Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Have My Dd Tested?

Daxin

Recommended Posts

Daxin Explorer
Daxin
Posted

We've just had DD at the doc for the third time this year for the same thing, and stupid ear infection. he's finally talked about having tubes put in, and we are thinking about it.

The question comes from when he said she seems to be producing a lot of extra mucus, and this is leading ot the chornic ear infections. Has anyone out there heard of excess mucus prodution being a symptom of Celiac?

Our daughter and my wife's son have also had presistent gut problems their whole lives swinging between constipation and "the scoots". If we can get her in to see the doctor who helped dx me, shoudl we? Should he also run the test on my wife?

She has no other symptoms of celiac disease, and our family doc doesn't want to run the tests, and thinks the gluten-free lifestyle is rather unhealthy (with which we both disagree). I displayed no symptoms until I was in my late 20's. If I did pass it on to her, whill the symptoms come out right away, or will they wait until she's older?

We're running out of ideas.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kdaley Newbie
kdaley
Posted
We've just had DD at the doc for the third time this year for the same thing, and stupid ear infection. he's finally talked about having tubes put in, and we are thinking about it.

The question comes from when he said she seems to be producing a lot of extra mucus, and this is leading ot the chornic ear infections. Has anyone out there heard of excess mucus prodution being a symptom of Celiac?

Our daughter and my wife's son have also had presistent gut problems their whole lives swinging between constipation and "the scoots". If we can get her in to see the doctor who helped dx me, shoudl we? Should he also run the test on my wife?

She has no other symptoms of celiac disease, and our family doc doesn't want to run the tests, and thinks the gluten-free lifestyle is rather unhealthy (with which we both disagree). I displayed no symptoms until I was in my late 20's. If I did pass it on to her, whill the symptoms come out right away, or will they wait until she's older?

We're running out of ideas.

kdaley Newbie
kdaley
Posted

I have always heard that first degree relatives should always be tested. The chances are so much higher!! Now, for my opinion on a possibly "touchy" subject - I don't think I like the doctor you discussed very much at all. Your family doctor knows that you cannot tolerate gluten, then tells you that he or she thinks a gluten-free lifestyle is "rather unhealthy." My diet is much healthier without gluten. Just for example, I do not get the food cravings to eat excess breads anymore (and that is very unhealthy). If it were me, I would be off finding a much more supportive doctor!

For the others in your family, why not? If all of you have the same problem, it would be certainly easier to manage your household gluten free, and remember although statistics say 1 in 100 people have celiacs, 15% of the population is gluten intolerant. Anyway, good luck - hope this helps, Kelly

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,056
    • Most Online (within 30 mins)
      7,748
    Paul 777
    Newest Member
    Paul 777
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Oral thrush question

      By knitty kitty · Posted

      Thiamine has antifungal properties.  The body uses thiamine to keep bacteria and yeasts from overgrowth in the digestive system.   Fluconazole use can cause thiamine deficiency.   Supplementing with thiamine in the form Benfotiamine would be beneficial as Benfotiamine promotes intestinal healing.   Thiamine and the other B vitamins tend to be low in Celiac due to malabsorption.  Talk to your doctor about supplementing vitamins and minerals.
    • Scott Adams
      Nutrient deficiencies despite normal MARSH and strict gluten-free diet

      By Scott Adams · Posted

      Welcome @Natalia Revelo, your experience is profoundly difficult and, sadly, not entirely unique within the celiac community. It's the frustrating reality of "silent" or ongoing damage that isn't captured by the MARSH score alone, which only measures active villous atrophy. Your normal biopsy suggests your diet is preventing the classic autoimmune attack, but it doesn't mean your gut has fully healed or that other issues aren't at play. The inflammation from your newly discovered milk and egg allergies is a huge clue; this constant allergic response can create a low-grade inflammatory environment that severely hampers nutrient absorption, effectively creating a "leaky gut" scenario independent of celiac damage. This is likely why your iron stores deplete so rapidly—your body is both unable to absorb it efficiently and may be losing it through inflammation. While the functional medicine path is expensive, it's clearly providing answers and relief that traditional gastroenterology, focused solely on the gluten-free diet and biopsy results, is missing. To move forward, continue the gut-healing protocols your functional doctor recommends (perhaps exploring alternative options to glutamine that won't irritate your cystitis), maintain your strict avoidance of all allergens and irritants, and know that true healing is a multi-faceted process. You might seek a second opinion from a different gastroenterologist who is more knowledgeable about non-responsive celiac disease and the complex interplay of food allergies and micronutrient absorption, but your current path, while costly, seems to be leading you toward the steady health you need.
    • knitty kitty
      Blood results

      By knitty kitty · Posted

      Have you had a DNA test to look for Celiac disease genes?  If she doesn't have any celiac specific genes, look for another explanation.  If she does have Celiac genes, assume they are turned on and active Celiac disease is progressing.  All first degree relatives (mother, father, siblings, children) should be genetically tested as well.   Sometimes blood tests are ambiguous or false negatives if one has anemia, diabetes or thiamine deficiency.  Certain medications like antihistamines and steroids can suppress the immune system and result in false negatives or ambiguous results on antibody tests.  
    • Heatherisle
      Blood results

      By Heatherisle · Posted

      That was just the visual report, so need to wait for confirmation or otherwise from the results. They did take a biopsy from the upper end of the duodenum(D1). D2 looked unremarkable on the camera. Just wish we didn’t have to wait so long for the results as she’s naturally a very anxious person. But thanks so much for taking the time to answer me
    • RMJ
      Blood results

      By RMJ · Posted

      When you say the endoscopy showed potential flattening and atrophic villi, Is that the visual result and you’re still waiting for the pathology report on the biopsies? It is quite possible to have the endoscopy look ok and the biopsies show celiac damage. That happened at my last endoscopy. It is also quite possible to only have damage in some areas. Hopefully her doctor took biopsies from the areas with potential flattening and atrophy. 
×
×
  • Create New...