Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Think Triggered Celiac For You?


Guest Doll

Recommended Posts

shimo Rookie

Good question.

I guess what triggered mine was Helicobacter Pylori infection. Then with that solved I had a LOT of stress in my life. That just got it worse.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 80
  • Created
  • Last Reply
alamaz Collaborator

Looking back, I've had symptoms my whole life. From the time I was born I had colic (drinking mom's gluten filled breast milk maybe??) and all through childhood I was the kid with mystery illnesses and ALWAYS sick. Took 28 years to figure it out.

Lately I've been wondering if Autism is somehow related to undiagnosed Celiac. The numbers are so close together (150 or something for autism, 133 for celiac). It probably isn't but the thought crossed my mind when I was watching Oprah that day she had Jenny McCarthy on.

VioletBlue Contributor

To answer one person's question I had strep at about age six. Had mono at 26. But the mono was probably a stress reaction in of itself to the death of my sister in law and my mother's last bout with cancer. Symptoms of Celiac didn't start to show up until roughly ten years after the mono.

Violet

bulrush Newbie

First, I do have an Irish background. I traced much of my family tree.

Did I mention I had asthma since I was born? That's another autoimmune disease.

Look at this: my parents said I was a very colicky baby and I do remember having bad stomach pains as a baby (age less than 12 months) and they said nothing would help me sleep except a ride in the car. Odd that I had those symptoms at so young an age. Odder yet that that's the only thing I remember so young. Was any other celiac/gluten allergy a colicky baby?

I also almost died twice from two separate asthma attacks before my 2nd birthday, per my parents. (They don't like to talk about it.)

The worst episodes were when I went camping overnight and thought I had food poisoning at age 12. I was out of school for 4 weeks (I was always in the bathroom) and should have been in the hospital, but I don't think my family had insurance at the time.

At age 15 subtle memory problems surfaced and gradually got worse. I was an A/B student so this surprised me. Doctors said it was stress or "teen hormones" or "growing pains".

Then at age 18 I had my wisdom teeth out. I got bored, and 7 days after having the teeth out, I went jogging, in the snow. Several days later I had mononucleosis and was out for 4 weeks again.

Finally at age 26 I diagnosed myself and demanded my doctor do the test for food allergies. Wheat allergy was positive as was peanuts (I never noticed symptoms) and oranges. After I got the test results I told him he was fired. (I used those words.)

I would like to advise people they make a medical summary of their life. Talk to your parents, ask what kind of baby you were (colicky or not), what kinds of foods would you prefer, any major illnesses and surgeries, any food poisoning, put it all in chronological order, then look at it. Also add when symptoms started.

Were there any severe gastic disturbances? Like from food poisoning, chemo therapy, etc? (Chemo kills the gastric lining from the stomach all the way to the large colon, because chemo attacks fast growing cells. Chemo also attacks your hair, another fast growing cell, and cancer. My ex-wife had it.)

Also do you have any other autoimmune diseases like: asthma, allergies, I believe Crohn's is also autoimmune. Put it in your medical summary, as the date you first started having symptoms. Now see if you see any pattern.

Also put in any major life changes, like parents getting divorced, you moving, you getting married, getting a new house, changing jobs, getting divorced, etc.

JNBunnie1 Community Regular

I slept with my best friend (which was a HUGE emotional step for me to take, ergo very stressful) and my symptoms started the next day. I don't think a bacteria or a virus had anything to do with it.............

bakingbarb Enthusiast
Looking back, I've had symptoms my whole life. From the time I was born I had colic (drinking mom's gluten filled breast milk maybe??) and all through childhood I was the kid with mystery illnesses and ALWAYS sick. Took 28 years to figure it out.

Lately I've been wondering if Autism is somehow related to undiagnosed Celiac. The numbers are so close together (150 or something for autism, 133 for celiac). It probably isn't but the thought crossed my mind when I was watching Oprah that day she had Jenny McCarthy on.

This is very intresting to me. I was the sick kid, ear infections that were killers (my hearing sucks now), daily headaches, fatigue, constipation that one day turned into the big D and killer stomach cramps after eating and asthma.

My middle child was sick his whole life, so was my oldest! My middle was diagnosed with Aspergers my oldest severe ADHD. Looking back I thought it was the abuse we suffered at the hands of my husband. My symptoms got so much worse when with him and during the divorce. One had asthma severe along with allergies, they both had terrible ear infections and sinus and lung problems. My daughter had some of it. Cripes I just realized I could keep going with this list of stuff for us all.

My sons only somewhat consider they might be in the same boat as me, where my daughter is much more open to it.

I wonder what the trigger was? My Dad used to tell me they put me on a formula made from evap milk when I was very young and my mother used to put hi-c in my bottles and leave me for hours. Could have been a very early age that I got my trigger.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.