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My Sons Celiac Test Results


zack

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zack Rookie

My son was tested by a top childrens hospital. His Symptoms are small stature bone age 2 years behind his age. He is 10. He has a vitamin d difiencey, His teeth are discolored, He can not put weight on. Weight has been 49-51lbs for past 3 years. His pediatrician told me its just constitutional growth delay and he is fine that he is in the 5th percentile and its normal for him. He is allergic to all grasses, trees, weeds. The Childrens hospital did a TTG-IGA, EMA-IGA both were negative and a Iga which his result was 78 normal range was 70-335. I went to see gi yesterday and she said she was gonna do a rast test for wheat and other foods and that i should try a boost drink for kids before bed for extra calories. I have to go back in three months and she said then we can see were he is as far as growth and talk about a endoscopy. So we get home and i decided to pull my husbands old ttg test FROM 2007 and he tested a 6 on his ttg-weak positive and his doctor had told us he was negative. With discovering my husband was positive do you think it would be unreasonable to demand a endoscopy on my son. Any suggestions. Has anyone had there kid test negative on ema, igg and still have celiac?


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curiousgeorge Rookie

My oldest son was the same way. Some boys grow very little between 7 and 11. Mine was pretty much the same size at 12 he was at 8. In the last 9 months, he's grown close to 4" and gained a good 15 lbs.

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      I don't see how cornstarch could alter the test results. Where did you read that?
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    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
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