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Lisa

So Many Newbies Have Joined Us

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Hey Guys & Girls:

I know that I am not the only one who have noticed the addition of many Newbies on Celiac.com. What a wonderful thing that is. People are being dx's and public information has improved. So many have come to us for help.

I have also noticed, that some of their questions have gone unanswered, or minimally addressed. Not everyone will have an answer, but a concerned knock on the door is an opportunity to ease a great deal of anxiety.

Before you go to that comfort thread, brows through the threads and add some input, whether just to say hello and welcome, help interperet their dx numbers, or just add a suggestion for a meal or a safe product.

Make someones day. :)

"be-be-be-beep...This is the end of this public service announcement"

Thank You for listening.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


Hear, Hear! :)


Emily

diagnosed type one diabetic 1973

diagnosed celiac winter 2005

diagnosed hypothyroid spring 2006

But healthy and happy! 253.gif

11 year-old Son had negative blood panel, but went on gluten-free diet of his own volition to see if his concentration would improve, his temper abate, and his energy level would increase. Miraculous response!

The great are great only because we are on our knees.

--Pierre Joseph Proudhon (1809-1865)

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I would also add, as a pretty new member myself, that a lot of the best information can be found by doing a search on past topics and seeing if what I need to know has already been covered. Sometimes a new topic won't get as much attention because it's been discussed a good deal in the past. Nothing wrong with asking something a second time, but the depth of the archives here can be a newbies best friend. I know it has mine.


Diagnosed through Enterolab (9.27.06)

Antigliadin IgA 164 (Normal Range <10 Units)

Antitissue Transglutaminase IgA 75 Units (Normal Range <10 Units)

Quantitative Microscopic Fat Score 874 Units (Normal Range <300 Units)

Fecal anti-casein (cow’s milk) IgA antibody 73 Units (Normal Range <10 Units)

HLA-DQ 2,1 (Subtype 2,5)

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How well you have put everything Lisa. I will certainly try harder to help in some way. And if I can't be of any help, I will at least say hi.

THANK YOU for the public announcment! Sometimes we need to be reminded.


"Throw yourself a pity-party and you'll be the only guest." - Earlene Fowler

Diag. Celiac Disease by positive blood test 2/03/2004

Allergies - corn, soy, casein, egg whites and wheat

Morphia Scleroderma

Osteoarthritis

Hypothyroid and Hperthyroid

Essential Tremors

Asthma

Migraines

Fibromyalgia - diag. in 1978 when they called it Fibrositis

PAD Peripheral Artery Disease

Angina and Atrial Fibrillation

Gluten Ataxia

Vitiligo

Scoliosis of the spine (caused by malabsorption and it is horribly painful) This would be enough reason for someone to go gluten free.

Ocular Myastenia Gravis

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Hear Ye! Hear Ye!

I fully agree!

Okay, that's the extent of my rhyming abilities!!!

:P

Hugs

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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I agree too. I know personally I havent been as welcoming towards new people. If I dont have anything to add to their question, I havent been saying hi and welcome.

Thanks for the wake up! :)


Stephanie

Gluten free since October 05

son born severly premature due to

celiac

"True love stories never end" Richard Bach

"Did you ever stop thinking and forget to start again?" AA Milne

If you live to be a hundred, I want to live to be a hundred minus one day so I never have to live without you" AA Milne

Swimming Instructor #2 and Town Crier of Rachelville

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Lisa,

Agreed.

Please, newbies, speak up. Badger us. If we don't respond, post a second post and say, HELP ME. (It will be a slap on the wrist for us).

Please feel free to PM any of us. Honestly. If you see something you've read (that say, maybe I posted about), PM me and I'll try and expand. I can almost guarantee that 99% of board members will agree.

We are here to help!

Laura

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Please feel free to PM any of us. Honestly. If you see something you've read (that say, maybe I posted about), PM me and I'll try and expand. I can almost guarantee that 99% of board members will agree.

We are here to help!

Laura

Lisa

What an OUTSTANDING POST!

Thank you for putting this up again. Never can hear it too often.

There were alot of other great suggestions added ...as usual..!

We have such great minds and experience on this forum...and as we are EACH struggling with our new issues after months and years of gluten-free eating..the search for answers never seems to go away of get easier.

I agree to with LauraJ..if anyone here sees a post from me and wants to pm me PLEASE DO.

I have not been a regular poster for the past 4 weeks but will try harder to at least add a welcome when I come on line even if I don't feel I have any info on the topic posted.

Wishing Everyone Good Health

Judy in Philly


Judy in Southern CA

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Hey Guys & Girls:

I know that I am not the only one who have noticed the addition of many Newbies on Celiac.com. What a wonderful thing that is. People are being dx's and public information has improved. So many have come to us for help.

I have also noticed, that some of their questions have gone unanswered, or minimally addressed. Not everyone will have an answer, but a concerned knock on the door is an opportunity to ease a great deal of anxiety.

Before you go to that comfort thread, brows through the threads and add some input, whether just to say hello and welcome, help interperet their dx numbers, or just add a suggestion for a meal or a safe product.

Make someones day. :)

"be-be-be-beep...This is the end of this public service announcement"

Thank You for listening.

I will be out of town for about a week, in and out...and therefore, I will be not posting. I just did not want to appear hypocritical with not posting, but will continue upon my return. :)


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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Everyone here has been so very helpful... I would be ripping out what's left of my hair trying to figure this thing out on my own...


Robin L Healey, AFPA-CPT

Venus Bodyworks Personal Training

and Lifestyle Coaching

"Ive transformed my body and others...

are you ready to transform yours?"

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I would also add, as a pretty new member myself, that a lot of the best information can be found by doing a search on past topics and seeing if what I need to know has already been covered. Sometimes a new topic won't get as much attention because it's been discussed a good deal in the past. Nothing wrong with asking something a second time, but the depth of the archives here can be a newbies best friend. I know it has mine.

I agree with both bklynceliac and momma goose.

I usually try to post on newbie threads. Some days I don't have much time though.

People can also pm me. I will try to answer or make suggestions on who could help.

I have had pm's before after newbies have read some of my posts.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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i try as hard as i can to make it through to the newbie posts but i am not the person who reesponds to PMs cause i subscribe to all the forums that i am interested in and get the e-mails and if i feel like i should respond i click on the link, i don't have time to read all my PMs so sorry if anyone sends me them i hardly ever get to them.


Molly

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Another relative newbie here, and I just want to say that all you veterans are awesome!

If I hadn't found this message board, I'd still be floundering, instead of making actual headway toward being healthy again. I feel like the collective experience here has knocked 3 years off the gluten free learning curve for me.

Honestly, I haven't posted a new question yet, because every time I have one, a search through the archives comes up with an answer. But I won't hesitate to start a new thread if I need to.

Thank you all!


~Li

Celiac, dx Sep 2006

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Nooner,

I am so happy this board has helped you so much. It really is an amazing source of information, research, and comfort.

Just think, soon YOU will be one of the oldies, answering everyone's questions. It really is a "pay it forward" board. We are all so grateful to be better, we just want to help everyone :)

Laura

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I'm so glad I saw this thread; my mission this morning was to post one of my own just to say thank you to all the veterans - and other newbies - for all of the help you've given me through the gracious sharing your stories and tips...I'm still poring through all the old posts a few pages at a time when I can until I can't see straight!!! I spent a a happy hour or two last night poring through Amanda's Mommy's Blog to see which personal products I can use. You guys and this site are a God-send!!! I've gained many ideas of how to manage having multiple allergies/intolerances, dealing with people who don't understand (and sometimes it's so frustrating to explain things when you're still learning it yourself) ;) and how to navigate the "minefield" of dating ( I just met someone new and have been open about it from the get-go...we go where I know I can eat safely, and that's it for now!)

I wish I could give you all a big hug. I will be PMing some of you, so be forewarned!

Have a wonderful day!


Gluten-free since 10/05 - Positive dietary response with Doctor's validation! - Debilitating migraines, constant dizziness and lightheadedness gone; anxiety & panic attacks, depression, agoraphobia and extreme exhaustion considerably lessoned

Dairy/Casein Intolerant

Soy, Cabbage, Sugar, Peanut, Shellfish, Caffeine, Egg, Potato and Tomato allergies / intolerances

Sporadic reactions to: Poultry

Avoiding all preservatives and additives

Also Multiple Chemical/Environmental Sensitivities

Mitral Valve Prolapse

Pulmonary Embolism - 1999

Dance, when you're broken open.

Dance, if you've torn the bandage off.

Dance in the middle of fighting.

Dance in your blood.

Dance, when you are perfectly free.

RUMI

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As a newbie I so appreciate all the responses to my first posts, you have no idea how much it meant...the day I found this board I was at the depths of depression and confusion and I was very sick, weak and fatigued, I actually sat here with tears running down my face when I started reading...I not only got support and hope from the new posts, but I have learned so much from from all your past posts. I knew nothing about cross contamination until I read it on your board...I had no idea that restaurants offered gluten-free menus and I think the biggest shocker of all was that cosmetics, lotions, shampoo and external products could have an effect on me. THANK YOU ALL SO MUCH. Sissy

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I think back to the days when I first came on here and was shocked that I could get glutened by using the same toaster as the rest of my non-gluten-free family!

We've come a long way, baby!!!

Hugs.

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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I remember when all the now old people were asking all the questions that the new people now have, we've all been there.

I think im member like 30 or soemthing like that


Molly

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i agree with nooner. thanks to everyone for their help. i have learned a lot here. beth

Another relative newbie here, and I just want to say that all you veterans are awesome!

If I hadn't found this message board, I'd still be floundering, instead of making actual headway toward being healthy again. I feel like the collective experience here has knocked 3 years off the gluten free learning curve for me.

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Ah, Lisa, and here you were, afraid of impending fallout from your insightful, very necessary post... :)


Emily

diagnosed type one diabetic 1973

diagnosed celiac winter 2005

diagnosed hypothyroid spring 2006

But healthy and happy! 253.gif

11 year-old Son had negative blood panel, but went on gluten-free diet of his own volition to see if his concentration would improve, his temper abate, and his energy level would increase. Miraculous response!

The great are great only because we are on our knees.

--Pierre Joseph Proudhon (1809-1865)

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Just a thought. I have been here on this forum for about 6 months, and have been diagnosed for about 8 months. What I want to know, is when do you go from being a newby to a veteran? I really should've been a veteran the moment I joined, since I am creeping up to fifty. But being a newby sounds fine, it sort of re-juvenates me. But I guess I should be moving on to veterans status.

Catherine

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Just a thought. I have been here on this forum for about 6 months, and have been diagnosed for about 8 months. What I want to know, is when do you go from being a newby to a veteran? I really should've been a veteran the moment I joined, since I am creeping up to fifty. But being a newby sounds fine, it sort of re-juvenates me. But I guess I should be moving on to veterans status.

Catherine

I think it's just a matter of when you know enough to answer questions. At first, you keep asking questions, eventually you get to the point where you think, "Wow, I know the answer to that!" Then you are one of the veterans. :)


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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