just never know what things are in what food family. Take for instance, mangoes and cashews are in the same biological classification. As Nikki would say "Well, blow me!" :lol:

Dear Judy,

I hope you get through to your G.I. doctor at your next visit. They really need to prioritize. Some of these doctors think you can just wait on them while they take their sweet time. Most could not care less that you could have a deadly disease. It is impossible not to get annoyed when you suffer on a daily basis.

The D could be a bacterial problem. A lot of different kinds of bacteria cause it. Everything from C. Diff to E. Coli can do it to you. Carla had the same situation. The Lyme likely increases the risk of having other problematic bacterias in your system. It weakens your immunity, and the other bacteria cannot be repelled like they normally would be.

Dear Patti,

I have been making an effort not to overdo using the computer. There are times I am on here practically all day. That is not good for anyone. Your eyes are strained more, and you are not moving around much. Then there are the EMFs.

You are right. We are relieved Dad found a new job so quickly. Even better is, this company has good insurance for them, as well as a salary that is $14,000 more annually. The other day, they had FedEx deliver a new computer, printer/fax/copier/scanner, and a bunch of office supplies. He also has two laptops.

He used to have to beg the other company for toilet paper for the office! :blink: It was pretty absurd. Right now, he has to work out of the house. They do not have an office here. He has not been able to find an acceptable place yet. You see, the company he works for is just now expanding to this area.

I am glad to hear the Zithromax seemed to help the D. Maybe you had some bad bugs in your colon. It might have killed them off. Sometimes there are too many nasty buggers floating around. Then, after you take some meds, you end up repairing the damage.

Sincerely,

Jin


Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985

Asthma - 1994

Ovarian Cyst - May 1999

Anemia - 2000

4 More Ovarian Cysts - March 2000

Bloodwork for Celiac - November 2000 negative

Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy

Fibromyalgia - June 2001

IBS - June 2001

Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.

Thyroid Disease - August 2004

Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

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Patti - not sure about the bacterial thing, but it kind of sounds like it!

I didnt always have my glass directly on my skin though. It was only Susan that wanted it on my skin.

It doesnt have to be touching your stomach but it does have to be touching your skin at all times. The main reason Susan has us put it directly on our skin is in case we fall asleep for a second and dont have our hands firmly on the glass...that way its still touching our skin.

Yeah, I've never fallen asleep either. My plan is to put it (the glass) in a different location next time. It's odd that it's directly under the glass and no where else...and limited to just that little area the size of the glass.

Susan and Denise are apparently NOT testing right now...not sure why...should have asked. Anna is the only one testing this month and she was training two new people on Saturday...one of which I recognized as a patient. :lol: She was one of the girls I met in the waiting room a few months ago while waiting for my ART session. :P

already did the 'big lyme' discussion.

Did she even test you for it though?

Claire must be in transit by now. Wish I didn't have to wait until Fri for SJ!!

Nice little house in your avatar...is that one you are considering?

I've been wondering whether that bubbling has anything in common w/ the freaky wavy part-spirally perception I'd get in the gut during acupuncture, but mine (chi-related it seems) could never be described as bubbly.

Well, I'm not sure it's exactly bubbly, but it is...it's definitely unrest that's for sure and it feels like it's thumping the glass, lol, so bubbly is what came to mind. Could be wavy...

Hopefully, the D will improve. Do you think it is supplement related? I think I have a bacterial dysbiosis issue. The yeast makes that easy to occur. I know I do not have H. Pylori.

I'd bet money I have bacterial dybiosis, lol. I don't know what it is...it seems more than supplement related, but the supplements could be making it worse. I'm also getting pain in my stomach...I'm hoping H.Pylori isn't back. :( I really don't want to do another stool test, but I'm afraid that's what they'll have me do if this doesn't clear up soon. :(

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Hi all

Jin - it's great to hear that new dad's new job is going so much better. :)

I've got a couple of questions for those who are better with the scientificness than me ;)

I'm starting to take vitamins (making sure they're free of everything except the vitamin lol) and so I had a multi-B tab with my lunch. Within 3/4 hour I went for a pee and it was yellow, as in the yellow of excreting B vits. How come it went through my system that quick? Is that normal or does it show that I'm just not absorbing the vitamins at all? What are the reasons for not absorbing vitamins? I'm thinking the whole leaky gut thing, but is that only caused by candida?

Thanks for listening!

Patti and Donna, I hope you're both feeling loads better really soon. Donna, well done with going ahead with the solo B)

Susie x


Susie from Coventry, UK

IBS & GERD 2000

Screened for coeliac disease as sister has it - negative blood test

Nov 2005 positive blood tests

January 2006 dx by biopsy

gluten-free and dairy lite since then

I am also neutropenic, anaemic and have hypothyroidism

Feb 08: free protein S deficiency; candida overgrowth; adrenal exhaustion

'My grace is enough; it's all you need. My strength comes into its own in your weakness.' 2 Corinthians 12

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Susan and Denise are apparently NOT testing right now...not sure why...should have asked. Anna is the only one testing this month and she was training two new people on Saturday...one of which I recognized as a patient. :lol: She was one of the girls I met in the waiting room a few months ago while waiting for my ART session. :P

Could Susan and Denise be on vacation? That's nice that she takes patients to train to do that who are interested. :)

I'm also getting pain in my stomach...I'm hoping H.Pylori isn't back. :( I really don't want to do another stool test, but I'm afraid that's what they'll have me do if this doesn't clear up soon. :(

I hope you don't have H Pylori again. :(

Susie UK, I don't know about the vitamins. That is awfully quick though. Hopefully someone else will know.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Dear tom,

Friday will be here before you know it! Do not wish time away! It goes much too quickly as it is.

Chalk up another one for our wise-beyond-her-years columnist Jin. :)

. . . Sorry to hear about your terrible coffee experience. I only drink what I get at home. I do not chance getting anything from anywhere.

Coffee's usually so easy. It's either plain or it's not.

Don't forget I'm the guy who hasn't been to a restaurant of any sort in 2-3yrs except once when stuck in Santa Cruz. That time I had a 1 ingred entree and had the waiter go talk to the chef TWICE to make sure it'd work. (Awesome salmon!!)

All of those rocks would be hard on the feet! Beaches are so nice. I want to sit out on one. Maybe when I get well, which will hopefully be soon, I will get to go to L.A. like I have always wanted.

Bah La-La land, go to Santa Cruz or Capitola!! :) Well . . . . . I do have to credit the southland for having warm water tho. North of Point Conception, by Santa Barbara, where CA sorta has a corner, the water's current is from Alaska. South of there the current is up from the tropics.

Dear Rachel,

. . . . I found it fascinating about the autistic children knowing where to have the laser blast away toxins.

Wow!!! I *really* need to read all that LED stuff today.

The information on lymph drainage and detox was great! I am going to keep all of this in mind. You never know when you will need something! I think I will start rebounding some this week. Every little bit should help.

I love rebounding!! And blocking shots!! :huh:

Am I the only one who thinks basketball when reading the word rebounding? :blink:

. . . As Nikki would say "Well, blow me!" :lol:

I don't think I'll try to get away w/ saying that. :o

Nice little house in your avatar...is that one you are considering?

Ohhhhh yeah, 1/2 block off Lincoln. I'd told John (future roommate) how much I liked very short walk to little Mi Rancho market when, for instance, I "suddenly need a lemon", and he saw one house on Willow Glen Way that HAS LEMON TREES!! LOL :lol: but it got nixed for being like the mystery house, it's settled so strangely.

[Edit: oops that should be the "gravity-defying" Mystery Spot, in S.Cruz Mountains, not that silly Winchester house in town)

Well, I'm not sure it's exactly bubbly, but it is...it's definitely unrest that's for sure and it feels like it's thumping the glass, lol, so bubbly is what came to mind. Could be wavy...

Such strange phenomena in these things. I should do more acupuncture soon, both just-in-case and just because I've ALWAYS felt healthier leaving than going in. (Not so much my AZ guy, but def the Santa Cruz woman)


>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03

Dairy-free since 10-04

Soy-free since 5-07

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Take for instance, mangoes and cashews are in the same biological classification. As Nikki would say "Well, blow me!" :lol:

I would indeed Jin! :lol:

You learn something new everyday :D


It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki

Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

black_cat.gif

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Just dropping by to say hello to everyone. I think of you all often and hope you all are doing well, trucking along with the healing process.

My health took a turn for the worse and I have been really sick, but I have been trying to make a comeback!

Has mia mia been around? I tried to pm her and her inbox is full.

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Just dropping by to say hello to everyone. I think of you all often and hope you all are doing well, trucking along with the healing process.

Hehe "out of sight, out of mind" doesn't quite count for Rachelville, does it?

My health took a turn for the worse and I have been really sick, but I have been trying to make a comeback!

Sorry to hear of the turn, julie.

Has something been figured out for the comeback or is it still search mode?

Good luck, regardless!! :)

Has mia mia been around? I tried to pm her and her inbox is full.

She's posting more days than not anyway, juliejulie. ;)

(Seems redundant to write that since Mia's probably on prev page or one before)

With storage the way it is now, 50 PMs is an awfully low limit.


>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03

Dairy-free since 10-04

Soy-free since 5-07

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Just dropping by to say hello to everyone. I think of you all often and hope you all are doing well, trucking along with the healing process.

I'm sorry you've been so ill :(

Great to hear from you!!! :)


It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki

Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

black_cat.gif

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Just dropping by to say hello to everyone. I think of you all often and hope you all are doing well, trucking along with the healing process.

My health took a turn for the worse and I have been really sick, but I have been trying to make a comeback!

Has mia mia been around? I tried to pm her and her inbox is full.

Hi Julie! Welcome back. So sorry you've been sick :(. It's nice to "see" you though :)


"Let food be thy medicine, and let thy medicine be food." - Hippocrates

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Just dropping by to say hello to everyone.

Hi Julie :D How nice to see you!


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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JULIE WAS IN THE HOUSE AND I MISSED HER!!!!!

I'm starting to take vitamins (making sure they're free of everything except the vitamin lol) and so I had a multi-B tab with my lunch. Within 3/4 hour I went for a pee and it was yellow, as in the yellow of excreting B vits. How come it went through my system that quick? Is that normal or does it show that I'm just not absorbing the vitamins at all? What are the reasons for not absorbing vitamins? I'm thinking the whole leaky gut thing, but is that only caused by candida?

Thanks for the well wishes! Yep, I think it COULD happen that fast. I'm judging that by me, but then again, I'm not absorbing vitamins well either, so, okay, maybe I don't know the answer afer all. :P Come to think of it, now that I've been on my vitamins for awhile, it's not as yellow. I'm taking mostly liquid forms of stuff and they're having me take double the doses on a couple of them like the multi and the Bs, so maybe my body has finally started absorbing stuff.

Having said all that, I always thought it was normal to be really yellow, lol.

Could Susan and Denise be on vacation? That's nice that she takes patients to train to do that who are interested. :)

That was my first thought, and then I had "flashbacks" to my own work situation where they would never allow two of us to go at the same time if at all possible. Course, they couldn't do anything about it if someone were on vacation and the other one sick or on leave. :P

I love rebounding!! And blocking shots!! :huh:

Am I the only one who thinks basketball when reading the word rebounding?

Yep, I've heard that term for basketball before, but wouldn't be my first thought, so I'm thinking it's a guy thing. :P (I actually thought you were saying you loved it for a different reason...something like Charlie said about women on rebounders, :P )

Ohhhhh yeah, 1/2 block off Lincoln. I'd told John (future roommate) how much I liked very short walk to little Mi Rancho market when, for instance, I "suddenly need a lemon", and he saw one house on Willow Glen Way that HAS LEMON TREES!! LOL :lol: but it got nixed for being like the mystery house, it's settled so strangely.

[Edit: oops that should be the "gravity-defying" Mystery Spot, in S.Cruz Mountains, not that silly Winchester house in town)

Such strange phenomena in these things. I should do more acupuncture soon, both just-in-case and just because I've ALWAYS felt healthier leaving than going in. (Not so much my AZ guy, but def the Santa Cruz woman)

I think it looks cozy. :P

Just dropping by to say hello to everyone. I think of you all often and hope you all are doing well, trucking along with the healing process.

My health took a turn for the worse and I have been really sick, but I have been trying to make a comeback!

Has mia mia been around? I tried to pm her and her inbox is full.

Hello my friend, so sorry you have been so sick! Mia is also having a tough time now, but comes in and out every couple of days or so.

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Has mia mia been around? I tried to pm her and her inbox is full.

HI JULIE!!!!

It's so good to see you! :D

Miamia has started chelation with her new doctor and has been having some rough spots. I don't know if they are going after the lyme at this time or trying to lower her metals first.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Yep, I've heard that term for basketball before, but wouldn't be my first thought, so I'm thinking it's a guy thing. :P (I actually thought you were saying you loved it for a different reason...something like Charlie said about women on rebounders, :P )

:lol:

I make a point of trying to separate my sports-related thoughts from the unavoidable sexist ones. I do run into trouble when watching WNBA players miss layups tho. :P

Hello my friend, so sorry you have been so sick! Mia is also having a tough time now, but comes in and out every couple of days or so.

Oops I guess I'm wrong on Mia's recent posting frequency. But still there ARE posts.

Dingy's been AWOL long enough, she's become the *other* Susie!! :o


>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03

Dairy-free since 10-04

Soy-free since 5-07

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