Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does This Sound Like Dh?


grannynanny

Recommended Posts

grannynanny Rookie

I'm fairly new to this. Having read many posts around the board, I'm pretty sure that the outbreaks I get in my scalp (and have for years and years) are DH. But reading others' experiences, I am now remembering a huge outbreak I had on my midriff a few years ago (before I knew about Celiac). It was red, itchy and painful. I thought it was shingles, but it did subside fairly quickly and I took no medication (other than Advil). Does that sound like DH?

Also, now that I am gluten-free (7 months -- occasional slippage, particularly with restaurant food), I sometimes get huge red boils around my hairline. They are sometimes pus-filled, and go away after a few days. These bright red eruptions are fairly new to me. Do they sound like DH?

Thanks for any thoughts.

Sue


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf4life Enthusiast

It could be DH. My scalp is the first place I started getting them, many years ago. It is also the first place I break out when I have gotten a large amount of gluten. What I mean by a large amount is more than just the tiny bit of cross-contamination, where the food actually contained an unknown source of gluten. This doesn't happen to me often, but when it does I know by the sores on my scalp, along the hairline.

The abdomen thing might have been shingles, or DH. Shingles is terribly painful. My son occasionally gets it on his abdomen. It hurts to let clothing brush up against it. DH can also be painful though. I guess this is why a good doctor will biopsy the rash to know for sure...As patients maybe we should push for biopsies, since we know it might be DH...

God bless,

Mariann

  • 3 weeks later...
Carriefaith Enthusiast

I think you should definately ask your doctor to get those outbreaks biopsied just to be sure. Good luck B)

mikespeanut Newbie

Grannynanny,

I also suffer from DH along with the Celiac. That does sound like DH to me. My outbreaks are fluid or pus filled bumps. They also sting and are sensitive to touch. Ask your doctor to prescribe doxepine. This medication takes care of the pain and may make you sleepy. I am also allergic to soy and this acts as the gluten causing the DH outbreaks. I hope this helps you.

Charmaine

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    2. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    3. - Scott Adams replied to Cecile's topic in Related Issues & Disorders
      7

      Symptoms

    4. - Scott Adams replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Prana Organics no longer GFCO-certified

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,236
    • Most Online (within 30 mins)
      7,748

    Mary Wallace
    Newest Member
    Mary Wallace
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Let us know how things go.
    • Scott Adams
      In the thread I linked to above, one of our sponsors here sells gluten-free nuts, dried fruits, etc (a coupon that might work for you there is GF20) https://www.tierrafarm.com/
    • Scott Adams
    • Scott Adams
      I’m really sorry you’re dealing with this, and what you’re describing is very real—even if other people can’t see it. Many kids and teens with celiac disease or other autoimmune conditions can have chronic joint and body pain, fatigue, and flares that come and go, which is exactly why it can look “fine one day and awful the next.” That doesn’t mean you’re faking anything. You deserve to be believed and supported, especially at school and at home. It may help to talk with a gastroenterologist or rheumatologist who understands autoimmune pain in teens, and to let a trusted adult help advocate for accommodations when you need them. Wanting to feel like a normal kid makes complete sense—and you’re not alone in feeling this way.
    • Scott Adams
      Don't  let one bad apple spoil the bunch,. as they say. Many health care professionals are doing their jobs the best they can, so it's important to try to work with them in a respectful manner, if when they might be wrong about something.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.