Celiac & Polycystic Ovaries

[aprilc]

Im 20 years old and last year after having constant abdominal pain and being admitted to the er for 4 days, I was told that I had a ruptured cyst on my ovary, I was later diagnosed with Polycystic Ovary Syndrome. Then earier this year I was diagnosed with Celiac Disease. I have been researching on the internet of other women who have then same problem. I stopped getting periods..three months later after thinking im pregnant but not getting a positive test result my doctor finally sent me to a specialist and tests confirm I have PCOS, so I was put on the pill to get my period and make sure I was healthy that way..and then when I moved out and got my own place I began getting real bad diarhea, going many times a day and I was sooo tired all the time. So was sent to a gastro doc and was tested for chrones and checking for cancer, negative..so he tried one last test and called me back for a scope down my thoat..and thats when Celiac was confirmed.. It has been really difficult dealing with this and cutting out everything..

Im afraid to go off the pill as I did for one month a while ago and started getting real bad cramps and didnt get a period again..Ive read that pcos can be a misdiagnosis because celiac causes the same type of problem..

is there anyone else who has gone thru this..can you let me know what is happening to you and what the doctors say..if i do have pcos im worried of the fertility problems down the road..if its not tho, and missing periods is because of celiac then im sure if i keep eating right I can come off the pill..

please someone, let me know

[bigbird3099]

Hi April,

I might be able to help. Celiac can cause many hormonal issues, including fertility problems. I too was diagnosed w/non classic PCOS and was diagnose at 41 w/Celiac. It really all clicked for me when I understood that it was very low levels of Vitamin D and calcium that caused the ovaries not to function properly (my 22 yr old daughter has the same). I see a Dr. in NYC that has done studies on Vit D and calcium and things really started to function well. Her name is DR Susan Thys Jacobs and you can read some of her studies on PUBMED. Even on the gluten free diet we still have to take serious amounts of Vitamin D and calcium.

Good Luck,

Karin

Im 20 years old and last year after having constant abdominal pain and being admitted to the er for 4 days, I was told that I had a ruptured cyst on my ovary, I was later diagnosed with Polycystic Ovary Syndrome. Then earier this year I was diagnosed with Celiac Disease. I have been researching on the internet of other women who have then same problem. I stopped getting periods..three months later after thinking im pregnant but not getting a positive test result my doctor finally sent me to a specialist and tests confirm I have PCOS, so I was put on the pill to get my period and make sure I was healthy that way..and then when I moved out and got my own place I began getting real bad diarhea, going many times a day and I was sooo tired all the time. So was sent to a gastro doc and was tested for chrones and checking for cancer, negative..so he tried one last test and called me back for a scope down my thoat..and thats when Celiac was confirmed.. It has been really difficult dealing with this and cutting out everything..

Im afraid to go off the pill as I did for one month a while ago and started getting real bad cramps and didnt get a period again..Ive read that pcos can be a misdiagnosis because celiac causes the same type of problem..

is there anyone else who has gone thru this..can you let me know what is happening to you and what the doctors say..if i do have pcos im worried of the fertility problems down the road..if its not tho, and missing periods is because of celiac then im sure if i keep eating right I can come off the pill..

please someone, let me know

[rumbles]

I was diagnosed with "sprue" when I was a toddler, and told that I would grow out of it.

When I was 17, I was hospitalized for excrutiating lower abdominal pain. After a laparoscopy,

I was diagnosed with PSOD, and was put on the pill to reduce the pain, which was about 85%

effective. A short time later, my sister, also having lower abdominal pain, was diagnosed with

PSOD, and started on the pill. Fifteen years later, my sister became a breast cancer survivor.

No one mentioned to me that she was ER (Estrogen Receptor) positive, no less what that meant.

My doctors all knew of this new family history, and they all knew that I was on the pill to control

the PSOD pain, but since my sister was the only one in my family (that I know of) that had

breast cancer, no one considered me to be at much of a risk for developing it. My risk numbers

for years came back between 8 and 14%, which the doctors told me was low and not something

to be overly concerned about.

I tried coming off the pill many times, but always went back due to the pain.

Three years ago, I found out that I have celiac disease, and that it's another name for what

I was diagnosed with over 40 years ago. Four months on the gluten free diet, and reading

about the suspected connections between PSOD and celiac, I came off of the pill (for a few

months there was still some discomfort, but that eventually vanished).

Unfortunately, I learned the true risk of the pill late last year, going through surgery and

radiation for breast cancer eight months ago. I now know all too well what ER+ (estrogen

receptor plus) means, and am convinced that I would have spared myself from breast

cancer if I didn't take the pill. Now considered uninsureable (except for COBRA or HIPPA,

since I'm now self employed) I joined the ranks of those called survivor, as I wonder

and pray on a daily basis that one little cell didn't escape and isn't hiding somewhere . . . .

Forty years ago, breast cancer was rarely heard of. Today it's all around. People wonder

why they hear so much about it now, why it's so prevalent. Society has accepted the

pharmaceutical ads that estrogen is safe. Not only is it in the pills we take, it's now often

found in lake and drinking water, and it's in the plastic bottles that we drink from.

Please, do everything that you can to adhere to a strict gluten free diet, and strongly

consider coming off of the pill as soon as you possibly can.

Sorry to sound like such a zealot about this, but trust me, if you can prevent this from

possibly happening, that's a gift that you don't want to pass up. If I could go back and

redo things, just the thought of saving my husband from the fear and the nightmares

that we've lived through this past year, and to keep him from having to go through this,

~ even though the pain was excrutiating, I would have never filled that prescription.

[aprilc]

ok thanks for your info..

were you or your daughter put on the pill because of it at first for the pcos..cuz im going to see a top doc in my city and i dont know what to ask him..i wanna bring up some of the things ive read on here. i have soo much abdominal pain and i read that it could be cysts or inflamation of the intestines..i dont know..its soo confusing.

Im 20 years old and last year after having constant abdominal pain and being admitted to the er for 4 days, I was told that I had a ruptured cyst on my ovary, I was later diagnosed with Polycystic Ovary Syndrome. Then earier this year I was diagnosed with Celiac Disease. I have been researching on the internet of other women who have then same problem. I stopped getting periods..three months later after thinking im pregnant but not getting a positive test result my doctor finally sent me to a specialist and tests confirm I have PCOS, so I was put on the pill to get my period and make sure I was healthy that way..and then when I moved out and got my own place I began getting real bad diarhea, going many times a day and I was sooo tired all the time. So was sent to a gastro doc and was tested for chrones and checking for cancer, negative..so he tried one last test and called me back for a scope down my thoat..and thats when Celiac was confirmed.. It has been really difficult dealing with this and cutting out everything..

Im afraid to go off the pill as I did for one month a while ago and started getting real bad cramps and didnt get a period again..Ive read that pcos can be a misdiagnosis because celiac causes the same type of problem..

is there anyone else who has gone thru this..can you let me know what is happening to you and what the doctors say..if i do have pcos im worried of the fertility problems down the road..if its not tho, and missing periods is because of celiac then im sure if i keep eating right I can come off the pill..

please someone, let me know

[aprilc]

ok, thanks for the info..im sorry to hear what ur family has been thru, is it proven the pill caused the cancer or is it the thought it might have..i dont want to go off the pill if things get worse..im going to see a doctor soon and i was wondering what pill you were on so i can make sure i dont use it. my previous doc said doing a laparoscopy would be useless so we will see what this guy says..lately..my pain has been so much worse than usual..expeccialy when i bend over..its like something is getting squished in my abdomin

and the thing is if i go off the pill i dont get my period and the pcos takes over and i hate it..im sick of the unhealthiness..

I was diagnosed with "sprue" when I was a toddler, and told that I would grow out of it.

When I was 17, I was hospitalized for excrutiating lower abdominal pain. After a laparoscopy,

I was diagnosed with PSOD, and was put on the pill to reduce the pain, which was about 85%

effective. A short time later, my sister, also having lower abdominal pain, was diagnosed with

PSOD, and started on the pill. Fifteen years later, my sister became a breast cancer survivor.

No one mentioned to me that she was ER (Estrogen Receptor) positive, no less what that meant.

My doctors all knew of this new family history, and they all knew that I was on the pill to control

the PSOD pain, but since my sister was the only one in my family (that I know of) that had

breast cancer, no one considered me to be at much of a risk for developing it. My risk numbers

for years came back between 8 and 14%, which the doctors told me was low and not something

to be overly concerned about.

I tried coming off the pill many times, but always went back due to the pain.

Three years ago, I found out that I have celiac disease, and that it's another name for what

I was diagnosed with over 40 years ago. Four months on the gluten free diet, and reading

about the suspected connections between PSOD and celiac, I came off of the pill (for a few

months there was still some discomfort, but that eventually vanished).

Unfortunately, I learned the true risk of the pill late last year, going through surgery and

radiation for breast cancer eight months ago. I now know all too well what ER+ (estrogen

receptor plus) means, and am convinced that I would have spared myself from breast

cancer if I didn't take the pill. Now considered uninsureable (except for COBRA or HIPPA,

since I'm now self employed) I joined the ranks of those called survivor, as I wonder

and pray on a daily basis that one little cell didn't escape and isn't hiding somewhere . . . .

Forty years ago, breast cancer was rarely heard of. Today it's all around. People wonder

why they hear so much about it now, why it's so prevalent. Society has accepted the

pharmaceutical ads that estrogen is safe. Not only is it in the pills we take, it's now often

found in lake and drinking water, and it's in the plastic bottles that we drink from.

Please, do everything that you can to adhere to a strict gluten free diet, and strongly

consider coming off of the pill as soon as you possibly can.

Sorry to sound like such a zealot about this, but trust me, if you can prevent this from

possibly happening, that's a gift that you don't want to pass up. If I could go back and

redo things, just the thought of saving my husband from the fear and the nightmares

that we've lived through this past year, and to keep him from having to go through this,

~ even though the pain was excrutiating, I would have never filled that prescription.