Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Allergies


alt12867

Recommended Posts

alt12867 Newbie

I am looking for someone out there who has a teenager who is suffering from major food allergies.

I have a 16 yr old daughter who, for the past 2 yrs, has been through hell on Earth. It all started when she began to experience abdominal and intestinal pain. She also had some pain under her right rib which seemed, to me, to be coming from her gallbladder. I first took her to her Pediatrician. That was a waste of time. I then tried GYN to see if it was female related.(yet another dead end) We took her to a GASTRO doc who performed a Colonscopy and EGD. All the test came back negative of Chrons or Celiac. Still no answers. I met a nurse who suggested we get a HIDA test done. So I took my daughter to a General surgeon who ordered the tests. The tests showed that her gallbladder wasn't

working and the doc recommended removal.Once removed things seemed better for a while. Then all the abdominal and intestinal issues came back. By this time we were at witts end. It was suggested we get another opinion from another Gastro doc. He suggested we see a shrink. I love it! When they can't find a diagnosis they suggest a shrink! So I took her. When I explained all she had been through, he said we needed to see an ENT/ Allergist. Apparently all the symptoms my daughter experienced were the same symptoms the Psychologist's son had experienced. So off we went to the allergist. She was tested and he found that she was allergic to soy, egg, wheat and chicken. All the tests that this doctor did are not covered by any health insurance's. He did provocation tests by giving her certain foods sublingually. You have do several days of eliminating the suspected foods then eat alot of them prior to testing. He was able to pin point the major allergies and symptoms of each allergy. Soy seems to be the worse one. She can feel the effects of soy as soon as it is swallowed. Egg gives her nasuea and some intestinal pain. Wheat gives her a headache and makes her fall asleep. The doctor was able to make drops from soy and wheat that neutralize the symptoms. It doesn't cure the allergy but at least she can try to have a normal teenage life. There aren't many docs out there who look at things holistically. We were forunate to find our doc. But now due to his retirement for some orthopedic problems, we are in search of another doc who actually gets this food allergy stuff. But however,

I can say just knowing what to avoid has made her life better.

I hope something I've said has helped some other mom or dad out there. You are not alone!

What's hard is reading all the labels. There are so many things not listed on them. I had no idea that MSG or mono and diglycerides were derived from soy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfgypsyqueen Enthusiast

Glad to hear you found the source of the problems. Your school system might be able to pass your contact info along to other parents whose kids have food allergies. Doubtful they will give you their names. Otherwise check with the hospital, local allergists, etc looking for support groups. R.O.C.K. is usually pretty strong. You may not find someone with the same allergies and issues, but it still might help. My kids appreciate the friends who have food allergies too. Makes them feel less alone.

Guest Doll

I'm not a teenager anymore (I wish! :)) or a parent of a teenager but I DO have multiple food allergies in addition to Celiac. Feel free to PM me if you have any questions.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Accuracy of testing concerns

    2. - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Accuracy of testing concerns

    3. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    4. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

    5. - Teaganwhowantsanexpltion replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,237
    • Most Online (within 30 mins)
      7,748

    Nancy MacManus
    Newest Member
    Nancy MacManus
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
    • Teaganwhowantsanexpltion
      Thank you I will i have been on a strict gluten free diet ever since I got diagnosed but sometimes places lie about there food so there r some things that do get contaminated which causes me to throw up on end for several hours until I can't hold myself up anymore 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.