Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Did Your Friends Help?

CranberryTheif

Recommended Posts

CranberryTheif Newbie
CranberryTheif
Posted

Well, I was wondering how other celiac's friends' (and their families) helped....

Like, my friends, were absolutely amazing with helping.

I got diagnosed on my 13th birthday (I'll be turning 16 next spring), and so one of my friends got me a big basket (litterally huge. a midsized dog could sleep in it) full of gluten free foods, most of which were really good. Some of my other friends have gluten-free pancake mix and trix on hold just for when I sleep over. And my two best friends will go out and buy the mixes to make me gluten-free yummies when they know we're going somewhere.

And their parents are really good about making strict gluten-free foods (Sometimes if they accidentally contaminate it, I let it slide).

So I was just wondering if everyone had friends who were really good about taking care of you....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CeliacAlli Apprentice
CeliacAlli
Posted
Well, I was wondering how other celiac's friends' (and their families) helped....

Like, my friends, were absolutely amazing with helping.

I got diagnosed on my 13th birthday (I'll be turning 16 next spring), and so one of my friends got me a big basket (litterally huge. a midsized dog could sleep in it) full of gluten free foods, most of which were really good. Some of my other friends have gluten-free pancake mix and trix on hold just for when I sleep over. And my two best friends will go out and buy the mixes to make me gluten-free yummies when they know we're going somewhere.

And their parents are really good about making strict gluten-free foods (Sometimes if they accidentally contaminate it, I let it slide).

So I was just wondering if everyone had friends who were really good about taking care of you....

I have three best friends and two of them/families are amazing about it. One of there moms was my daycare provider so she keeps bread, pancake mix, noodles at her house for me all the time, and another is willing to make anything for me and hasnt cc-ed me yet. Another has a family that is practically falling apart and she is good about supporting me through it and trying to understand when I need to vent, and some people just don't care. <_<

FaeLD Newbie
FaeLD
Posted

Whenever I go to friends house's, I usually just take my own food. If for some reason they cannot prepare it, I prepare it myself either before visiting my friend's house (stuff that taste good cold should work here such as rice salads) or at my friend's house, since I can cook my own pasta :P.

Other than that, my friends are supportive by not making a big fuss out of it. I like the fact that they don't act as though I'm different. We go out for a barbecue, they just read labels for "100% beef" or something and get those rather than fussing about it and telling me to get my own. So in the end, I'd say understanding was the way they helped me

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,258
    • Most Online (within 30 mins)
      7,748
    mbarnesrrt
    Newest Member
    mbarnesrrt
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Nateral remedies

      By Jmartes71 · Posted

      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      Is Caputo gluten free flour really free of gluten?

      By Scott Adams · Posted

      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      Celiac symptoms

      By Scott Adams · Posted

      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      Kan-101

      By Scott Adams · Posted

      So just to be cautious, there is a big difference between cured, and responding to their medication. I assume you mean that your daughter responded well while taking KAN-101 during the trial, but the drug would not cure celiac disease, but may manage it while you are taking it. Let me know if I got this right.
    • trents
      Is Caputo gluten free flour really free of gluten?

      By trents · Posted

      Welcome to the forum, @Godfather! "Gluten-free" is not the same as zero gluten. The FDA standard for allowing the food industry to us the gluten-free label on a product is that it cannot exceed 20 ppm of gluten. That is safe for most celiacs but not for the subset of celiacs/gltuen sensitive people who are super sensitive. "Gluten-free" wheat starch products have been processed in such a way to remove enough of the protein gluten to comply with the FDA regulation but usually do retain some gluten and we usually get reports from some people on this forum who fall in the more sensitive range that such products cause them to react. Hope this helps. So, you may just have to experiment for yourself.
×
×
  • Create New...