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Weight Gain

HOPE1968

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HOPE1968 Newbie
HOPE1968
Posted

I am being tested for Celiac...I believe I may have it based on the symtoms listed on various web pages...I have almost all the gastro symptoms, mouth and tongue sores, itching, depression, menstral problems, tinkling in hands and feet and many more I can't think of right now...

My only difference in the symptoms is that I have not lost weight, I am gaining...Due to my stomach swelling...I look to be about 8 months pregnant and people have asked me when my baby is due...This also happened last year and lasted for about 6 months, then just as suddenly as the weight came on, it dropped off...Then suddenly on Dec. 22nd (this past Dec.), I litteraly could feel my jeans getting tighter around my waste...This is not easy for me as I lost 130 lbs. about 5 years ago and couldn't even tolerate me gaining a pound...

Just wondering if anyone else has had that problem and was still diagnosed with Celiac? I am almost at my witts end...

Could someone PLEASE help me!!

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Cherry Tart Apprentice
Cherry Tart
Posted

Weight loss is a classic symptom, however, it has been shown that many people actually gain weight with Celiac disease. Toxins and gas in your body begin to collect along with swelling due to the gluten irritating your system. Have you been on the gluten-free diet for very long? After 2 months of the gluten-free diet, my distended stomach went down and the myriad of other ailments began to subside. However, the healing time-line is different for everyone :)

HOPE1968 Newbie
HOPE1968
Posted
  • Author

I have not started the gluten free diet YET...The doctor told me to wait until all the tests have been completed...Even if it comes back negative, I'm still going gluten free---because I really feel gluten has something to do with my problems, based on everything I have read...

Thanks so much for your response!!!

Cherry Tart Apprentice
Cherry Tart
Posted

Your symptoms should calm down once you go on the diet for an extended period of time. Just be diligent and don't cheat! ;) You may want to search the posts for advice on getting started on the diet - there is a bit of prep work. They diet may seem daunting at first but, don't get discouraged. It will seem like second nature before you know it - and you'll feel so much better too! ;)

Guest digmom1014
Guest digmom1014
Posted

Sorry, to hear that-people shouldn't ask if your pregnant. Unless you're sure-and even then-people shouldn't be so nosy-how rude!

I went gluten-free without the diagnosis and at about 2 months my distended tummy went down. You also may see some other changes as well. I think my body was just accumulating gluten in the weirdest places. My arms look more defined then my pre-gluten-free days. My skin, hair and fingernails look healthier. I'm sure gluten effects a lot of parts of us but, since your tummy is the most noticeable, you will be happy when you do, if you think that is the trouble.

gfpaperdoll Rookie
gfpaperdoll
Posted

Be sure to get blood work done to check your vitamin & mineral levels...

Weight gain is common...

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  • Recent Activity

    1. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    2. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results. Thank you
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      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to...
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      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response.
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      Small Bowel Resection 12 inches

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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