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JerryK

Forgive Me For I've Been Bad

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Dear JerryK,

We were wondering where you have been! I am like Darlin' Deb, I do not get tempted to cheat. My health issues caused by it were too severe. I have such a violent reaction, cheating is not tempting. I miss Big Macs and Fries, but I have another way around that. I am going to get those "Top Secret Recipes" books, and use gluten-free substitutions. It will work! I know I can do it! All it takes is a little effort!

Dear Ed_G,

I think you will be surprised what we can have! I have a present for you to welcome you to the forum! I have a list that should really help. This is overwhelming. I went through this with myself six months ago. You spend most of your day cooking and cleaning obsessively. The rest you are on the phone with reps from companies trying to find out what is safe. I decided to save you the trouble!

1. There are a number of things in the regular grocery that are safe. Some things are labeled already. Wal-Mart's Great Value brand has numerous things you can eat.

2. For the love of God use Coupons on items you are allowed to eat. People can get them and print them out online even. Call some of the local stores and ask if they accept online coupons.

3. Check the ads online and in the newspaper. You would be surprised how many people do not do this.

4. Some items like rice flour and rice noodles are safe to buy at the Chinese or oriental market. The merchants are more than happy to help you if you cannot read the label.

Now, here is my list of great things to get you started:

Condiments:

Smart Balance Margerine

Crisco Shortening

Crisco Oil

Pompeiian Olive Oil

Great Value soy sauce

Heinz Ketchup

Lea & Perrins Worchestershire Sauce (all Lea & Perrins Products are safe)

Sweet Baby Ray's Barbecue Sauce

Kraft French Fat-Free Salad Dressing

Kraft Thousand Island Fat-Free Salad Dressing

Pace Picante Sauce

Ortega Salsa

All Classico Red and *White sauces

All Jif Peanut Butters including Smooth Sensations

Welch's Grape Jelly

Cool Whip*

Philadelphia Cream Cheese*

Miracle Whip

Daisy Sour Cream (fat-free, low-fat, regular)*

Snack Foods:

Utz Potato Chips (Found at Sam


Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985

Asthma - 1994

Ovarian Cyst - May 1999

Anemia - 2000

4 More Ovarian Cysts - March 2000

Bloodwork for Celiac - November 2000 negative

Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy

Fibromyalgia - June 2001

IBS - June 2001

Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.

Thyroid Disease - August 2004

Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

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A friend of mine who is a sports medicine doctor swears by her chiropractic for carpal tunnel, as do several violinists I know....They all say that the chiropractor fixes it in 1-3 visits, as opposed to surgery and months of PT.

Might be worth checking out, Darlindeb!

FiddleFaddle--that would be great, I wonder if they can do full body repair! Carpal tunnel is part of peripheral neuropathy, for me anyways, and I'm afraid a chiropractor can't fix it, but thanks for the idea. ;)


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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Jerry,

Welcome back. I had wondered what happened to you. As for me I don't even think of cheating. I remember the few times I have been so dizzy I couldn't stand up and I don't want to feel that bad again.

Susan :rolleyes:


Dairy/Cesain free Oct. 2005

Gluten free June 2006

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I think about cheating all the time, it must be the gene type lol. But the thing is I dont. Last night the kids wanted pizza and i ordered them my favorite pepperonis lovers, and it looked so good. But my ss and I sat and had fruit and veggies. And i was happy with that.

But to be honest I think if i had like 2 days to feel like crap, i think i might cheat just once to remind myself how bad i use to feel. But i never have 2 days to waste on one good thing to eat, so I guess I will never cheat lol

paula


gluten, casein and soy free

on low carb/low sugar diet

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I think about cheating all the time, but my reactions are bad enough that I haven't done it. I've had a few miserable accidental glutenings.

But if I had a once a month free pass, it sure wouldn't be Mc Donalds. I'd be at Woodstocks Pizza for the Pizza buffet. And a pitcher of beer!

Geoff


Celiac - Gluten Free since Late December 2006

Positive Dietary response, biopsy, Enterolab

Lactose intolerant - dietary response test only

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OK, we'll forgive you. I think you've been punished enough.

I'm still getting some accidental glutenings (or caseining or eggings or soyings or yeastings) but slowly that stupid stick is making some impact on me. I've learned that I can not go with things that "may have traces of" or "made with equipment shared with," etc. At the beginning, I thought I could. Either my body is getting more sensitive or it is learning what it is like to feel normal (that is, what I feel like when I don't eat what I shouldn't). I hate to imagine what some croutons would do to me.

Doesn't mean I don't fantasize about something I can't have. Maybe if I'm on death row and given a last meal I can have an Egg McMuffin. I think that contains everything I can't have, and undoubtedly scores of chemicals & additives that are none too good for me. Then I wouldn't mind being executed because I would feel so bloody awful.


McDougall diet (low fat vegan) since 6/00

Gluten free since 1/6/07

Soy free and completely casein and egg free since 2/15/07

Yeast free, on and off, since 3/1/07 -- I can't notice any difference one way or the other

Enterolab results -- 2/15/07

Fecal Antigliladin IgA 140 (Normal Range <10 units)

Fecal Antitissue Transglutaminase IgA 50 (Normal Range <10 units)

Quantitative Microscopic Fecal Fat Score 517 (Normal Range <300 units)

Fecal anti-casein (cow's milk) IgA antibody 127 (Normal Range <10 units)

HLA-DQB1 Molecular analysis, Allele 1 0501

HLA-DQB1 Molecular analysis, Allele 2 06xx

Serologic equivalent: HLA-DQ 1,1 (subtype 5,6)

Fecal anti-ovalbumin (chicken egg) IgA antibody 11 (Normal range <10 units)

Fecal Anti-Saccharomyces cerevisiae (dietary yeast) IgA 11 (Normal range <10 units)

Fecal Anti-Soy IgA 119 (Normal Range < 10 units)

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This reminds me of what my psychologist always said, " I know you feel better, it's the drugs, you can't stop staking the drugs just because you feel better! Then you won't feel better! "

Ironically, I decided that the depression was better than the Drugs.

Now i'm finding that gluten free is helping my depression.... excecpt when I dwell on all the gluten goodies I can't have.


Dx 3/23/07

Gluten free 3/27/07

Intolerant:

Gluten

MSG

Allergies:

Ragweed

Honeydew

Cantalope

Nickel (jewelry)

Dx'd Lymphocytic Colitis 6/16/08

I am a bad silly-yak!

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Hey Jerry,

Sounds like you need to print out this post and tape it to your fridge so in a few months when you feel good again you'll have a constant reminder. I also recommend taping a picture of those adorable girls in your picture (your daughters?) next to it to remind you that it's not just you who's affected when you eat gluten. :)


Gluten-Free since September 15, 2005.

Peanut-Free since July 2006.

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Dear Fiddle-Faddle,

That chiropractor sounds like he could work wonders! I type all of the time. I worry about getting Carpal Tunnel. My mother had it. She ended up having surgery! I am an artist, so you can imagine how much I need my hands. I draw and write constantly. I go through a ream of paper a week!

Sincerely,

NoGluGirl


Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985

Asthma - 1994

Ovarian Cyst - May 1999

Anemia - 2000

4 More Ovarian Cysts - March 2000

Bloodwork for Celiac - November 2000 negative

Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy

Fibromyalgia - June 2001

IBS - June 2001

Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.

Thyroid Disease - August 2004

Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

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Hey Jerry,

Sounds like you need to print out this post and tape it to your fridge so in a few months when you feel good again you'll have a constant reminder. I also recommend taping a picture of those adorable girls in your picture (your daughters?) next to it to remind you that it's not just you who's affected when you eat gluten. :)

I just need intervention. I need come here more than once every two months ;)

Those little girls are my nieces. They are such cuties.... My kids are old nasty teenagers :lol:


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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NoGluGirl,

Thanks for the help. Actually I was in a venting mood last night, and the thread is reminding me of the frustrations of living with celiac. Thanks for being patient with me allowing me to vent.

Ed in Md


banana baby

epilepsy dx'ed at 15

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Howdy, hope everyone remembers me...at least somebody <_<

So it's been several months since I went gluten-free..and I have a problem. My problem is that after a few weeks, I feel NORMAL. I don't feel great, I don't feel terrible...I feel normal.

Didn't you post almost this exact same thing a couple months back? :P

Don't blame it on your lack of official diagnosis, there's plenty of people with the official diagnosis that have the same issues.

At least you get some good strong signals that what you're doing is hurting you, some of us don't get that until we've really gone way overboard. :P

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Hey Jerry...you're baaacccckkk!

Oh yes, the old "gluten reaction amnesia" cheat session. In my first year I succumbed more than a few times thinking "maybe it has gone away." Now I'm not tempted much at all, thank goodness. That will happen with you, too. I guess it takes awhile for the reality of "thou shalt not eat a crumb of gluten ever again" to sink in, and then you finally just accept it. I'm down to just a couple of things that make me consider it from time to time.....but mostly I just think about cheating for a half second or so before rationality sets in. Basically, the consequences just aren't worth it to me any more! I think I've learned to associate the various gluten goodies with the after-effects, and that's enough to discourage me from indulging. :P


CAROLE

-------------

Enterolab 1/2006

IgA & tTg Positive

DQ2-0201 (celiac) and DQ1-0604 (gluten)

Casein IgA positive

Mom has 2 celiac genes

Both kids have a celiac gene.

Lots of celiac disease in my family, both sides.

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Maybe we need to make Jerry some kind of sign that is over the toilet Maybe with one of his little poems from him or his brother, or some new saying, that says ........................... omg i just got brain fog, i cant think of saying, someone help me out

paula


gluten, casein and soy free

on low carb/low sugar diet

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had to eat a choco chip cookie with the kids

"cause your special" has a chocolate chip cookie mix thats just awesome ;) even my hubby says they aren't to bad.

brownies

had those also, hubby thought they were the gluten laced variety... he insists I make more!

Today I bought the stuff to make my own coffee cake, will have to go to work tonight but I am making it when I get home, with enough willpower the stuff we really miss can be found or made.....

can't remember who it was about the pizza.... I found a pizza crust, needs a tad bit of work as it tastes more like a pita bread than a pizza crust but working on it, and found today hormel pepperoni is clearly marked gluten free on the packaging, so you are 2 steps closer to your pepperoni lovers pizza!

I personally am doing my best to adhere to the diet, self diagnosed and all, I feel better and most of my symptoms are slowly, ever so slowly starting to fade, I look forward to the day I can say I feel "normal" as for cravings, yeah I get them but that just makes me work harder to find them that I can eat.


Just my .00000002 cents worth

If I knew what I was doing years ago I would have half a clue today!

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hey everybody,

i totally understand cheating a little. all it took for me was one time with famous amos chocolate cookies (which was doubly bad...dairy and gluten!!!!!!!!!!) and i havent cheated on purpose since. i felt ssssooooo bad i remembered and have no problem remembering how i felt after. sometimes it takes cheating to get you to enough of a bottom to not do it again, or at least way less.

:rolleyes:


Dairy/Casein Free- March 2007

Gluten Free- May 2007

Soy Free- August 2007

Sugar Free- January 2008

Starch Free- January 2008

Egg Free (again!)- February 2008

Sulfur Free- May 2008

Dx'd Lyme Disease and co-infections- December 2007

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NoGluGirl,

Thanks for the help. Actually I was in a venting mood last night, and the thread is reminding me of the frustrations of living with celiac. Thanks for being patient with me allowing me to vent.

Ed in Md

Dear Ed,

You are so welcome! ;) Sometimes you have to complain! We all do our fair share! Whether it is about being frustrated by the disease, or insensitive, inconsiderate relatives (my usual complaint), you have to vent sometime! Letting all stay bottled up until you explode is unhealthy and hinders your healing further. It is easy to feel hopeless on this diet, especially in the beginning! Don't worry, I play around in the kitchen all the time. I have an idea for some ultimate iced brownies. I am pretty confident they will work out. I will send you the recipe as soon as I accomplish it. This will be before the end of the week! :)

Dear confused,

I think that sign above Jerry's toilet would be a great idea! :lol: Also, we should create the Ten Gluten-Free Commandments. He needs to stick them on his refrigerator. Then he has no excuse to forget! :P It will be right there looking him in the face!

Sincerely,

NoGluGirl


Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985

Asthma - 1994

Ovarian Cyst - May 1999

Anemia - 2000

4 More Ovarian Cysts - March 2000

Bloodwork for Celiac - November 2000 negative

Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy

Fibromyalgia - June 2001

IBS - June 2001

Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.

Thyroid Disease - August 2004

Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

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Jerry, I don't have an official diagnosis either, but all I can say is that I must dislike the bathroom more than you. ;):lol: No, I'm never tempted to cheat. I remember the feeling all too well. Besides, IF I were going to cheat, it certainly wouldn't be CROUTONS!

:lol: Right - at least let it be a huge slice of apple pie or something!!!

I have been dealing with being cross-contaminated lately, because I have become complacent (read: lazy), and I guess I haven't quite realized how important it is to avoid all possibilities of contamination.

I actually wear gloves when preparing my children's food (my daughter teased me that I'm doing surgery on their food). I realize that I have to replace all my tupperware and cookware (as if I haven't read that at least ten times on this site :blink: ).

Jerry, I have an extreme reaction to small amounts of gluten (like you), so I know how that feels. How about instead of a slip, we call it a "convincer?" :P

Sheryll

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Howdy, hope everyone remembers me...at least somebody <_<

...

I start to doubt...I start to believe there was nothing wrong, I start to believe it was all in my head.

JerryK,

How could anyone forget you? You're quite unforgettable - in a good way. :P

So anyway, the more times you get sick, the less times you'll be tempted. I'm not celiac diagnosed, but do have a seemingly unrelated auto-immune response. Maybe once a week, I convince myself, if only for a moment, that it's "all in my head" - like I'm chasing rainbows. But, then, I remember what happens when I blow it.

The one I can't seem to shake goes something like this:

I get the 2 second memory lapse followed by disappointment.

This is the one where my eye catches sight of, OR my brain thinks of a cinnamon roll or a hamburger bun and for a moment my brain goes through 5 phases.

Denial: Mmmmmmm

Anger: Crap - I can't do it

Bargaining: Well, maybe just this once. Then, I kill the desire - pull back my hand.

Depression: I feel that let down ... that disappointment - again

Acceptance: Finally, afterwards, I reach acceptance again. It's a simple fact - if I were to eat it, I'd get sick.

This all goes down for me in a matter of seconds. I never eat it, but I go throught this mind trip maybe 4 or 5 times a day still. The bummed out phase sometimes lingers a while. I think that's the dangerous one.

I'm not necessarily comparing this to the death of a loved one, but it sure seems similar.

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hey everybody,

i totally understand cheating a little. all it took for me was one time with famous amos chocolate cookies (which was doubly bad...dairy and gluten!!!!!!!!!!) and i havent cheated on purpose since.

Famous Amos cookies? Really? Gee, I always thought they tasted like sweetened sawdust even when I could eat gluten.

What I loved were Freihofer chocolate chip cookies.

Luckily, there's a great gluten-free recipe that tastes almost exactly like them:

http://foodphilosopher.com/assets/docs/0603gluten.cfm

It's the second recipe down, and it's so amazingly good, I have never had ANYBODY notice they were different from regular Tollhouse home made cookies. This is the flour mix it uses :

6 cups brown rice flour (extra finely ground if you can find it)

2 cups potato starch

1 cup tapioca starch

Enjoy!

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How about instead of a slip, we call it a "convincer?" :P

Sheryll

I like that! :)

Nancy


The person who says it cannot be done should not interrupt the person who is doing it.

~Chinese Proverb

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