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For A Seattle Celiac


BallardWA

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BallardWA Rookie

Hello to each and every one of you who gave me so much comfort during this journey. I have found out that I was misdiagnosed with celiac disease, via a genetic test and a doctor (my 6th) with a messianic complex. After being gluten-free for nearly a year, I was still getting sick, and finally sought help from my 7th, and hopefully last doctor. She sat with all of my test results from the past year, put me on a cleansing fast, ran some tests and found out that my problems were related to my adrenals. 6 weeks out and I am finally starting to feel better. In any case, in my desire to embrace this change in my life, I bought a lot of books. I would like to give them to someone in the Seattle area that will use them. Some are cookbooks, some are just about the disease. I also have some unopened flours, mixes, etc, that are all perfectly good, less than 2 months old, and we all know how expensive that stuff is.

If someone will contact me, I will be happy to drop them off, or if anyone has any suggestions for what I can do with them other than post them on Craigslist.

I live in North Seattle.

May God bless all of you with restored health and happiness, you all deserve it.

Best,

Karen Fredericks


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cruelshoes Enthusiast

I just sent you a PM. :)

pinkdljj Rookie
Hello to each and every one of you who gave me so much comfort during this journey. I have found out that I was misdiagnosed with celiac disease, via a genetic test and a doctor (my 6th) with a messianic complex. After being gluten-free for nearly a year, I was still getting sick, and finally sought help from my 7th, and hopefully last doctor. She sat with all of my test results from the past year, put me on a cleansing fast, ran some tests and found out that my problems were related to my adrenals. 6 weeks out and I am finally starting to feel better. In any case, in my desire to embrace this change in my life, I bought a lot of books. I would like to give them to someone in the Seattle area that will use them. Some are cookbooks, some are just about the disease. I also have some unopened flours, mixes, etc, that are all perfectly good, less than 2 months old, and we all know how expensive that stuff is.

If someone will contact me, I will be happy to drop them off, or if anyone has any suggestions for what I can do with them other than post them on Craigslist.

I live in North Seattle.

May God bless all of you with restored health and happiness, you all deserve it.

Best,

Karen Fredericks

Hi Karen,

I'm so glad you found out what really going on with your body. It can be a confusing and long journey. I live in the area and have two celiac children, girls, and then myself. I would love to have some of your books and other things. I would even be willing to pay something for them. I was diagnosed 8 months ago and then tested my two girls, one being 22 months and the other 11 years old. It is very expensive to feed our family and so I haven't boughten any cook books yet, I just refer to this site.

I would be happy to meet you somewhere. I live in the Millcreek area so I am further North than you are. Thanks for the wonderful offer.

Blessings,

Leslie

P.S. My naturopath tested my adrenals and they are very low as well. She has me on high C, B5, B12 shots, progesterone, DHEA and B complex. May I ask what you are doing to get your adrenal function back up? Thanks!

Presto Rookie

Hi!

Has everyone else cleaned you out already? I would be happy to make a drive in the pursuit of things to help me on this journey. I will PM you too.

sickchick Community Regular

What a sweet offer, Karen.

Be well! :)

cruelshoes Enthusiast

Karen - I don't know if you are still around. It was great meeting up with you today. Thank you for your generosity in sharing your books and supplies. My intention is to set up a lending library in our support group, and your books will make a great addition! I wish you good health, and I hope you are on the road to feeling really well.

Thanks again!

BallardWA Rookie

Karen - I don't know if you are still around. It was great meeting up with you today. Thank you for your generosity in sharing your books and supplies. My intention is to set up a lending library in our support group, and your books will make a great addition! I wish you good health, and I hope you are on the road to feeling really well.

Thanks Colleen,

I'll be taking this site off my bookmarks list now, be well.


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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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