Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Neurological Problems?

ellora

By ellora
in Related Issues & Disorders

Recommended Posts

ellora Newbie
ellora
Posted

hi i need to chat to someone as doctors in the uk dont listen and havent got a clue. iv got coeliac and DH, my mums also has coeliac and just been diagnosed with MS. I never realised the neurological effects coeliac could have and i have been having problems with my thought patters and things and i was wondering if anyone knows anything. I know theres links with depression but my doctor says not. even though my mum sufffers from depression also. i was an A student at school and as i got older i started to struggle with concentration and its got worse i feel like my mind is slipping away from me. i forget things (i reask questions over again minuits after iv been given the answer and walk out of the house with my cups in hand ect.)and have always been so clumsy that all my teachers and family ect. usd to comment on it. my first word was celetape <(eg. iv just spent half an hour trying to remember how to spell it and cant). im wondering if i have a coordination problem as people also comment on the way i walk. some even say i have a slight limp or dragging of the leg. iv gotton so bad somedays i cant talk and i stop in the middle of things and dont know what im doing. iv heard of legions on the brain with coeliac but i dont know if its related. i have insomnia and really bad dreams when i do sleep. iv always been good at hard work but i was in my last job for seven weeks before i broke down as it was too much. just a shop job but on my last day before i decided to leave i made so many mistakes and i was shaking and felt like my head was exsploding. i dont feel my olds self. i know theres something wrong. i think to everyone else this sounds stupid but to me its scary and i think a doctor will think im mad. thing is though i started a degree four years ago getting top marks and took a years out when i went down hill thinking id get better with rest and didnt and in the end i ended up barely passing. im sorry for the essay i just need help. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


teemaree Apprentice
teemaree
Posted
  ellora said:
hi i need to chat to someone as doctors in the uk dont listen and havent got a clue. iv got coeliac and DH, my mums also has coeliac and just been diagnosed with MS. I never realised the neurological effects coeliac could have and i have been having problems with my thought patters and things and i was wondering if anyone knows anything. I know theres links with depression but my doctor says not. even though my mum sufffers from depression also. i was an A student at school and as i got older i started to struggle with concentration and its got worse i feel like my mind is slipping away from me. i forget things (i reask questions over again minuits after iv been given the answer and walk out of the house with my cups in hand ect.)and have always been so clumsy that all my teachers and family ect. usd to comment on it. my first word was celetape <(eg. iv just spent half an hour trying to remember how to spell it and cant). im wondering if i have a coordination problem as people also comment on the way i walk. some even say i have a slight limp or dragging of the leg. iv gotton so bad somedays i cant talk and i stop in the middle of things and dont know what im doing. iv heard of legions on the brain with coeliac but i dont know if its related. i have insomnia and really bad dreams when i do sleep. iv always been good at hard work but i was in my last job for seven weeks before i broke down as it was too much. just a shop job but on my last day before i decided to leave i made so many mistakes and i was shaking and felt like my head was exsploding. i dont feel my olds self. i know theres something wrong. i think to everyone else this sounds stupid but to me its scary and i think a doctor will think im mad. thing is though i started a degree four years ago getting top marks and took a years out when i went down hill thinking id get better with rest and didnt and in the end i ended up barely passing. im sorry for the essay i just need help. :(

I too would be interested in learning more about this....

It was the servere depression that finaly got the attention of a doctor, who found it very easy to recognise I had celiac...My depression and anxiety were so bad...I couldn't watch the news as it would have me stressing so much and upset. But since going gluten free... I have noticed I am so much better at handling stress. But even just today I had the same experience of bad co-ordination and bad memory blanks at work today... like not remembering simple tasks or remembering the right change to give, and not being able to recall a fellow staff members name... I was trying to dig deep into my memory to pull his name and for the life of me, it wouldn't come to me....

harp1 Apprentice
harp1
Posted

So glad you posted. I've been really shaky for a long time - have essential tremor, and sometimes unsteady on my feet. I've recently started B12 and magnesium shots and everything is improved. My thinking is clearer and memory is improved, as well as my general attitude. I'm not depressed or anxious. WOW. There's so much research about how the brain is effected by celiac, maybe do a search on this forum for more specific details. Good luck :P

ps have you had your thyroid checked? Big part of the picture too.

caek-is-a-lie Explorer
caek-is-a-lie
Posted

Gluten gives me non-epileptic seizures, Narcolepsy with Cataplexy (paralysis), depression, anxiety attacks, foggy brain, memory problems, disrupted sleep, moodiness, etc...

Someone posted a great link to Open Original Shared Link here a little while ago and they describe in more detail what can be going on. They even mention antigliadin antibodies can be found in the cerebral spinal fluid of people with gluten-induced neurological problems, even if they don't have classic Celiac villi atrophy or anything. I thought that was really fascinating. Gluten can so profoundly affect people in different ways and yet it still so misunderstood by the medical community.

lbd Rookie
lbd
Posted

Here is a link to a site listing several articles that you can take to your doctor about neurological manifestations of gluten toxicity:

Open Original Shared Link

For myself, the primary way I respond to gluten is with migraines and brain fog. I teach high school and I thought I was starting to suffer from early Alzheimer's or at least getting old, since I would lose words, forget things, etc. That is all gone now with a gluten free diet! I can't believe how sharp my mind seems again.

Laurie

  • 5 months later...
Pattygallegos Newbie
Pattygallegos
Posted

Hi: I hope I can help you a little I have a 10 year old suffering with the same problems, bad memory, she used to walk on her tippy toes and had coordination problems. It when so far that last year in June she has her first seizure it was so strong that I thought she was going to die.

Lately I have realized that most of her problems are in her diet, she used to love popcorn in very way and form. When we start reading the labels of the food we used to eat we saw that most of it is corn in different colors and shapes, even vitamins have corn.

Since then we are more careful with the food we eat and we all feel so good and happy. Think about it. We are what we eat.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,979
    • Most Online (within 30 mins)
      7,748
    mary lou grolimond olson
    Newest Member
    mary lou grolimond olson
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By Scott Adams · Posted

      It sounds like your gastroenterologist is becoming increasingly confident that celiac disease is the likely diagnosis based on both your older and newer lab results. Her suggestion to call each Monday for possible cancellations is actually a great strategy—especially given how long the wait is until your August 29th appointment. It’s also a good sign that she’s advocating for you to be seen sooner, which shows she’s taking your case seriously. The fact that some labs might not have been drawn yet due to overlap with your functional health doctor’s upcoming testing adds a layer of confusion, but that’s unfortunately common when multiple providers are involved. Hopefully, the GI’s...
    • cristiana
      Worried about being isolated

      By cristiana · Posted

      Thanks for sharing that film, @trents.  I am not sure how I missed that film as I see it is a few years old, but it is very good.  I think you should be fine if you take your own packed lunch and eat it from your own lunchbox etc.  Might be worth doing a lunchtime recce to see how cramped the room is before making a decision - for all you know, there may be other people  there who don't eat gluten?
    • cameo674
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By cameo674 · Posted

      The GI doc messaged me this afternoon that she believes that the new blood work added to the old is definitely  looking like a celiac diagnosis is in my future.  She wants to me to call into scheduling each Monday to see if I can get my August 29th appointment moved up due to cancellations.  I have never had a doctor recommend that.  She also said there were additional labs that she requested still out that have not come back yet; so, they may have been missed drawing those since the functional health doctor has a whole slew of labs that I am suppose to be waiting until August 27th to do. I am still waiting to hear on whether or not she will allow me to do pill prep versus the typical...
    • Alibu
      Latent celiac, need to go gluten free, advice on kitchen "reset?"

      By Alibu · Posted

      Well, I've made if from the pre-diagnosis forum to here!  I've been diagnosed with "latent" or "potential" celiac and my doctor has suggested me to go gluten-free before my appointment with him in October (first available, LOL).  My ttg-iga was 152, my EMA was positive, I have the gene, but my biopsy was negative (and he took 12 samples), so it makes sense to go gluten free to see if I improve. I know the basics - I can find lists of things to avoid, I know about hidden dangers, etc. all of that.  Where I'm struggling is just STARTING.  I need to go shopping and stock up on some staples.  My goal is to not try to find gluten-free alternatives, but to focus on naturally gluten-free foods like...
    • Scott Adams
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By Scott Adams · Posted

      It’s great that you were finally able to see a gastroenterologist—and even luckier to get in the same day as your referral! It sounds like your GI is taking a very thorough approach, which is reassuring given your complex symptoms and history. The confusion around your different tissue transglutaminase (tTG) antibody results is understandable. The variation between your December and June labs may be due to multiple factors, including differences in the lab performing the test (Quest vs. Mayo Clinic), the specific assay used, and the amount of gluten you had been consuming before each test. Antibody levels can drop significantly when gluten is reduced or eliminated from the...
×
×
  • Create New...