Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Really Long Naps

melblondin

Recommended Posts

melblondin Apprentice
melblondin
Posted

Hi everyone -

I am looking into getting bloodwork done again on my 3 year old at the end of April. His test was "inconclusive" at his 2 year checkup, so we were sent to a GI and he pretty much blew us off and told us to just feed him a high fat/high protein diet (I think at that time he was in the 5th percentile). At any rate, I am wondering if any of you have children with celiac disease who take really long naps. If I let him, and some days I have because he is in such a solid state of sleep, he will nap from 1:30pm - 5:30pm and then go to bed for the night at about 9 or 9:30pm. It just seems to me that he's more tired than a typical 3 year old. He's also always very red in the face, like his cheeks are inflamed/chapped and there have been several times in the past few weeks especially where he has just stopped eating mid meal and said, "My tummy hurts. May I be 'scused?" I strongly suspect Celiac, but just wondered if there are any other long nappers out there?? Oh and what about potty accidents? He's been potty trained for awhile now, but there are days where he wets himself three or four times out of nowhere. I can't figure out if it's a symptom or if it's a behavior thing... Sorry for all the random questions....I'm just trying to make sense of it all.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mom of a Celiac toddler Apprentice
Mom of a Celiac toddler
Posted

You could be singing my song, but he doesn't sleep quite as long as yours. He sleeps for about 2-2 1/2 hours, and 12 hours at night. My son was 18 months, and had dropped from the 95th to 3rd percentile, when we tried to get the diagnosis. We had already been gluten free for a few weeks when we did the biopsy so he was negative, but proceeded as if he was positive per the dr's advice. Now he is 2, and every time he gets accidently glutened he gets the really red chapped looking cheeks. He also is potty trained, but will have 3-4 accidents a day for a few days after being glutened! I strongly believe the accidents are a symptom, not behavior. From what little research I can find it is difficult to get a diagnosis this young. Personal choice for us: we have choosen to not sweat the diagnosis, but to do what makes us son healthy and happy! Call him celiac or extremely gluten intolerant, I don't care-I just know the choice to go gluten free was the best decision we ever made for him!

Good luck!!

Hi everyone -

I am looking into getting bloodwork done again on my 3 year old at the end of April. His test was "inconclusive" at his 2 year checkup, so we were sent to a GI and he pretty much blew us off and told us to just feed him a high fat/high protein diet (I think at that time he was in the 5th percentile). At any rate, I am wondering if any of you have children with celiac disease who take really long naps. If I let him, and some days I have because he is in such a solid state of sleep, he will nap from 1:30pm - 5:30pm and then go to bed for the night at about 9 or 9:30pm. It just seems to me that he's more tired than a typical 3 year old. He's also always very red in the face, like his cheeks are inflamed/chapped and there have been several times in the past few weeks especially where he has just stopped eating mid meal and said, "My tummy hurts. May I be 'scused?" I strongly suspect Celiac, but just wondered if there are any other long nappers out there?? Oh and what about potty accidents? He's been potty trained for awhile now, but there are days where he wets himself three or four times out of nowhere. I can't figure out if it's a symptom or if it's a behavior thing... Sorry for all the random questions....I'm just trying to make sense of it all.

melblondin Apprentice
melblondin
Posted
  • Author

Oh wow - thanks so much for your response. I've been thinking all these behaviors were linked and like I said, I suspected celiac, but didn't know if I was just being crazy. I think I'll keep him on gluten just until his check-up this month and then regardless of what the test and/or doctors say, like you did, I'm just going to take him off gluten and see if things improve. I'm already eating gluten free because of my own wheat allergy and possibility of celiac, so it really shouldn't be too hard and we'll hopefully see some of these symptoms disappear. Thanks again for your reply!!

mznia504 Newbie
mznia504
Posted

Yep, my 3 yr old sleeps just like that. Nap from 1-5 and bedtime at 8:30, not waking until 9am the next morning. And half days of preschool wear him out so bad that he nearly callapses when I pick him up from school. He sees a dietician next month so hopefully it will help...

Beth03456 Newbie
Beth03456
Posted

My son was diagnosed right after his 3 yo checkup. He was taking extremely long naps like yours, and always seemed tired. We carried him a lot, used the stroller, etc. We could tell something wasn't quite right, and so could his pediatrician. After being on the gluten-free diet for a month, he dropped his nap quite suddenly. While it could have been a maturity issue, so hard to tell with 3 yo's!, we attributed it to the diet. Now he is almost 4 and still falls asleep occassionally but nothing like the days pre-diagnosis.

macocha Contributor
macocha
Posted

my son is 12 and pre-diagnosed he would sleep all night, at times in class, and then all afternoon - sometimes through the night.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,551
    • Most Online (within 30 mins)
      7,748
    Newest Member

    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.