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Ok Here Are The Numbers On William's Test...

rgeelan

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rgeelan Apprentice
rgeelan
Posted

TTG IGA was 40 (strong positive)

TTG IGG was <20 (negative)

Gliadin IGA was <20 (negative)

Someone help me inturprit these. Still waiting on the 2nd blood tests but just curious other peoples take on the first test.

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mat4mel Apprentice
mat4mel
Posted

Hi,

From what I have read (and I'm not an expert) I think that the ttg IgA is *the* most accurate for Celiac's.. so it being a strong positive, I would say he definitely has Celiac.

What about his biopsy-- they said it was not celiacs, but gluten allergy? How do they tell the difference? I am just curious because I am debating whether or not to do a gluten challenge and biopsy with my 2 1/2 yr old.

Mel

tarnalberry Community Regular
tarnalberry
Posted

I think the answer depends on what you're looking for. I'm presuming he was eating plenty of gluten before the test in my analysis... If you're looking for a sign whether or not to take him gluten-free, I'd say that's it. If you're looking for proof if he should stay gluten-free, I would say the test is indicative of that but not quite "case-closed" conclusive. The question on where to go from there depends on two things: you're acceptance of the results of the diet as an answer, and your need for a diagnosis given by his doctor and written in his permanent files. There are pros and cons for getting a formal diagnosis (school accomodations and family medical history are pros, possible effects on getting affordable health insurance or life insurance later in life can be cons). And which route you go depends on your doctor as well. Some doctors require a biopsy, some don't.

rgeelan Apprentice
rgeelan
Posted
  • Author

We got William's 2nd blood tests back today and it was TTG IGA 9.6 which is a strong positive again from a different 'more reliable' lab according to the specialist. He said he is 100% certain that William has Celiac. The biopsy showed damage but they didnt think it was to the point of Celiac yet but his blood tests have come back strongly positive twice and so the specialist is convinced. We are switching pediatritions and the specialist will request that the formal diagnosis is Celiacs.. I am waiting on my blood tests to come back also then we will decide to test Emma...

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      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
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