Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Head/gut Connections


Flor

Recommended Posts

Flor Apprentice

Hi all,

Two long-winded questions for you all:

1. My celiac symptoms emerged clearly at exactly the same time as I developed joint pain AND began to have serious problems with anxiety and depression. The research on autism seems to overlap here in terms of making sense of genetic predispositions that are triggered by environmental stressors into auto-immune disorders that affect both head and gut (in my case the environmental stressors I know about were: childbirth, multiple antibiotics, extreme sleep deprivation, long-term nursing, repeated mastitis, and rotavirus).

So I've wound up going down a road of diet changes (no gluten, soy, dairy, or much starch or sugar of any kind) and anti-depressants/anti-anxiety drugs (Zoloft, Lexapro, Effexor -- terrible drug, and now Wellbutrin). The drugs, by the way, seem to have absolutely no effect on the gut symptoms. But I understand that we have way more serotonin receptors in our guts than we do in our brains AND that there's some connection between auto-immune disorders and oxidation within the cells (leading to free radicals, etc) -- so that things like Co-enzyme Q10 might be helpful -- something about being a glutathione precursor and glutathione being something essential to gut functioning AND to neurotransmitter functioning?

It all seems so CONNECTED but I haven't read anywhere about this connection being spelled out for people with Celiac and other chronic gut problems. SO: I'm curious about other people's experiences with anxiety/depression as part of their celiac symptoms. Is there an area on this message board where people talk just about this head stuff? Is there anyone here who knows more about this brain/gut connection? The autism folks are consulting with some pretty interesting doctors at the frontiers of this stuff -- involving de-toxification, chelation, supplements/diet changes. (side note: pretty interesting article in the recent Discovery magazine about new autism research/treatment -- seems very relevant to celiac stuff as well).

2. My second question is: what have people's experiences been with the "Guts and Glory" diet (the link is here: Open Original Shared Link .com/Restoring-Your-Diges.../dp/0758202822). It seems to be a refining and improvement on Elaine Gottshall's stuff. But I tried it for a few days and it made me incredibly sick -- maybe that was detoxification? They swear by the use of liquid CLAY for detoxification, something called HSOs which sound like probiotics that live in the soil (I haven't found any in stores yet), and avoiding all sugars and starches that aren't vegetable or fruit-based. A lot of the gluten-free foods would NOT be recommended by them, for example.

I've found that when I eat a lot of the specifically gluten-free foods -- which are often processed substitute grains -- that I feel less well than when I just eat very little starch of any kind and stick with simple forms of protein and vegetables. Anyone else have experience with this diet? They claim to address problems from Celiac to Crohn's to IBS to candida etc etc.

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MO3 Newbie
Hi all,

Two long-winded questions for you all:

1. My celiac symptoms emerged clearly at exactly the same time as I developed joint pain AND began to have serious problems with anxiety and depression. The research on autism seems to overlap here in terms of making sense of genetic predispositions that are triggered by environmental stressors into auto-immune disorders that affect both head and gut (in my case the environmental stressors I know about were: childbirth, multiple antibiotics, extreme sleep deprivation, long-term nursing, repeated mastitis, and rotavirus).

So I've wound up going down a road of diet changes (no gluten, soy, dairy, or much starch or sugar of any kind) and anti-depressants/anti-anxiety drugs (Zoloft, Lexapro, Effexor -- terrible drug, and now Wellbutrin). The drugs, by the way, seem to have absolutely no effect on the gut symptoms. But I understand that we have way more serotonin receptors in our guts than we do in our brains AND that there's some connection between auto-immune disorders and oxidation within the cells (leading to free radicals, etc) -- so that things like Co-enzyme Q10 might be helpful -- something about being a glutathione precursor and glutathione being something essential to gut functioning AND to neurotransmitter functioning?

It all seems so CONNECTED but I haven't read anywhere about this connection being spelled out for people with Celiac and other chronic gut problems. SO: I'm curious about other people's experiences with anxiety/depression as part of their celiac symptoms. Is there an area on this message board where people talk just about this head stuff? Is there anyone here who knows more about this brain/gut connection? The autism folks are consulting with some pretty interesting doctors at the frontiers of this stuff -- involving de-toxification, chelation, supplements/diet changes. (side note: pretty interesting article in the recent Discovery magazine about new autism research/treatment -- seems very relevant to celiac stuff as well).

2. My second question is: what have people's experiences been with the "Guts and Glory" diet (the link is here: <a href="Open Original Shared Link .com/Restoring-Your-Digestive-Health-Transfom/dp/0758202822)" target="external ugc nofollow">Open Original Shared Link .com/Restoring-Your-Diges.../dp/0758202822)</a>. It seems to be a refining and improvement on Elaine Gottshall's stuff. But I tried it for a few days and it made me incredibly sick -- maybe that was detoxification? They swear by the use of liquid CLAY for detoxification, something called HSOs which sound like probiotics that live in the soil (I haven't found any in stores yet), and avoiding all sugars and starches that aren't vegetable or fruit-based. A lot of the gluten-free foods would NOT be recommended by them, for example.

I've found that when I eat a lot of the specifically gluten-free foods -- which are often processed substitute grains -- that I feel less well than when I just eat very little starch of any kind and stick with simple forms of protein and vegetables. Anyone else have experience with this diet? They claim to address problems from Celiac to Crohn's to IBS to candida etc etc.

Gut and Psychology Syndrome by Natasha Cambell-McBride This book covers many illnesses that involve both the brain and gut.

wowzer Community Regular

I think I may have been set off by a rotovirus. I also had a lot of joint pain. I also have the yeast problem going on since going gluten free. One of the first things I noticed going gluten free is I felt calmer. It is also possible that you aren't absorbing the drugs properly too. I think many more symptoms are connected with celiac than you can imagine. The more I read on here, the more I see symptoms that I've suffered for years. I only went gluten free the beginning of the year. I have many symptoms that have disappeared. I'm still working on the yeast one though. I also read somewhere that anyone with immune disorders should also be food allergy tested. I'm still working on that one.

eleep Enthusiast

I have nothing useful to add here, but I'd be interested in hearing more about the efficacy of Co-enzyme Q10 for such things.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

    2. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

    3. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,369
    • Most Online (within 30 mins)
      7,748

    Carole Eva
    Newest Member
    Carole Eva
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.