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Not Sure What To Do


itchy-fingers

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itchy-fingers Newbie

Hi all. I recently stopped eating wheat and am feeling a lot better. When I eat wheat my head feels fuzzy and I am tired. I also have a long history of getting itchy blisters on my right ring finger. My finger swells up and it is very painful. I have seen numerous doctors regarding this and I was just given steroid cream for the rash. I saw a naturopath and he diagnosed me with a candida imbalance. I have a history of yeast infections. Since treating me for yeast infections the itchy fingers have gone away most of the time. I also have polysistic ovarian syndrome. My naturopath said that lots of people with polysitic ovaries are also sensitive to wheat.

I have no problems with my stomach/bowels etc.

I am not sure of where to go from here. I am not going to eat wheat anymore because it just makes me feel so crappy but I am afraid that I could also have other allergies. I don't want to start getting all kinds of medical tests and get freaked out over this but I worry that I could be doing damage to my body and not even know know it! Suggestions?

Thanks all,

F


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my.oh.my Newbie

Sorry to inform you but i suggest you do what you least want to do.... Get yourself tested a.s.a.p. You wouldn't want to have the symptoms haunt you all your life!neither would you wonna live in the world of the unknown. for all we know it might be somthing you can easily heal!

Good Luck!

tarnalberry Community Regular

The problem with getting blood tests or biopsies is now that you've been gluten free, they won't be reliable.

I'm a big fan of "if it hurts to hit yourself in the head, don't hit yourself in the head". Of course, that's harder to do with something so socially prevalent as wheat, but if YOU find that you are confident enough in your conclusion to avoid wheat without testing, it is an option. You'll be left with the question of whether or not you need to avoid the other celiac offenders, though - barley, rye, and possibly oats.

Not everyone develops other intolerances, and some of those are just from eating too much of any particular thing.

There aren't clear cut answers that fit everyone here - the only thing to do is weigh all the options you are aware of, and make the best decision that you can make at the time.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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