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Help Me Interpret My Enterolab Results?


Sheesh-

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Sheesh- Newbie

Hello everyone. I'm new here. My username is a result of having typed in 5-6 different names and having them all be taken. In frustration I said, Sheesh!

Here's my story, I'll try to keep it brief. Saturday I'll be 38. I have 3 children. The youngest is 8 months. His birth was long and complicated. I was hospitalized 5 days. While hopitalized I contracted an intestinal infection called C dif. It took 3 months of antibiotics to get rid of it. After that I could tell things still weren't right. A couple months of making excuses and then I eliminated gluten and all was well again. Challenged accidentally once, very ugly. I know I should be gluten free and that's not a problem for me. I'm also vegan for 9 years.

My breastfed 8 month old was having GI distress and when I went gluten free his symptoms cleared. I have occasionally suspected gluten intolerance in my other 2 children. The oldest had blood tests that came back normal, as did mine.

Here are my results. I'm DBQ1 and DQB3, right? I think I want to have the kids tested. Do you think I should? DH is saying he doesn't want to be tested because he doesn't want it to be true. ;p Oh, also, my mom has terrible symptoms and her sister just died of colon cancer at 62.

A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value

Fecal Antigliadin IgA 14 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 10 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal anti-casein (cow


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kevieb Newbie

personally, i wouldn't assume anything based on those test scores. there is alot of controversy over enterolab-----and your test results are low compared to what most people seem to get from them. your Ttg levels, which would indicate celiac disease are normal and your antigliadin levels are only one point above normal----which could be caused by a number of different things. also, enterolab does not test total Iga serum levels.

gfpaperdoll Rookie

& then again there are some doctors and a lot of people that use Enterolab & like them very much.

You have two gluten intolerant genes. Which means that it comes with all the celiac problems in addition to possible neurological problems and other food problems.

You are probably not going to be able to eat dairy - ever - is my experience with the gluten intolerant genes, whereas it seems the celiac gene people have a larger portion of people that can tolerate dairy.

If you have not other food problems - you are lucky & maybe because you already have healthy eating habits.

I would get the kids tested at enterolab. That is the only place that is going to pick up the gluten intolerance. If you are gluten intolerant you will suffer symptoms, & it can develope into full blown celiac with villi damage at some point, maybe when they are old, or it might never happen. Or they just might get cancer before the villi are gone, if they are still eating gluten. I am double DQ1 & my mother died of colon cancer...

Sheesh- Newbie

It was my understanding that it doesn't matter how high or low the score is if it is in the 10+ range. It's like a pregnancy test - either you are or your aren't.

I've wondered if my levels were low because I only had symptoms for a couple of months before being tested and was gluten free for a month before testing. So maybe my body didn't build up really high levels yet.

gfpaperdoll Rookie

Sheesh, yes that is so & yes probably because you have not been sick for years & years before you got smart & went off gluten - now that gluten is on people's radar - that will be happening more & more

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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