Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Did This Happen So Quickly?

anniej55

Recommended Posts

srdover Newbie
srdover
Posted

Anniej55,

I don't know if they have told you which of your blood tests are low, but the low blood counts that are commonly found with celiac disease (hemoglobin and hematocrit levels) could by why you are being sent to see the hematologist. They are just trying to be thorough.

I understand how you feel about the diet. I was so afraid that I was dying that when I was diagnosed with celiac disease, it was like a gift had been given to me. I'll look forlornly at a particularly yummy treat once in a while but my life has improved so much that I view it as a small price to pay.

The first six months after diagnosis was very frustrating for me because there sometimes seemed to be no rhyme or reason as to when I would have a set back. Occasionally, I could track down a reason, sometimes I couldn't. But it did continue to get better and better.

My advice would be to not push yourself too hard and rest when you need to. Eventually you see a return to your "old self"!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


anniej55 Apprentice
anniej55
Posted
  • Author

Hi,

I've become pushy - I finally emailed my doctor and asked her about the abnormal counts (I had picked up my lab work) and then asked her what she was looking for - and could it be cancer.

She emailed me back today; she said the antiplatelet did "imply low grade ITP" ; Lupus is still being considered. She wants me to see the hematologist because he might want to do a bone marrow biopsy to check on precursors, whatever the heck those are. Now why didn't she just say that to begin with? Oh - and that leukemia was highly unlikely because the labs would be more off and I'd be more sick.

I took matters in my own hands and emailed Dr Fasano, a leading specialist. And he actually emailed me back!!! He couldn't comment on the lab work, but said that nothing would change for at least 4-6 months. I sort of figured that, but why didn't my doctor know that?

Oh well. This whole thing has been a nightmare. Not the celiac ... all the other stuff that is going along with it. Eating gluten-free is not a problem ... well, it's something I can live with. :rolleyes:

Today is my 3rd good day in a row ... and I have work to catch up on. My boss (school principal) has been wonderful, but I still have responsibilties.

Thanks for the support

Ann

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,045
    • Most Online (within 30 mins)
      7,748
    Christiane B
    Newest Member
    Christiane B
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Oral thrush question

      By Wheatwacked · Posted

      Has your doctor tested your vitamin D?  Urine Iodine deficiency? Vitamin B12 deficiency can be a contributing factor for oral thrush, especial if you are vegan. Celiac Disease causes  malabsorbtion leading to vitamin and mineral deficiencies. Zinc supplementation reduces Candida infections  I know that zinc is an antiviral and have been using zinc glycomate (Cold Eeze lozanges) since 2004 and have not gotten cold or flu since.  The lozenge coats the mucous membrane with zinc, protecting the cell wall from the virus.  This research paper and some others indicate that zinc also acts as an antifungal.  Worth a try, Try to reduce how much food with high omega 6 that you eat to lower your omeaga 6 to 3 ratio.  It helps with inflammation.  Try eating foods with lots of benificial bacteria.  The goal is to repopulate your gut with good guys. Assuming you do not have dermatitis herpetiformis or another reason to limit iodine, Liquid Iodine to raise your iodine to the 600 mcg a day (middle of the RDA range (150-1000mcg)  to boost your immune system.  Iodine has anti-fungal properties that can help kill Candida species.  Your whole body will heal quicker when you have sufficient iodine and vitamin D.
    • Scott Adams
      Oral thrush question

      By Scott Adams · Posted

      I'm not sure if you found what other here have posted on oral thrush, but this might be helpful: https://www.celiac.com/search/?q="Oral thrush"&quick=1&updated_after=any&sortby=relevancy
    • Scott Adams
      DH persists despite meticulous efforts! Please share insights so I can stop being miserable!

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • trents
      Oral thrush question

      By trents · Posted

      Welcome to the forum, @JulieRe! You would do well to get checked for a candida infection of the gut. Yeast thrives on carbs so you might also look into a low carb diet. These kinds of things seem to be more common in the celiac community than in the general population. There is a growing body of evidence that the development of celiac disease is rooted in unhealthy gut biome conditions. It's good that you are getting that red spot on your tongue checked out soon. It's likely related to the thrush but I would also not rule out a neoplasm which you would certainly want to catch early.
    • cassondracm01
      DH persists despite meticulous efforts! Please share insights so I can stop being miserable!

      By cassondracm01 · Posted

      Hi there! I have very similar dermatitis herpetiformis responses. The only thing that helps is dissolving a Benadryl pill and rubbing that on the painful itchy spots that arise on my knees, scalp, elbows. I have been working with a nutritionist who also has celiac we narrowed down to me only getting we certified gluten-free products - which I try the best I can. But then I have found products that use guar gum and other additive gums I have reactions as well. It was my plant based milk. I had to switch to Elmhurst it’s just nuts and milk- most of the time.   I hope that’s helpful! I’ll keep following:) we seem to have very similar reactions! 
×
×
  • Create New...