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Lisa

Stef The Kicking Cutie

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He's a real cutie!

I think it would be neat for you to write about the testing for babies of celiac parents.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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OMG Stef--he's beautiful!! So cute :D

I just got home, checked the board and was so happy to see pictures.

I think the diary is a fabulous idea. Your doctor sounds great, too. :)


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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That's one handsome dude!

Congrats!

Hugs

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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Stef, he is gorgeous!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!


~Angie~

Gluten free since May 2004

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:) Last night I got to hold a 2 month old preemie. He was about the size of a small newborn. It made me really anxious to have the baby. He was so tiny and cute and light and cuddly. His mom had an emergency c-section at 33.5 weeks. Her due date was only two weeks before mine. Now I really can't wait to see little Annika!!!

~Angie~

Gluten free since May 2004

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I was holding Lil silvia yesterday, she is now 4 months old, but she is only 11lbs. She is still very tiny and wearing newborn clothes. She smiles and laughs out loud. I adore her.


~~~~Gluten Free since 9/2004~~~~~~

Friends may come and go but Sillies are Forever!!!!!!!

36_22_10[1].gif

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Austin was 7 lbs. and still in preemie clothes. He was about the size of a newborn, but he definitely looked like a preemie. It was nice getting to hold a tiny baby again. I can't wait until its my own.


~Angie~

Gluten free since May 2004

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Lukas is adorable!!

I think it's a great idea for you to keep track of how things go w/the celiac tests and such. Sounds like a great ped!


Mom of:

Carleigh~ 10 years old, allergic to wheat, milk, peanuts, strawberries, and many EAs. She is currently soy-light and egg-light ~ celiac testing inconclusive by allergist.

Gluten-Free since 10/05 She's a gymnast. : )

Nick ~ 13 years old with no known allergies.

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All this talk about preemies brings back memories.........

Daniel and Connor (my twin boys who are 6 now) were born at 31 weeks gestation, both weighing 3 lbs. 12 oz. each...... They were so tiny!

Thank God, I had the steriod injection when my water broke on the Thursday and I didn't go into labour until the Sunday, so the steriods really kicked in and their lungs were really strong when they were born. They had to stay in the special care nursery for just over 3 weeks, just to gain weight before coming home.....

Hugs.

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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I have dying all weekend because I don't have a computer at home and I have not been at work to look on the computer. Ya!!!!! we have a baby or Stef has a baby.

Welcome little Lukas.

donna

Angie in the spirit of Baseball Batter Up B) Oh ya I guess that won't work for a little girl unless she is going to be a tomboy,


Fecal Antigliadin IgA 21 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 13 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal anti-casein (cow's milk) IgA antibody 12 Units (Normal Range <10 Units)

HLA-DQB1 Molecular analysis, Allele 1 0501

HLA-DQB1 Molecular analysis, Allele 2 0501

Serologic equivalent: HLA-DQ 1,1 (Subtype 5,5)

You can teach an old dog new tricks!!!

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Thanks for all the congratulations! I hardly had the time to get on here. I was wondering how other people do that and then probably with more kids than only one??? That's insanity! Well, something has to give, as I said it before. And it's not the traveling and the business. So it's the computer... sorry guys. I won't be on here that much anymore, but I still think, the diary is a good idea. And I will still do it, just not every day anymore. Actually Luke loves traveling. And he has been pretty good throughout me teaching classes since Tuesday :rolleyes: . Although he had some tantrums during class, it still wasn't as bad as I thought it would be. He is soothable pretty easy, cause he loves to suckle :lol: . I just plug my nipple in and you won't here a peep anymore :lol: . And today I figured out, how to teach, while nursing. That's actually kinda cool B) .


Stef

Next goals:

Results for 2011:

1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting

August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)

gluten-free since 07/21/2004

Shermans Dale, PA

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Stef, glad to hear motherhood is giving you so much joy. At least we know that even if we don't see you, you are well and good :) Take care, Sweetie!


~~~~Gluten Free since 9/2004~~~~~~

Friends may come and go but Sillies are Forever!!!!!!!

36_22_10[1].gif

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Wilkommen Lukas!

I hope you are both resting! Congrats Stef :)


Ryan

Positive blood work May 06

Positive results with diet change

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Stef, haven't heard anything from you in a while. I know you're really busy, but I was hoping to hear how you and Lukas are doing...


~Angie~

Gluten free since May 2004

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Wow, I have a break. Quick, quick, now!!! Well, everybody is doing fine over here. Over a week ago we had some problems, where Lukas seemed to have hiccups for three days straight on and off. So at 2am my husband called the nurse hotline of Capitol Blue Cross. He also told the nurse, that my nipples were so sore, it would make breastfeeding almost impossible. When the nurse heard how long I breastfed each time, she was like, no wonder and told me to only feed 8-12 minutes at a time, then burp him for about 15 minutes, and then switch sides and breastfeed him again for 8-12 minutes, burp again for like 15 minutes and so on. This was the dumbest thing I ever did... <_<

At first it sounded like a good idea, but after a few days he became really cranky and had a lot of crying spells. Then I had a little fight with my husband, cause he had the opinion, my milk must not have enough nutrients and that's why Lukas would cry. I was like bull...., my milk is fine. Lukas gained 8 oz in like one week, there's nothing wrong with my milk. It's the length of the feeding time, that's what's going on. He is just enjoying it so much, that he takes his time :rolleyes: . My husband didn't want to believe me. I was like "How would you feel, if you like to eat for one hour and then all of a sudden after ten minutes I pull the plate away from under your nose? Wouldn't you be cranky and unhappy?" He didn't believe me, so I was like 'whatever'.

I went back on the grazing feedings, just to proof him wrong, and now Lukas really is the happiest baby on the block pretty much. Since today we figured out, how I can carry him in the baby carrier, that I got at my baby shower. This way I can attend to him, feed him and do my stuff at the same time. I also did some research and read an article about how african women carry around their babies the entire day and have them with them during the nights. And the babies feed on and off whenever they want from their breasts. So it can happen, that they feed like 5 to 7 times per hour for 5-7 minutes each only. And studies found out, that they are much happier than other babies. We do this, too. And my nipples are used to it now. They toughened up a lot, so they are almost back to normal now, before they got sore. Thank the lord for Lanolin... lol. And thanks to this a pacifier is not known in our house. I only use it, when I really can't attend to him, like when we're riding in the car, where he needs to stay buckeled up. Or, when I give or take classes. Other than that, there's no need for a pacifier. A pacifier just makes my life comfortable. It does not give him the love of a human being. And he knows, he's being ignored. He can feel it. So away with that thing unless there's really no other choice left. :P


Stef

Next goals:

Results for 2011:

1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting

August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)

gluten-free since 07/21/2004

Shermans Dale, PA

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Hi Angie,

I just looked at your picture. That is so cute. She really looks a lot like you.

People say, that Lukas looks like me. I can't see that yet. Actually I don't think he looks like hubby or me, more a little like both of us. People only say, he looks like me, cause they never saw my husband before. There are already certain features that he has from both of us. He definitely has the slide nose from me and the long eye lashes (blink blink). He will be a pretty boy heart breaker, when he's 16, hehe. He has those huge irises kinda like Elijah Woods type thingy :lol: . I think, he also has the eyes from his dad. His dad has glasses. The way his hair grows, the pattern, and the forehead he definitely has from his dad also. His forehead is a little off, like a neanderthal... lol. But his is not as extrem as the one of his dad. His is more straight up, instead of falling back. My husband said, Lukas would have my ears as well. I hope not, cause then he only hears, what he wants to hear :lol: . But he definitely, 100 %, has my mouth, which is even worse than having my ears, cause I can't shut up, hehe. Enough with joking. Yeah, he looks a little like both of us.

Great, then when he grows up, he looks like a pretty neanderthal with glasses, who can't listen, but tells you his opinion, even if you don't want to hear it. Well, nevertheless, I think, he's cute as heck. Makes me want to cuddle him all day long :P


Stef

Next goals:

Results for 2011:

1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting

August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)

gluten-free since 07/21/2004

Shermans Dale, PA

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Stef!

Glad you found a minute and were able to post. I loved hearing all about Lucas and how the two of you are doing.


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Thanks for the update Stef. Sounds like everything is going well with you three. :)


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Glad everything's going so well for you, Stef. I'm also glad that you've learned to trust your instincts. Nursing 8-10 minutes may be what's generally accepted, but we all know that averages aren't right for everyone. :) Annie prefers nursing for about 15 minutes per feeding and only on one breast per feeding. For us that's what works.

Do you have a sling? If not, I highly recommend one for when you need to get things done. I've learned how to nurse and everything while wearing her. Its wonderful. I was too cheap to buy one with Tori and I'm totally regretting that right now. Life is SO much easier with the sling. :) Especially with a fussy, gassy baby.


~Angie~

Gluten free since May 2004

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