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Itchy Everywhere-but No Rash


Seamuskitty

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Seamuskitty Rookie

Does anyone get really itchy when they eat a wheat product? It happens to me if I eat gluten--

Tonight I ate something with gluten because I am going to have a biopsy soon. Within an hour I was tingly and itchy all over--and I mean ALL OVER! Even inside my ears...

This is not the first time this has happened. I eliminiated gluten for a month and then ate pasta to see if it was a migraine trigger at the very start of this discovery process and itching was one of the obvious reactions.

What is this itchy tingliness? It feels like bugs are crawling under my skin...and it keeps me awake. It feels dreadfully like I've been poisoned. I have to take a benedryl to get any rest.

If I have to eat gluten for a prolonged amount of time before my biopsy, I think I will go nuts from the itching alone, not to mention the pain, bloating and gas! :P


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Mother of Jibril Enthusiast

Sounds like an allergic reaction... especially if Benadryl helps.

Have you ever had allergy testing? It's possible to have celiac disease AND an allergy to wheat. Last time I had anaphylaxis I had intense itching (hives) literally from head to toe... even on my scalp and ears. What a weird and horrible feeling. Histamine levels peak around 2:00 in the morning, so that could explain why the itchy feeling is keeping you awake at night. You might want to ask a doctor, but it should be fine to take Benadryl before you go to bed... every night if you have to! Definitely see an allergist (or maybe a dermatologist) if the itching continues when you're gluten-free... it could be chronic hives.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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