Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Not Probiotics?


gaceff

Recommended Posts

gaceff Newbie

The use of probiotics was highly recommanded by all my doctors, since the friendly bacteria are always needed when our digestion is impaired.

So, full of hope, I started with Lactobacillus acidophilus and saccharomices boulardii, both which are known for helping digestion and vitamin absorbtion.

But! After several days of taking them I felt worse and worse, with severe nausea and diarheea. I paused taking them for some days. Then, again, with the same unpleasant effects.

The products I use are with moderate-low probiotic dosage, and are gluten free.

What happens?

Aren't probiotics supposed to have benefic effects ONLY?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



seeking-wholeness Explorer

Andrew,

Open Original Shared Link is a page that may help explain why the probiotics you are taking are not behaving as you expected. I hope you find it informative reading, and I hope you feel better soon!

gaceff Newbie

I happen to have blood Type B, which is supposed to be the most probiotic compatible.

Yet, I do encounter negative effects when ingesting them.

A general medicine doctor told me that a possible explanation would be this: the lactobacilus creates a highly acid environment in my bowels, which is bad for inflamated bowels and especially the duodenum, a delicate part for celiacs.

What do you think of this?

seeking-wholeness Explorer

Andrew,

I don't know enough about the subject to comment on your doctor's theory, but here's something that occurred to me after I posted my previous response: might you be sensitive to yeast? Lactobacillus acidophilus is a bacterium, but Saccharomyces boulardii is a YEAST. It might be worth checking for a yeast intolerance or allergy! I hope you manage to find a probiotic product that doesn't give you such unpleasant side effects. Good luck!

gaceff Newbie

I was not aware that yeast can have negative effects on the GI tract when used in moderate quantities. I this is the case, then rice bread may also be banned from my future diet. Yikes.

seeking-wholeness Explorer

Andrew, I think it depends on the person, like so many other things do. Some people are sensitive to yeast; others aren't. Being celiacs, we have damaged and leaky intestines, which significantly elevates our risk for immune reactions to pretty much any food we eat.

  • 2 months later...
Guest LisaB

Andrew,

I know this discussion took place awhile back, but I just found this info on the Primal Defence site, it may be what you went thru I don't know. It said:

Many probiotics have included fructooligosaccharides (FOS) in their product. FOS is an indigestible sugar that may cause digestive disturbances in certain individuals. Primal Defense contains no FOS.

If you already have this resolved, great, if you want to look into the above info then here is the link: Open Original Shared Link

Hope your doing well. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SteveW Rookie

I've been reading the ingedients for primal defense and it says-

B) Organic "Superfoods" Matrix (spirulina, chlorella, dunaliella, kamut grass, barley grass, oat grass, alfalfa grass)

Is this product Celiac safe?

Kim Explorer

I take Culturelle as my probiotic and it is gluten free.

I was warned that the first week or two of taking probiotic, you can have diarrhea, but after that you normalize..

Good luck.

Kim.

taneil Apprentice

Primal Defense does not contain gluten. It says it plainly on the bottle and I trust this company. IF you notice the list, it says (spirulina, chlorella, dunaliella, kamut grass, barley grass, oat grass, alfalfa grass). When these cereal grasses are sprouted, the gluten is used up and so they do not contain gluten. I believe most, if not all, of the Garden of Life products are gluten free. This is a very reputable company.

SteveW Rookie

teneil

I'm glad PD is working for you and you trust the company. I have tried many products labeled gluten-free and have spent plenty of wasted hours in the bathroom dealing with the aftermath. Maybe I'm just a little less trusting when I see the words oat and barley on the label. Grass or no grass.

I recently tried a digestive product labeled gluten-free that had Barley Grass as an ingredient-I over looked this trusting the label and was hit very hard.

I'm not a farmer or scientist so I'm not even going to pretend to understand the life cycle of wheat barley and oats. My policy is if it starts out as a bad grain, no matter what it turns into, its off limits.

I've seen that wheat grass is a no no. Is this untrue?

You seem very defensive of this product. Maybe I'm just reading you response wrong? IF not...oh well. I think its a valid question. B)

Guest LisaB

Steve,

It is a valid question, and something I want to make sure of myself. Others that have Celiac I know are on this product, put I hadn't checked into the ingrediants myself yet, I just saw that info on the undigestable sugar and thought I should post that.

Later in the facts area is says:

Can Celiac or gluten sensitive people take Perfect Food
Guest LisaB

Oh, I forgot, they also have Fungal Defense for Candida that doesn't look like it contains the greens and might be a good first product to try. We probably all have a good case of Candida going on in our intestines since that is a common infection and we are prime candidates. This formula also has the probiotics and the right added enzymes to fight all infections, not just Candida...viruses and bacteria surround themselves with a protein layer to avoid the immune system, so the protein enzymes included in this formula would do the job of ridding them of that and the carb enzymes would help with Candida or general carb digestion. Looks good to me.

taneil Apprentice

SteveW,

I am sorry if I sounded defensive about Primal Defense. My husband tells me that I state things that I have an opinion about in defensive ways, even though I don't mean to. I guess I do the same in writing. Sorry about that. I also have to confess that I do not take Primal Defense and never have. I am nursing my baby still and am not sure if I should take it or not because of the baby. But I would take it if I was not nursing. My other confession is that I am Gluten Intolerant, but have never had bad intestinal problems like a lot of Gluten Intolerant people. So even if I do ingest gluten, I don't necessarily know it until I get fatigued and mood swings which are my symptoms of gluten intolerance.

So I am sorry for sounding defensive about primal defense. I have read "The Makers Diet" By Jordan S. Rubin who does the Garden of Life products and from everything I have read, I have been very impressed and believe that he has good products. I have taken the Perfect Food with the Cereal grasses in it, but stopped because it has chorella which I believe was upsetting my babies tummy, but it did not give me any problems personally.

Please forgive me for coming across the way I did. :unsure:

  • 2 years later...
christiane Newbie
The use of probiotics was highly recommanded by all my doctors, since the friendly bacteria are always needed when our digestion is impaired.

So, full of hope, I started with Lactobacillus acidophilus and saccharomices boulardii, both which are known for helping digestion and vitamin absorbtion.

But! After several days of taking them I felt worse and worse, with severe nausea and diarheea. I paused taking them for some days. Then, again, with the same unpleasant effects.

The products I use are with moderate-low probiotic dosage, and are gluten free.

What happens?

Aren't probiotics supposed to have benefic effects ONLY?

hi!

i m having the same problem.i m diagnosed with celiacs disease chrons disease and colitis.i tried several times to take probiotics and it made the situation much worse.was the lactic acid in your case really the reason?or is there another reason why people with an inflamed colon cant tolerate probiotics?is it possible that we are having an autoimmunreaction to the gut flora?if its just because of the lactic acid it should be possible to take small amounts of probiotics.

christiane

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.