Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking For A Good Gi Doctor In San Diego

katbird

By katbird
in Doctors

Recommended Posts

katbird Newbie
katbird
Posted

I have tested negatively for Celiac twice, although the blood tests were sketchy. 3 out of four of my kids tetsted positive in the last year. I have been having symptoms for the last 3 years. I was sent to a GI and he did an endoscopy , looking at my throat and stomach primarily because at that time I was had been complaining of throat issues. I had asked him to check me for celiac and he insured he would. When I got the report back, it said that they had biopsied only my throat, but it said I was negative for celiac based upon "looking". I have been back to my GP countless times, the last time having a CT scan for stomach difficulties. Of course, that was negative for anything, so now my GP thinks it is all in my head. I still feel like crud most of the time, low energy, stomach issues, memory problems, etc. And this all started before my kids were diagnosed. The only reason we found out about my kids was my then 7 year old was diagnosed with type 1 Diabetes and they checked her for celiac. She had a very severe case. My other two were less severe.

I have been doing lots of research and have come to the conclusion that not a lot of doctors know what they are talking about when it comes to celiac. So I am at a standstill. Should I go back to my GP and demand that they do another blood test, this time at a reliable lab? Do I get a second opinion?

Should I have that Gi doctor look at the "biopsy again? My kids' GI doctor is a celiac specialist and is wonderful. Of course, she can't really tell me anything about my dilemma, but she did say there is a adult celiac specialist in SD.

Anyway, I was just wondering if there is anyone out there who can give me some advice.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mslee Apprentice
mslee
Posted

Hi!

Your in my home town! I was recently dxed but in Texas so I am unsure about a good GI in San Diego but here is some info I have passed on to my family out there maybe some will be of help....

UCSD Has a Celiac research center:

Open Original Shared Link

San Diego has it's very own gluten free website:

Open Original Shared Link

This is another link for UCSD..Not sure if it is the same center

(this is the Dr listed at the bottom of the page... Dr. Greg Harmon at the Adult Celiac Center, call (619) 543-2347)

Open Original Shared Link

If you contact any of these groups they should be able to send you a list of Drs who know about celiac:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Wish I had a good name to give you, maybe someone in SD will get you a name. Another option is to have entrolab Open Original Shared Link or prometheus labs Open Original Shared Link do a genetic test...prometheus looks like it can only be ordered by a Dr. but they have forms you can print out for your Dr to fill out &they are in CA. Entrolab you can order yourself.

Also if you get D.H. blisters I have heard they can be biopsied & tested for celiac.

Hope that helps!

Good luck!

mslee Apprentice
mslee
Posted

also if your kids have tested positive, and you have symptoms there is a very good chance you are celiac too...you could just go Gluten Free.

..sounds like you have had you stomach looked over pretty good, they could do colonoscopy to make sure there is not colitis or anything caused by celiac...have they checked your liver, thyroid, ana, or for malnutrition to see if anything else is coming up suspicious? My liver & thyroid being off helped to lead to my dx, after dx they tested my vitamin levels & I was low in B12 & D. Some are low in Iron.

good luck!!!

katbird Newbie
katbird
Posted
  • Author

Thanks for all your info! I have thought about going gluten free without the diagnosis, but I find it hard to do when I don't know for sure if I have it. Plus I keep thinking that if I test again, I need to be on a gluten diet.

I have had my liver and thyroid and iron checked out and apparently they were all fine. I haven't had vitamin levels done.

I am aware of most of the info you gave me regarding the caliac center inSD and Dr. Harmon. San Diego does have good resources for celiac. I guess I should ask my doctor to request a Prometheus test. If they do it, and it comes back negative, then at least I know a reliable lab did it. And perhahs I can have them test for the gene as well. I think that is where I will start. Your journey looks like it was a pretty rough one. I am glad you are feeling better now! My kids feel a lot better now and are growing much more!

Thanks again!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748
    Mhp
    Newest Member
    Mhp
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Bitters for digestion?

      By Wheatwacked · Posted

      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      Bitters for digestion?

      By AnnaNZ · Posted

      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Bitters for digestion?

      By AnnaNZ · Posted

      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By lehum · Posted

      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      Is this celiac?

      By Hmart · Posted

      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.