Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Whats The Difference Between Celiacs And Gluten Intolerance?

Krystens mummy

Recommended Posts

Krystens mummy Enthusiast
Krystens mummy
Posted

Hi all thanks for all the help with my last questions about my daughters test results. I have a few other questions for you though. My GP says that most people that are gluten intolerant do not have celiac disease. Does anyone know if the symptoms are the same apart from bowel damage.Does the body still fail to absorb nutrients and can you have dermititis herpetiformis with a gluten intollerance? I'm not sure if my daughter has the dermititis but she has atopic eczema on her face when she eats gluten and if she is exposed to gluten for long enough she gets a chickenpox like rash on her body. The blisters pop on their own (SHE HASN'T LEARNT HOW TO SCRATCH THEM YET!) and go flat then the skin goes scaly not red though and it is intensely itchy for her. However it did clear quite quickly though and ive heard that with DH it can take months

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

There are lots of good arguments on this very subject here on this board!

Many insist that the two are totally different due to genetics.

Many insist that gluten intolerance (regardless of genetics), left untreated, usually leads to the very things that are considered "gold-standard" diagnostic standards for celiac disease: dermatitis herpetiformis and villi damage.

I'd be very interested to hear what your daughter's ultimate diagnosis of the chicken-pox-like rash turns out to be. I had a very similar rash (just like you describe only it was PERFECTLY symmetrical on both arms) that I am sure was DH (and it did resolve quite quickly), but by the time it was biopsied, I had been on prednisone for 10 days and off gluten for a month, so that completely screwed up the results.

If your daughter's rash turns out to be something other than DH, I'd love to know what it is, in case I should be researching another type of rash!

I'm wondering if DH is caught and correctly diagnosed very, very early (within days rather than months or years), it might not resolve much, much more quickly?

Krystens mummy Enthusiast
Krystens mummy
Posted
  • Author
There are lots of good arguments on this very subject here on this board!

Many insist that the two are totally different due to genetics.

Many insist that gluten intolerance (regardless of genetics), left untreated, usually leads to the very things that are considered "gold-standard" diagnostic standards for celiac disease: dermatitis herpetiformis and villi damage.

I'd be very interested to hear what your daughter's ultimate diagnosis of the chicken-pox-like rash turns out to be. I had a very similar rash (just like you describe only it was PERFECTLY symmetrical on both arms) that I am sure was DH (and it did resolve quite quickly), but by the time it was biopsied, I had been on prednisone for 10 days and off gluten for a month, so that completely screwed up the results.

If your daughter's rash turns out to be something other than DH, I'd love to know what it is, in case I should be researching another type of rash!

I'm wondering if DH is caught and correctly diagnosed very, very early (within days rather than months or years), it might not resolve much, much more quickly?

Krystens mummy Enthusiast
Krystens mummy
Posted
  • Author

You might be confused with what I just did ignore it I think I pressed the wrong button. I will certainly let you know if she gets it again and we find out what it is. That may not happen though because we have already started a gluten free diet.

tazallie Newbie
tazallie
Posted

Hi,

This is a topic that really caught my eye. In April I put my daughter on a gluten-free diet after she had the blood test for Coeliacs, but before we got the results. The change in her was dramatic and after the result came back negative I tried her back on gluten with bad results, so I went back to gluten-free diet and went back to my fantastic GP. He agreed she had improved and we decided to leave her on it for a month to see if the improvement contiuned...which it did

Well to cut a long story short he refered us to a specialist who agreed she was Gluten intolerant but he was unsure if she was coeliacs as the IGA??? antibody test hadnt been done (I think thats right the one that can effect the outcome of the test???) anyway he explained that there is no difference in the two except that an intollerance may disappear over time but a ceoliac will have it for life, he explained that you have to be Gluten intolerant to have Coeliacs but you dont have to have Coeliacs to be Gluten intolerant. In fact only something like 10% of Gluten intolerants will have ceoliacs (I think that was the right figure)

Anyway by DD has her biospy in march after we do the challenge so all I know is she is Gluten intollerant and has improved dramatically since april!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748
    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.