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How To Teach My Family(and Myself) What I Can Eat


Bronwen

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Bronwen Newbie

Im having trouble telling my family and friends(and myself).Is there a good list somewhere I can printout for help buying groceries that I can post on the fridge for them. "Dont buy products containing....Buy this instead..." kinda thing. My poor boyfriends clueless.My parents are useless and Im not sure who to believe. Glutens in this but not in this?but have heard differently from different sources.

Im dairy/soy/gluten free officially as of today


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Mamato2boys Contributor
Im having trouble telling my family and friends(and myself).Is there a good list somewhere I can printout for help buying groceries that I can post on the fridge for them. "Dont buy products containing....Buy this instead..." kinda thing. My poor boyfriends clueless.My parents are useless and Im not sure who to believe. Glutens in this but not in this?but have heard differently from different sources.

Im dairy/soy/gluten free officially as of today

That's a tall order, but not impossible. I myself am avoiding dairy, soy, glutens, and eggs. The simplest thing to do at first is to eat just basic, whole foods. Meats, veggies, fruits. Getting into the habit of reading labels (and decoding them) can be a little overwhelming at first.

Ursa Major Collaborator

Bronwen, check Nini's newbie kit, it has a whole lot of useful information. Open Original Shared Link Scroll down to the bottom to find the links.

KimG Rookie
Im having trouble telling my family and friends(and myself).Is there a good list somewhere I can printout for help buying groceries that I can post on the fridge for them. "Dont buy products containing....Buy this instead..." kinda thing. My poor boyfriends clueless.My parents are useless and Im not sure who to believe. Glutens in this but not in this?but have heard differently from different sources.

Im dairy/soy/gluten free officially as of today

Ursela,

Welcome to the "special club" as my daughter puts it.....she has celiac disease and is 11. She was diagnosed in early July and I talked to friends and family members about this until i was blue in the face. It has not been until her article came out on Nov. 19 in our local paper (has now gone out to over 3,800 newspapers in the USA and still on the wire!) that close friends and family members understood REALLY what i went through with her!!! Please read the article if you have not seen it before and share it with them......they will have a better understanding.

Next, there is not a "simple" list......ever! I was totally overwhelmed in the beginning. Go out and get the book "Living Gluten Free for Dummies" by Danna Korn. It is probably one of the best over-all and easiest books to understand along with easy basic recipes. This helped me more than any other reading material....like i said, it gets overwhelming so try to keep it simple to start with.

Then...find a support group in your area......where are you from? I 'm sure there are folks on this message board that can help direct you in the area.

Here's the link to the article......enjoy! We are getting such pos results from it, but mostly it has helped my friends to understand so much MORE!

Leaving the disease behind

Kim Guthrie goes through several knives making toast for her family in

the morning. And she has to use two toasters. “I also have to use two

different tubs of butter,” she said.

The sender says:

To read the rest of the story, go to

Open Original Shared Link

email: kdzbgone@sbcglobal.net

Best of luck,

Kim

Ursela,

Welcome to the "special club" as my daughter puts it.....she has celiac disease and is 11. She was diagnosed in early July and I talked to friends and family members about this until i was blue in the face. It has not been until her article came out on Nov. 19 in our local paper (has now gone out to over 3,800 newspapers in the USA and still on the wire!) that close friends and family members understood REALLY what i went through with her!!! Please read the article if you have not seen it before and share it with them......they will have a better understanding.

Next, there is not a "simple" list......ever! I was totally overwhelmed in the beginning. Go out and get the book "Living Gluten Free for Dummies" by Danna Korn. It is probably one of the best over-all and easiest books to understand along with easy basic recipes. This helped me more than any other reading material....like i said, it gets overwhelming so try to keep it simple to start with.

Then...find a support group in your area......where are you from? I 'm sure there are folks on this message board that can help direct you in the area.

Here's the link to the article......enjoy! We are getting such pos results from it, but mostly it has helped my friends to understand so much MORE!

Leaving the disease behind

Kim Guthrie goes through several knives making toast for her family in

the morning. And she has to use two toasters. “I also have to use two

different tubs of butter,” she said.

The sender says:

To read the rest of the story, go to

Open Original Shared Link

email: kdzbgone@sbcglobal.net

Best of luck,

Kim

Oooppps! I'm sorry i got your name wrong!....please forgive me, i was looking at the last poster's name!....best, Kim

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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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