Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello From Newbie. Mom Of Possible Wheat/gluten Allergic Child


ON.Mom

Recommended Posts

ON.Mom Newbie

Good day. Just wanted to introduce myself...I am a Mom to a 11 year old boy. When he was about 6 weeks old we figured out he was reacting to milk and milk products. Ever since then, he has had to be very careful of what he eats. We read everything, everytime we purchase it.

Recently we took him to our family doctor because he was losing weight - 7 lbs in 1 month. He is underweight to begin with - always has been. He hadn't doubled his birth weight at a year. He now weighs in at a hefty 56.5 lbs, up a 3.5 lbs from 4 months ago. Anyway, our famly doctor suggested we "monitor the situation", so I immediately made an appt with our Naturopath. We decided to have a "Food Specific IgG Antibody Assessment" done.

I received those results today, and he shows moderate reactions to wheat gliadin, gluten, spelt, eggs, and high reaction to whole wheat.

The suggestions from the lab are to eliminate the reactive products from his diet for a minimum 3 months. Which we plan on doing. I have been doing research all afternoon, and it brought me to this site.

Any suggestions are welcome! I am already used to making food from scratch, so that is not a problem for me. He loves to bake and cook, so I am hoping to empower him by having him help.

Thanks everyone, I look forward to learning more from all of you!

  • 3 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



momofboys05 Newbie

Hi, im a mom of a 7 yr old, who hasnt been diganosed yet, but gi dr is pretty postive it is. Since he started kindergarden 2 yrs ago, he began to have bathroom issuies. (pooping and peeing himself and not telling anyone), he weighs all of 34 lbs and is 43" tall. He is ADHD and is on a med called vyvance. Its a wonderfull medication for him. It has helped soo much. The first year of kindergarden he was walking out of the class room, jump around like a frog, hiding under tables and so on. The second year of kindergarden he was on the meds and was able to sit down like a regular child and be able to learn what everyone else was doing. He will poop himself and not tell anyone. Its been very frustrating. Had many people tell me that he's doing it for attention. But he is a happy kid, loves to learn and play. Any info you might have learned that might be helpfull to me and my family would be most apprecaited.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.