Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Soon!

cdog7

Recommended Posts

cdog7 Contributor
cdog7
Posted

It's almost time for my endoscopy! Finally! My deal with myself is that I'm going gluten-free after the test is done, before I even get results. Because I already know it helps, I just want to see if I can get a diagnosis. My GI is going to do an upper endoscopy and a colonoscopy with biopsies, probably because my blood test was negative for celiac so he naturally wants to check for any other problems.

So I've been eating some gluten every day (never went totally gluten-free yet) just to help ensure an accurate test. As of now, I look like hell! My stomach is distended (never know which clothes will fit in the morning), I have dark shadows under my eyes, and I just look like a zombie. I even move slowly like a zombie. I bet if I muttered about brains people would run. And they'd get away too because I'm too tired to chase anything. :blink:

I'm just looking forward to feeling better! I feel worse every time I eat glutenous food, so I think the diet will help. A lot. If they can actually diagnose me too, even better. But if not, at least I'll have tried for it, and maybe some day they'll have a test for celiac that doesn't suck. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Good for you to going gluten-free as soon as you've had the endoscopy. I bet you'll start to feel and look better very quickly.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Celiacpartner
      - Celiacpartner replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      2

      Could this be a new intolerance

      He’s noticed it after having a few different kinds of nuts and nuts on top of a gluten free nut bar. and it’s happened after having some fresh caught fish, and tonight from packaged plain salmon from the supermarket. He has stomach cramps and feels the need to vomit to try and relieve the symptoms.
    2. trents
      - trents replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      2

      Could this be a new intolerance

      Welcome to the forum, @Celiacpartner! Does this happen with all nuts and all fish or just certain kinds? And are we talking about products that are advertised as gluten-free eaten at home or things served in a restaurant?
    3. Celiacpartner
      - Celiacpartner posted a topic in Food Intolerance & Leaky Gut
      2

      Could this be a new intolerance

      Hello. My husband was diagnosed with celiac disease 30yrs ago. He has a gluten free diet, with the odd bit of contamination when eating out or eating something that says may contain, which he probably shouldn’t but he seems to tolerate his diet ok. The last few times he has eaten fish and larger servings of nuts he has noticed stomach pains like he used t...
    4. trents
      - trents replied to Skydawg's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Gluten exposure when trying to conceive

      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat...
    5. Skydawg
      - Skydawg posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Gluten exposure when trying to conceive

      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure? I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,347
    • Most Online (within 30 mins)
      7,748
    Berin
    Newest Member
    Berin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Celiacpartner
      Could this be a new intolerance

      By Celiacpartner · Posted

      He’s noticed it after having a few different kinds of nuts and nuts on top of a gluten free nut bar. and it’s happened after having some fresh caught fish, and tonight from packaged plain salmon from the supermarket. He has stomach cramps and feels the need to vomit to try and relieve the symptoms. 
    • trents
      Could this be a new intolerance

      By trents · Posted

      Welcome to the forum, @Celiacpartner! Does this happen with all nuts and all fish or just certain kinds? And are we talking about products that are advertised as gluten-free eaten at home or things served in a restaurant?
    • Celiacpartner
      Could this be a new intolerance

      By Celiacpartner · Posted

      Hello. My husband was diagnosed with celiac disease 30yrs ago. He has a gluten free diet, with the odd bit of contamination when eating out or eating something that says may contain, which he probably shouldn’t but he seems to tolerate his diet ok. The last few times he has eaten fish and larger servings of nuts he has noticed stomach pains like he used to get when he eats gluten. After 30yrs of getting it right and knowing what he can and can’t have with essentially no major instances, this has thrown us. Could this be a new intolerance or an allergy and has it happened to anyone else after so many years? thanks
    • trents
      Gluten exposure when trying to conceive

      By trents · Posted

      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Gluten exposure when trying to conceive

      By Skydawg · Posted

      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
×
×
  • Create New...