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I Need Help!


NoSugarShell

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NoSugarShell Explorer

Ok...probably long and boring but I need your help. I have been having having alot of problems probably all my life but everything has gotton worse in the last few years. I have suffered from depression, anxiety, joint pain, fatigue, low energy, brain fog, insomnia, etc. I could go on and on. I have taken every anti-anxiety and depression medicine out there. Well, I really wasn't getting anywhere with doctors so I decided to try and figure things out for myself. About eight months ago I called my primary care doctor and asked them to send me copies of my labs. Once I got those and had them interpreted I realized I have an underactive thyroid. I have changed my lifestyle big time. I don't drink, smoke, take any prescriptions or OTC meds. I exercise and eat right. I have kept a food diary for years but more detailed for the last eight months. I had hoped once I found out about the underactive thyroid that I would be able to fix it. No such luck. I have found quite a connection with gluten and my symptoms and also with my body temps. When I eat gluten my temps will go down and stay down for days.

Okay, so here is my point. I also recently found out that Celiac runs in my family. Could Celiac have caused my thyroid problem? I have never been tested but I see the connection so strongly. Since I haven't been tested there are times when I act like there isn't a problem at all and eat what I want but pay the price. The fastest symptom I notice is joint pain in my left knee.

Does anyone know of doctors in the Dallas/ Fort Worth area that can test me for Celiac and help me with my thyroid at the same time? Also, I do not have insurance so it has to be someone willing to let me pay cash for reasonable prices. Is there a lab I could send off and get results back?

Any help at all would be greatly appreciated. I am just at the point where I can't deny this any longer. This past weekend was the worst. I allowed myself to eat out on Friday and by Sunday I was a raging lunatic.

Sincerely,

Michelle


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gfpaperdoll Rookie

Enterolab.com is in Dallas - I think they are great & a lot of people use them.

You could also contact the Dallas celiac group, they are very active group & I am sure have doctor info.

soory I am not giving you a link - I am at the office...

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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