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Malabsorption

Nathan's mom

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Nathan's mom Apprentice
Nathan's mom
Posted

My son has been gluten-free for six months. It took him four weeks for the poop to get better, but is still bulky and floating - still only going every other day. Anyway, behavior has been everywhere with mood swings. One day really hyper/silly but happy and the next fragile. I don't know how he could be getting gluttened as I am a stay-home mom and make all his bread. Went back to the doctor (again) and said I wanted more blood work - ferritin, vitamins, etc. She added a thyroid as well. Thyroid is fine as well as iron, but 10 of 22 other items are flagged - calcium, folate, serum protein, sodium, etc. Even though some of the markers are for liver function, they can also stem from intestinal inflammation, etc. I would have though he would be healing up better by now. I'm wondering whether there is an underlying bacteria problem. We're seeing a ped. on Mon. I'm just glad I took him back in - cause I knew my boy wasn't feeling right. Nathan is 4. Any feedback is appreciated.

Debbie

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Guest j_mommy
Guest j_mommy
Posted

Are you a totally gluten-free house???? Could he be getting CC'd or hidden gluten from something???

Are they going to work to fix the other problems?

also some don't get better right away. Some take longer than 6 months....however it sounds like he is still getting something or has some other underlying conditions!

Good Luck and I hope your little one feels better soon!!!!

gfpaperdoll Rookie
gfpaperdoll
Posted

If your house is not gluten free are you cooking with wheat flour?

Have you double checked everything that you are feeding him?

He might need to be dairy free also. Have you thought about testing for all of that thru enterolab.com?

I really think that if your house is not gluten-free then that is the problem. It is hard...

Nathan's mom Apprentice
Nathan's mom
Posted
  • Author

We are mostly gluten-free. My husband and I have oatmeal in the mornings - use the same pan, etc. everyday. We also have premade tortillas for when it is just us snacking. Other than that, we all eat the same bread and don't have any other cracker/snack type items than gluten-free. I've called twice on most items we eat. gluten-free soy sauce, salad dressing, etc. Of course, it could be CC from corn chips, etc., but I do think it is an underlying condition that needs to be looked into. I don't know what the ped will do, but it seems like something should be done and will be done further since the blood test suggests something is awry.

gfpaperdoll Rookie
gfpaperdoll
Posted

most corn chips are okay. sounds like your house is pretty safe. Are you making sure that you are washing your hands after you touch a flour tortilla before touching his plate/food?

what about play doh? Lotions? Shampoo? your hand cream & makeup? Toothpaste? BTW they say that children should just brush with water & then floss. I hate the chemicals & artificial sugar in toothpaste. I switched to baking soda...

Is he getting something at a friends house?

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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