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Help With Testing Methods

scottyfeelsick

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scottyfeelsick Rookie
scottyfeelsick
Posted

Hi I am new to all of this, so if i'm in the wrong place or something just let me know. This is my first post on a forum(of any kind at all). Any way my question is about my test. I got an enterolab test, and i tested positive for IgA with a 51. and positive Transglutaminase IgA with a 29. my malabsorption was about 1000. HLA-DQB1 Molecular analysis, Allele 1 0302, HLA-DQB1 Molecular analysis, Allele 2 0501, Serologic equivalent: HLA-DQ 3,1 (Subtype 8,5). So I have now been gluten free for about a month after about 10 months of feeling pretty bad. I also am dairy free (temporarily I hope), and I am trying to go easy on corn and soy, all this because I have heard its best to at first. Even though I have not been allergic to anything in my entire life, and I have always had a bit of an "iron gut".

How are these tests? should I get a blood test or a biopsy? I have had a couple good days since going off of gluten, but a bunch of real bad days as well. I am really carefull about CC and I cook all my own food usually from scratch, new frying pan, new cutting board, my own sponge and dish towel, no envelopes, chapstic, ect. I am really carefull. With my enterolab results, does it mean that I have celiac for sure, should i try to get a blood test or biopsy since I am not feeling all that great yet? could it be something else that makes the enterolab tests look like that? I hear people say that if you feel better, don't get any more tests because your body already told you what you need to know, but I don't feel alot better. Only a couple days have I felt really good.

Also, I was put on thyroxine at the same time I went gluten free,(about a month ago) becuase of a low thyroid function. I thought maybe my good days could have to do with that as well?

thanx so much for any insight that anybody might have for me. sorry for such a long post.

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horsesjapan Apprentice
horsesjapan
Posted

I'm kinda new to this forum, so I can't help much except to say that if you plan on going to a dr to get a blood test/biopsy, I wouldn't go gluten free yet. And I think celiac and thyroid issues can go hand in hand. Some have posted that they felt worse before they felt better when they went gluten free, like going through withdrawl symptoms.

I don't think the enterolab results can diagnose celiac, I think you need a positive biopsy for that. If you search on here for enterolab you can read what others have said about why the test isn't generally accepted by dr's (doesn't mean the test isn't reliable or anything). If you feel you need a diagnosis by an MD, then I would make an appt and go back to eating gluten. If you don't feel you need a diagnosis by an MD, then I'd continue gluten free/dairy free, and I'd cut out the soy entirely too (my ds is allergic to dairy and soy and wheat, supposedly they all have components in their proteins that are similar).

So far, reading these forums has given me most of the info I've needed. I hope you find answers soon! Good luck!

Nancy

IgG + to gliadin

IgA - to gliadin

IgA Endomysium -

Total IgA not run, awaiting further testing

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