Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Ideas? Really Need Some Help


S-J-L

Recommended Posts

S-J-L Apprentice

Hi everyone,

Im a 21yr old female and have been gluten free for over a year now. Was diagnosed as celiac by blood and biopsy (subtotal villous atrophy). I am 5'8 and was only 95lb (43kg) when diagnosed. Ive gained some weight, but not enough, im about 107lb (48.5kg). My BMI puts me as being severly underweight, and i think it is this that makes me really tired. My bloodtest results are fairly good now, but i havn't been putting on any weight in the past 6 months, only early on in the diet. I don't think i have other intolerances either.

My family doctor said to my mum that he doubts i'll get any bigger :( I thought that i would be ok once my intestine had healed, but obviously not.

Help please


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mimommy Contributor

Have you had your thyroid and/or nutrient levels tested? You may have low thyroid or deficiencies in your iron, b-12, and vitamn-D levels as a result of the malabsorption associated with celiac disease. Each one of those can be a major culprit in fatigue.

flourgirl Apprentice

It may be that you just need more time. My weight was really low before diagnosis. Even when my nutrient levels started looking better, I wasn't gaining weight. It took more than a year after diagnosis and being on the diet before I started gaining any significant amount of weight. Even now, my doc would like to see me gain more (I disagree, though), but she is content that at least my weight has stabilized.

If your not having trouble with other foods, then just stay on the diet and make sure it's healthy and enough calories. Do make sure you have a blood panel for thyroid, and for nutrient levels in the blood. You're in the right place for advice, there's lots of experience here. Make sure that you are participating in health decisions and not blindly accepting what the docs have to say. You know what feels right and what doesn't.....I guess I mean...trust your instincts.

Hope you find your answers...good luck to you!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      3

      Shingles - Could It Be Related to Gluten/ Celiac

    2. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting

    3. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting

    4. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting

    5. 0

      Virtual Support Group: Living Gluten Free


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,449
    • Most Online (within 30 mins)
      7,748

    ellenkass
    Newest Member
    ellenkass
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Flash1970
      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain.  That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral.  It does lessen the symptoms. If it is in your eyes,  see an ophthalmologist.  They have an antiviral eye drop that can be prescribed.  Shingles in the eye could cause blindness.  I was unsure whether you have celiac or not.  If you do,  follow the diet.  I believe that extra stress on your body does affect everything. Shingles can recur. If you start getting the warning signs of nerves tingling,  see the dr and start taking the valacyclovir to prevent a breakout. If I sound technical,  I am a retired pharmacist. 
    • Scott Adams
      You are right to be proactive, as research does indicate that individuals with celiac disease can have a higher predisposition to enamel defects, cavities, and periodontal issues, even with excellent oral hygiene. While many people with celiac successfully undergo orthodontic treatment without complication, your caution is valid. It may be beneficial to seek a consultation with an orthodontist who is familiar with managing patients with autoimmune conditions or who is willing to collaborate with your daughter's gastroenterologist or a periodontist. They can perform a thorough assessment of her current oral health, discuss your specific concerns about recession and decay, and create a tailored hygiene plan. This second opinion could provide a clearer risk-benefit analysis, helping you decide if addressing the cosmetic concern of the lower teeth is worth the potential risks for your daughter, especially if they are not currently affecting function or her confidence. 
    • Scott Adams
      This is an older article, but still helpful:  
    • cristiana
      It's strange because I'm pretty sure not too long ago I picked up a loaf of bread with B vitamins, but I can't find a single one now.  Probably cutbacks, everyone's trying to save money now!
    • Scott Adams
      Eating grains typically depletes certain B vitamins, so I'm not sure why they decided to fortify with calcium and iron, but hopefully we'll see more B vitamin fortification in gluten-free products going forward.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.